From Social Exclusion to Supported Inclusion: Adults with Intellectual Disability Discuss Their Lived Experiences of a Structured Social Group

Journal article


Wilson, Nathan J., Jaques, Hayden, Johnson, Amanda and Brotherton, Michelle. (2016). From Social Exclusion to Supported Inclusion: Adults with Intellectual Disability Discuss Their Lived Experiences of a Structured Social Group. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12275
AuthorsWilson, Nathan J., Jaques, Hayden, Johnson, Amanda and Brotherton, Michelle
Abstract

Background People with intellectual disability often have few friends and experience social exclusion. Recognising this gap, supported social groups with the aim of inclusion and interdependence were created by a supported employment provider. Methods Interviews were undertaken with 10 adults with intellectual disability exploring their lived experiences of a supported social group. Data were analysed using descriptive phenomenology. Results Two themes emerged (i) supported engagement fosters wellbeing, and (ii) developing social belonging and connectedness. Participants not only acknowledged the support that they needed to participate, but also that the social group had changed their lives in many ways. Conclusions Adults with intellectual disability want to socialise, have friends and be part of their community. For this to be achieved, they recognise the need to seek some form of support. With appropriate and targeted support, adults with intellectual disability can move from social exclusion towards supported inclusion and experience richer lives.

Keywordsfriends; intellectual disability; meaningfulactivities; relationships; social inclusion; targeted support
Year2016
JournalJournal of Applied Research in Intellectual Disabilities
PublisherJohn Wiley & Sons Ltd
ISSN1360-2322
Digital Object Identifier (DOI)https://doi.org/10.1111/jar.12275
Open accessOpen access
Page range1 - 12
Research GroupSchool of Nursing, Midwifery and Paramedicine
Publisher's version
Additional information

© 2016 The Authors Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License,which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Place of publicationUnited Kingdom
Permalink -

https://acuresearchbank.acu.edu.au/item/888x6/from-social-exclusion-to-supported-inclusion-adults-with-intellectual-disability-discuss-their-lived-experiences-of-a-structured-social-group

  • 195
    total views
  • 67
    total downloads
  • 12
    views this month
  • 2
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

The experience of palliative care among older Chinese people in nursing homes : A scoping review
He, Flora Xuhua, Geng, Xiaowei and Johnson, Amanda. (2021). The experience of palliative care among older Chinese people in nursing homes : A scoping review. International Journal of Nursing Studies. 117, p. Article 103878. https://doi.org/10.1016/j.ijnurstu.2021.103878
An instrument to assess the education needs of nursing assistants within a palliative approach in residential aged care facilities
Karacsony, Sara, Good, Anthony, Chang, Esther, Johnson, Amanda and Edenborough, Michel. (2019). An instrument to assess the education needs of nursing assistants within a palliative approach in residential aged care facilities. BMC Palliative Care. 18, pp. 1 - 15. https://doi.org/10.1186/s12904-019-0447-0
Generation of a function affect model for residents with advanced dementia
Chang, Esther, Edenborough, Michel, Nicholls, Daniel, Johnson, Amanda, Brownhill, Suzanne and Simard, Joyce. (2019). Generation of a function affect model for residents with advanced dementia. International Journal of Nursing Practice. 25(2), pp. 1 - 8. https://doi.org/10.1111/ijn.12718
Assessing nursing assistants’ competency in palliative care: An evaluation tool
Karacsony, Sara, Chang, Esther, Johnson, Amanda, Good, Anthony and Edenborough, Michel. (2018). Assessing nursing assistants’ competency in palliative care: An evaluation tool. Nurse Education in Practice. 33, pp. 70 - 76. https://doi.org/10.1016/j.nepr.2018.09.001
Focus on Feeding! Evaluation of a framework for maximizing mealtime in aged care facilities
Chang, Esther, Brownhill, Suzanne, Bidewell, John, Johnson, Amanda and Ratnayake, Shyama. (2015). Focus on Feeding! Evaluation of a framework for maximizing mealtime in aged care facilities. International Journal of Nursing Practice (online version). 21(3), pp. 269 - 277. https://doi.org/10.1111/ijn.12260
Measuring nursing assistants' knowledge, skills and attitudes in a palliative approach: A literature review
Karacsony, Sara, Chang, Esther, Johnson, Amanda, Good, Anthony and Edenborough, Michel. (2015). Measuring nursing assistants' knowledge, skills and attitudes in a palliative approach: A literature review. Nurse Education Today. 35(12), pp. 1232 - 1239. https://doi.org/10.1016/j.nedt.2015.05.008
Advanced dementia
Chang, Ester, Johnson, Amanda and Hancock, Karen. (2014). Advanced dementia. In In Chang, Ester and Johnson, Amanda (Ed.). Chronic illness and disability : Principles for nursing practice pp. 294-313 Elsevier.
A decision model for community nurses providing bereavement care
Brownhill, Suzanne, Chang, Esther, Bidewell, John and Johnson, Amanda. (2014). A decision model for community nurses providing bereavement care. British journal of community nursing. 18(3), pp. 133 - 139. https://doi.org/10.12968/bjcn.2013.18.3.133
Bereavement care
Johnson, Amanda and Chang, Ester. (2014). Bereavement care. In In Johnson, Amanda (Ed.). Caring for older people in Australia : Principles for nursing practice pp. 575-598 John Wiley & Sons Australia, Ltd.
Simulation as a learning strategy: Supporting undergraduate nursing students with disabilities
Azzopardi, Toni, Johnson, Amanda, Phillips, Kirrilee, Dickson, Cath, Hengstberger-Sims, Cecily, Goldsmith, Mary and Allan, Trevor. (2014). Simulation as a learning strategy: Supporting undergraduate nursing students with disabilities. Journal of Clinical Nursing. 23(43924), pp. 402 - 409. https://doi.org/10.1111/jocn.12049
Spirituality and the nurse : Engaging in human suffering, hope and meaning
Rolley, John, Chang, Ester and Johnson, Amanda. (2014). Spirituality and the nurse : Engaging in human suffering, hope and meaning. In In Chang, Ester and Johnson, Amanda (Ed.). Chronic illness and disability : Principles for nursing practice pp. 60-80 Elsevier Australia.
Community nurses' perceptions of providing bereavement care
Redshaw, Sarah, Harrison, Kath, Johnson, Amanda and Chang, Esther. (2013). Community nurses' perceptions of providing bereavement care. International Journal of Nursing Practice. 19(3), pp. 344 - 350. https://doi.org/10.1111/ijn.12069
The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care
Cooper, Katherine L, Chang, Esther, Sheehan, Athena and Johnson, Amanda. (2013). The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care. Nurse Education Today. 33(9), pp. 1057 - 1061. https://doi.org/10.1016/j.nedt.2012.04.005
Journeys with dementia
Chang, Ester and Johnson, Amanda. (2013). Journeys with dementia. In In Chang, Ester and Johnson, Amanda (Ed.). Living with dementia : A practical guide for families and personal carers pp. 1-11 ACER Press.
Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care
Nicholls, Daniel, Chang, Esther, Johnson, Amanda