Mapping the social determinants of substance use for pregnant-involved young Aboriginal women

Journal article

Shahram, Sana Z., Bottorff, Joan L., Oelke, Nelly D., Kurtz, Donna L.M., Thomas, Victoria and Spittal, Patricia M.. (2017). Mapping the social determinants of substance use for pregnant-involved young Aboriginal women. International Journal of Qualitative Studies on Health and Well-being. 12(1), pp. 1 - 12. https://doi.org/10.1080/17482631.2016.1275155
AuthorsShahram, Sana Z., Bottorff, Joan L., Oelke, Nelly D., Kurtz, Donna L.M., Thomas, Victoria and Spittal, Patricia M.
Abstract

There is a dearth of knowledge about the social determinants of substance use among young pregnant-involved Indigenous women in Canada from their perspectives. As part of life history interviews, 17 young pregnant-involved Indigenous women with experiences with substances completed a participant-generated mapping activity CIRCLES (Charting Intersectional Relationships in the Context of Life Experiences with Substances). As women created their maps, they discussed how different social determinants impacted their experiences with pregnancy and substance use. The social determinants identified and used by women to explain determinants of their substance use were grouped into 10 themes: traumatic life histories; socioeconomic status; culture, identity and spirituality; shame and guilt; mental wellness; family connections; romantic and platonic relationships; strength and hope; mothering; and the intersections of determinants. We conclude that understanding the context and social determinants of substance use from a woman-informed perspective is paramount to informing effective and appropriate programs to support young Indigenous women who use substances.

Year2017
JournalInternational Journal of Qualitative Studies on Health and Well-being
Journal citation12 (1), pp. 1 - 12
PublisherTaylor & Francis
ISSN1748-2623
Digital Object Identifier (DOI)https://doi.org/10.1080/17482631.2016.1275155
Scopus EID2-s2.0-85027693367
Open accessOpen access
Page range1 - 12
Publisher's version
Place of publicationUnited Kingdom
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Hutchinson, P, Bottorff, Joan, Chambers, Natalie, Mowatt, R, Wardman, D, Sullivan, D and Williams, Wanda. (2011). What are the Odds? :Community Readiness for Smoke-Free Bingos in First Nation Communities. Journal of Aboriginal Health (The NAHOE-bulletin). 7(1), pp. 32 - 41.
Gender relations, prostate cancer and diet :Re-inscribing hetero-normative food practices
Mroz, L, Chapman, G, Oliffe, J and Bottorff, Joan. (2011). Gender relations, prostate cancer and diet :Re-inscribing hetero-normative food practices. Social Science & Medicine. 72(9), pp. 1499 - 1506. https://doi.org/10.1016/j.socscimed.2011.03.012
Does nursing research have a future?
Bottorff, Joan L., DiCenso, Alba, Doran, Diane, Estabrooks, C A., Johnson, Joy, Johnston, Celeste, Spence Laschinger, Heather K., Hall, Linda McGillis, Molzahn, Anita, Morse, Janice M., Nelson, Sioban, O'Brien-Pallas, Linda, O'Connor, Annette, Pringle, Dorothy, Ratner, P A., Rukholm, E E., Stewart, Miriam and Thorne, Sally. (2011). Does nursing research have a future? The Canadian nurse. 107(4), pp. 14 - 14.
Sex differences in smoking cessation outcomes of a tailored program for individuals with substance use disorders and mental illness
Okoli, C, Khara, M, Torchalla, I, Ensom, M, Oliffe, J, Bottorff, Joan and Stanley, P. (2011). Sex differences in smoking cessation outcomes of a tailored program for individuals with substance use disorders and mental illness. Addictive Behaviors. 36(5), pp. 523 - 526. https://doi.org/10.1016/j.addbeh.2010.12.029
Preserving the self :The process of decision making about hereditary breast cancer and ovarian cancer risk reduction
Howard, A, Balneaves, L, Bottorff, Joan and Rodney, P. (2011). Preserving the self :The process of decision making about hereditary breast cancer and ovarian cancer risk reduction. Qualitative Health Research. 21(4), pp. 502 - 519. https://doi.org/10.1177/1049732310387798
Prostate cancer support groups, health literacy and consumerism :Are community-based volunteers re-defining older men's health?
Oliffe, J, Bottorff, Joan, McKenzie, Michael, Hislop, T, Gerbrandt, J and Oglov, V. (2011). Prostate cancer support groups, health literacy and consumerism :Are community-based volunteers re-defining older men's health? Health. 15(6), pp. 555 - 570. https://doi.org/10.1177/1363459310364156
Men's smoking cessation interventions :A brief review
Okoli, C, Torchalla, I, Oliffe, J and Bottorff, Joan. (2011). Men's smoking cessation interventions :A brief review. Journal of Men's Health. 8(2), pp. 100 - 108. https://doi.org/10.1016/j.jomh.2011.03.003
Gender relations and health research :A review of current practices
Bottorff, Joan, Oliffe, J, Robinson, Carol and Carey, J. (2011). Gender relations and health research :A review of current practices. International Journal for Equity in Health. 10(60), pp. 1 - 8. https://doi.org/10.1186/1475-9276-10-60
Men, food, and prostate cancer :Gender influences on men's diets
Mroz, L, Chapman, G, Oliffe, J and Bottorff, Joan. (2011). Men, food, and prostate cancer :Gender influences on men's diets. American Journal of Men's Health. 5(2), pp. 177 - 187. https://doi.org/10.1177/1557988310379152
Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease
Bombard, Y, Palin, J, Friedman, J, Veenstra, G, Creighton, S, Paulsen, J, Bottorff, Joan, Hayden, Melissa and The Canadian Respond-HD Collaborative Research Group,. (2011). Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease. American Journal of Medical Genetics Part B : Neuropsychiatric Genetics. 156(1), pp. 19 - 27. https://doi.org/10.1002/ajmg.b.31130
Does mother's smoking influence girls' smoking more than boys' smoking? :A 20-year review of the literature using a sex- and gender-based analysis
Sullivan, Karen, Bottorff, Joan and Reid, Christopher. (2011). Does mother's smoking influence girls' smoking more than boys' smoking? :A 20-year review of the literature using a sex- and gender-based analysis. Substance Use and Misuse. 46(5), pp. 656 - 668. https://doi.org/10.3109/10826084.2010.528122
'The missing picture' : Tobacco use through the eyes of smokers
Haines, R, Oliffe, J, Bottorff, Joan and Poland, B. (2010). 'The missing picture' : Tobacco use through the eyes of smokers. Tobacco Control. 19(3), pp. 206 - 212. https://doi.org/10.1136/tc.2008.027565
Tobacco use patterns in traditional and shared parenting families: A gender perspective
Bottorff, Joan, Kelly, Michelle, Oliffe, J, Johnson, Jerry, Greaves, L and Chan, Aleta. (2010). Tobacco use patterns in traditional and shared parenting families: A gender perspective. BMC Public Health. 10(23), pp. 1 - 13. https://doi.org/10.1186/1471-2458-10-239
Fathers : Locating smoking and masculinity in the postpartum
Oliffe, J, Bottorff, Joan, Johnson, Jerry, Kelly, Michelle and Lebeau, K. (2010). Fathers : Locating smoking and masculinity in the postpartum. Qualitative Health Research. 20(3), pp. 330 - 339. https://doi.org/10.1177/1049732309358326
Young women's responses to smoking and breast cancer risk information
Bottorff, Joan, McKeown, S, Carey, J, Haines, R, Okoli, C, Johnson, Kelley, Easley, J, Ferrence, R, Baillie, L and Ptolemy, E. (2010). Young women's responses to smoking and breast cancer risk information. Health Education Research. 25(4), pp. 668 - 677. https://doi.org/10.1093/her/cyp067
Health promotion and illness demotion at prostate cancer support groups
Oliffe, J, Gerbrandt, J, Bottorff, Joan and Hislop, T. (2010). Health promotion and illness demotion at prostate cancer support groups. Health Promotion Practice. 11(4), pp. 562 - 571. https://doi.org/10.1177/1524839908328990
Men's business, women's work : gender influences and fathers' smoking
Bottorff, Joan, Oliffe, J, Kelly, Michelle, Greaves, L, Johnson, Jerry, Ponic, P and Chan, Aleta. (2010). Men's business, women's work : gender influences and fathers' smoking. Sociology of Health and Illness: A journal of medical sociology. 32(4), pp. 583 - 596. https://doi.org/10.1111/j.1467-9566.2009.01234.x
Gender-specific profiles of tobacco use among non-institutionalized people with serious mental illness
Johnson, Jerry, Ratner, P, Malchy, L, Okoli, C, Procyshyn, R, Bottorff, Joan, Groening, M, Schultz, A and Osborne, M. (2010). Gender-specific profiles of tobacco use among non-institutionalized people with serious mental illness. BMC Psychiatry. 10(10), pp. 1 - 12. https://doi.org/10.1186/1471-244X-10-101
On the road again : Patient perspectives on commuting for palliative care
Pesut, B, Robinson, Carol, Bottorff, Joan, Fyles, G and Broughton, Sandra. (2010). On the road again : Patient perspectives on commuting for palliative care. Palliative and Supportive Care. 8(2), pp. 187 - 195. https://doi.org/10.1017/S1478951509990940
Wisdom and influence of elders : Possibilities for health promotion and decreasing tobacco exposure in first nations communities
Varcoe, C, Bottorff, Joan, Carey, J, Sullivan, D and Williams, W. (2010). Wisdom and influence of elders : Possibilities for health promotion and decreasing tobacco exposure in first nations communities. Canadian Journal of Public Health. 101(2), pp. 154 - 158.
Masculinities, diet and senior Punjabi Sikh immigrant men : Food for Western thought?
Oliffe, J, Grewal, S, Bottorff, Joan, Dhesi, J, Bindy, H, Kang, K, Ward, A and Hislop, T. (2010). Masculinities, diet and senior Punjabi Sikh immigrant men : Food for Western thought? Sociology of Health and Illness: A journal of medical sociology. 32(5), pp. 761 - 776. https://doi.org/10.1111/j.1467-9566.2010.01252.x
Masculinities and college men's depression : Recursive relationships
Oliffe, J, Kelly, Michelle, Johnson, Jerry, Bottorff, Joan, Gray, R, Ogrodniczuk, John and Galdas, P. (2010). Masculinities and college men's depression : Recursive relationships. Health Sociology Review. 19(4), pp. 465 - 477. https://doi.org/10.5172/hesr.2010.19.4.465
Women's constructions of the 'right time' to consider decisions about risk-reducing mastectomy and risk-reducing oophorectomy
Howard, A, Bottorff, Joan, Balneaves, L and Kim-Sing, C. (2010). Women's constructions of the 'right time' to consider decisions about risk-reducing mastectomy and risk-reducing oophorectomy. BMC Women's Health. 10(24), pp. 1 - 12. https://doi.org/10.1186/1472-6874-10-24
A relational conceptual framework for multidisciplinary health research centre infrastructure
Coen, Stephanie E., Bottorff, Joan Lorraine, Johnson, Joy L. and Ratner, Pamela A.. (2010). A relational conceptual framework for multidisciplinary health research centre infrastructure. Health Research Policy and Systems. 8, pp. 1 - 10. https://doi.org/10.1186/1478-4505-8-29
Breast cancer messaging for younger women : Gender, femininity, and risk
Haines, R, Bottorff, Joan, Barclay, S, Ptolemy, E, Carey, J and Sullivan, Karen. (2010). Breast cancer messaging for younger women : Gender, femininity, and risk. Qualitative Health Research. 20(6), pp. 731 - 742. https://doi.org/10.1177/1049732310367502
Unclean fathers, responsible men : Smoking, stigma and fatherhood
Greaves, L, Oliffe, J, Ponic, P, Kelly, Michelle and Bottorff, Joan. (2010). Unclean fathers, responsible men : Smoking, stigma and fatherhood. Health Sociology Review. 19(4), pp. 522 - 533. https://doi.org/10.5172/hesr.2010.19.4.522
Women's experiences of seeking reproductive health care in rural Ghana : Challenges for maternal health service utilization
Yakong, V, Rush, K, Bassett-Smith, J, Bottorff, Joan and Robinson, Carole. (2010). Women's experiences of seeking reproductive health care in rural Ghana : Challenges for maternal health service utilization. Journal of Advanced Nursing. 66(11), pp. 2431 - 2441. https://doi.org/10.1111/j.1365-2648.2010.05404.x
issues in rural palliative care : Views from the countryside
Robinson, Carol, Pesut, B and Bottorff, Joan. (2010). issues in rural palliative care : Views from the countryside. The Journal of Rural Health. 26(1), pp. 78 - 84. https://doi.org/10.1111/j.1748-0361.2009.00268.x
Experiences of rural family caregivers who assist with commuting for palliative care
Lockie, S, Bottorff, Joan, Robinson, Carol and Pesut, B. (2010). Experiences of rural family caregivers who assist with commuting for palliative care. Canadian Journal of Nursing Research. 42(1), pp. 74 - 91.
A family affair : Aboriginal women's efforts to limit second-hand smoke exposure at home
Bottorff, Joan, Johnson, Jerry, Carey, J, Hutchinson, P, Sullivan, D, Mowatt, R and Wardman, D. (2010). A family affair : Aboriginal women's efforts to limit second-hand smoke exposure at home. Canadian Journal of Public Health. 101(1), pp. 32 - 35.
Prostate cancer, masculinity and food. Rationales for perceived diet change
Mroz, L, Chapman, G, Oliffe, J and Bottorff, Joan. (2010). Prostate cancer, masculinity and food. Rationales for perceived diet change. Appetite. 55(3), pp. 398 - 406. https://doi.org/10.1016/j.appet.2010.07.009
"Just because you've got lung cancer doesn't mean i will" : Lung cancer, smoking, and family dynamics
Robinson, Carole, Bottorff, Joan, Smith, Michelle and Sullivan, Kelli. (2010). "Just because you've got lung cancer doesn't mean i will" : Lung cancer, smoking, and family dynamics. Journal of Family Nursing. 16(3), pp. 282 - 301. https://doi.org/10.1177/1074840710370747
Health care providers' engagement in smoking cessation with pregnant smokers
Okoli, C, Greaves, L, Bottorff, Joan and Marcellus, L. (2010). Health care providers' engagement in smoking cessation with pregnant smokers. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 39(1), pp. 64 - 77. https://doi.org/10.1111/j.1552-6909.2009.01084.x
Continued family smoking after lung cancer diagnosis: The patient's perspective
Bottorff, Joan Lorraine, Robinson, Carole A., Sullivan, Kelli M. and Smith, Michelle L.. (2009). Continued family smoking after lung cancer diagnosis: The patient's perspective. Oncology Nursing Forum. 36(3), pp. 126 - 132. https://doi.org/10.1188/09.ONF.E126-E132
Nurses' use of qualitative research approaches to investigate tobacco use and control
Schultz, Annette S.H,, Bottorff, Joan Lorraine and McKeown, Stephanie Barclay. (2009). Nurses' use of qualitative research approaches to investigate tobacco use and control. Annual review of nursing research. 27(1), pp. 115 - 144. https://doi.org/10.1891/0739-6686.27.115
Rural palliative care: A comprehensive review
Robinson, Carol, Pesut, Barbara, Bottorff, Joan Lorraine, Mowry, Andrea, Broughton, Sandra and Fyles, Gillian. (2009). Rural palliative care: A comprehensive review. Journal of Palliative Medicine. 12(3), pp. 253 - 258. https://doi.org/10.1089/jpm.2008.0228
Bingo halls and smoking: Perspectives of First Nations women
Bottorff, Joan Lorraine, Carey, Joanne, Mowatt, Roberta, Varcoe, Colleen, Johnson, Joy L., Hutchinson, Peter J., Sullivan, Debbie, Williams, Wanda and Wardman, Dennis. (2009). Bingo halls and smoking: Perspectives of First Nations women. Health & Place: an international journal. 15(4), pp. 1014 - 1021. https://doi.org/10.1016/j.healthplace.2009.04.005
Resilience from the perspective of the illicit injection drug user: An exploratory descriptive study
Stajduhar, Kelli I., Funk, Laura, Shaw, Audrey L., Bottorff, Joan Lorraine and Johnson, Joy. (2009). Resilience from the perspective of the illicit injection drug user: An exploratory descriptive study. International Journal of Drug Policy. 20(4), pp. 309 - 316. https://doi.org/10.1016/j.drugpo.2008.07.003
Women's decision making about risk-reducing strategies in the context of hereditary breast and ovarian cancer: A systematic review
Howard, A., Balneaves, Lynda G. and Bottorff, Joan Lorraine. (2009). Women's decision making about risk-reducing strategies in the context of hereditary breast and ovarian cancer: A systematic review. Journal of Genetic Counseling. 18(6), pp. 578 - 597. https://doi.org/10.1007/s10897-009-9245-9
Counteracting ambivalence: Nurses who smoke and their health promotion role with patients who smoke
Radsma, Jenny and Bottorff, Joan Lorraine. (2009). Counteracting ambivalence: Nurses who smoke and their health promotion role with patients who smoke. Research in Nursing and Health. 32(4), pp. 443 - 452. https://doi.org/10.1002/nur.20332
Community mental healthcare providers' attitudes and practices related to smoking cessation interventions for people living with severe mental illness
Johnson, Joy L., Malchy, Leslie A., Ratner, Pamela A., Hossain, Shahadut, Procyshyn, Ric M., Bottorff, Joan Lorraine, Groening, Marlee, Gibson, Peter, Osborne, Marg and Schultz, Annette. (2009). Community mental healthcare providers' attitudes and practices related to smoking cessation interventions for people living with severe mental illness. Patient Education and Counseling. 77(2), pp. 289 - 295. https://doi.org/10.1016/j.pec.2009.02.013
A review of undergraduate university tobacco control policy process in Canada
Baillie, Lynne, Callaghan, Doris, Smith, Michelle L., Bottorff, Joan Lorraine, Bassett-Smith, Joan, Budgen, Claire and Federsen, Melissa. (2009). A review of undergraduate university tobacco control policy process in Canada. Health Education Research. 24(6), pp. 922 - 929. https://doi.org/10.1093/her/cyp026
Identifying mental health services in clinical genetic settings
Cappelli, Mario, Esplen, Mary Jane, Wilson, Brenda J., Dorval, Michel, Bottorff, Joan Lorraine, Ly, M., Carroll, June C., Allanson, Judith, Humphreys, Eliza and Rayson, Daniel. (2009). Identifying mental health services in clinical genetic settings. Clinical Genetics: An international journal of genetics and molecular medicine. 76(4), pp. 326 - 331. https://doi.org/10.1111/j.1399-0004.2009.01250.x
The readings of smoking fathers: A reception analysis of tobacco cessation images
Johnson, Joy L., Oliffe, John L., Kelly, Michelle T., Bottorff, Joan Lorraine and LeBeau, K Karen. (2009). The readings of smoking fathers: A reception analysis of tobacco cessation images. Health Communication. 24(6), pp. 532 - 547. https://doi.org/10.1080/10410230903104921
Relief-oriented use of marijuana by teens
Bottorff, Joan Lorraine, Johnson, Joy. L., Moffat, Barbara M. and Mulvogue, Tamsin. (2009). Relief-oriented use of marijuana by teens. Substance Abuse Treatment, Prevention, and Policy. 4(7), pp. 1 - 10. https://doi.org/10.1186/1747-597X-4-7
Perceptions of genetic discrimination among people at risk for Huntington's disease: A cross sectional survey
Bombard, Yvonne O., Veenstra, Gerry, Friedman, Jan M., Creighton, Susan, Currie, Lauren O., Paulsen, Jane S., Bottorff, Joan Lorraine and Hayden, Michael R.. (2009). Perceptions of genetic discrimination among people at risk for Huntington's disease: A cross sectional survey. British Medical Journal. 338(7708), pp. 1 - 8. https://doi.org/10.1136/bmj.b2175
Connecting masculinities and physical activity among senior South Asian Canadian immigrant men
Oliffe, John L., Grewal, S., Bottorff, Joan Lorraine, Hislop, T. Gregory, Phillips, M. J., Dhesi, J. and Kang, H. B.K.. (2009). Connecting masculinities and physical activity among senior South Asian Canadian immigrant men. Critical Public Health. 19(3-4), pp. 383 - 397. https://doi.org/10.1080/09581590902951605
Connecting humor, health, and masculinities at prostate cancer support groups
Oliffe, John L., Ogrodniczuk, John, Bottorff, Joan Lorraine, Hislop, T. Gregory and Halpin, Michael. (2009). Connecting humor, health, and masculinities at prostate cancer support groups. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 18(9), pp. 916 - 926. https://doi.org/10.1002/pon.1415
Fathers' narratives of reducing and quitting smoking
Bottorff, Joan Lorraine, Radsma, Jenny, Kelly, Mary and Oliffe, John L.. (2009). Fathers' narratives of reducing and quitting smoking. Sociology of Health and Illness: A journal of medical sociology. 31(2), pp. 185 - 200. https://doi.org/10.1111/j.1467-9566.2008.01126.x
Women and prostate cancer support groups: The gender connect?
Bottorff, Joan Lorraine, Oliffe, John L., Halpin, Michael, Phillips, Melanie, McLean, Graham and Mroz, Lawrence. (2008). Women and prostate cancer support groups: The gender connect? Social Science and Medicineed version. 66(5), pp. 1217 - 1227. https://doi.org/10.1016/j.socscimed.2007.11.018
Analyzing participant produced photographs from an ethnographic study of fatherhood and smoking
Oliffe, J. L., Bottorff, Joan Lorraine, Kelly, Michelle and Halpin, M.. (2008). Analyzing participant produced photographs from an ethnographic study of fatherhood and smoking. Research in Nursing and Health. 31(5), pp. 529 - 539. https://doi.org/10.1002/nur.20269
Susceptibility to smoking among white and Chinese nonsmoking adolescents in Canada
Chen, Wei-Ying, Bottorff, Joan Lorraine, Johnson, Jerry, Saewyc, Elizabeth M. and Zumbo, Bruno D.. (2008). Susceptibility to smoking among white and Chinese nonsmoking adolescents in Canada. Public Health Nursing. 25(1), pp. 18 - 27. https://doi.org/10.1111/j.1525-1446.2008.00676.x
Treatment decision making among chinese women with DCiS
Wong, Sabrina T., Chen, Wei-Ying, Bottorff, Joan Lorraine and Hislop, T. Gregory. (2008). Treatment decision making among chinese women with DCiS. Journal of Psychosocial Oncology. 26(4), pp. 53 - 73. https://doi.org/10.1080/07347330802359594
Beyond the barriers: Marking the place for marijuana use at a Canadian high school
Johnson, Joy L., Moffat, Barbara, Bottorff, Joan Lorraine, Shoveller, Jean, Fischer, Benedikt and Haines, Rebecca J.. (2008). Beyond the barriers: Marking the place for marijuana use at a Canadian high school. Journal of Youth Studies. 11(1), pp. 47 - 64. https://doi.org/10.1080/13676260701728806
An ethnography of low-income mothers' safeguarding efforts
Olsen, L., Bottorff, Joan Lorraine, Raina, P. and Frankish, C. J.. (2008). An ethnography of low-income mothers' safeguarding efforts. Journal of Safety Research. 39(6), pp. 609 - 616. https://doi.org/10.1016/j.jsr.2008.10.006
Emergent cigarette smoking, correlations with depression and interest in cessation among aboriginal adolescents in British Columbia
Hutchinson, Peter J., Richardson, Chris G. and Bottorff, Joan Lorraine. (2008). Emergent cigarette smoking, correlations with depression and interest in cessation among aboriginal adolescents in British Columbia. Canadian Journal of Public Health. 99(5), pp. 418 - 422.
Canada and India: An innovative partnership to advance oncology nursing research
Loiselle, Carmen G., Sitaram, Brindha, Hack, Thomas F., Bottorff, Joan Lorraine and Degner, Lesley F.. (2008). Canada and India: An innovative partnership to advance oncology nursing research. Oncology Nursing Forum. 35(4), pp. 583 - 587. https://doi.org/10.1188/08.ONF.583-587
How prostate cancer support groups do and do not survive: British Columbian perspectives
Oliffe, John L., Halpin, Michael, Bottorff, Joan Lorraine, Hislop, T. Gregory, McKenzie, Michael M. and Mroz, Lawrence. (2008). How prostate cancer support groups do and do not survive: British Columbian perspectives. American Journal of Men's Health. 2(2), pp. 143 - 155. https://doi.org/10.1177/1557988307304147
Engagement with genetic discrimination: Concerns and experiences in the context of Huntington disease
Bombard, Yvonne, Penziner, Elizabeth, Suchowersky, Oksana, Guttman, Mark, Paulsen, Jane S., Bottorff, Joan Lorraine and Hayden, Michael R.. (2008). Engagement with genetic discrimination: Concerns and experiences in the context of Huntington disease. European Journal of Human Genetics. 16(3), pp. 279 - 289. https://doi.org/10.1038/sj.ejhg.5201937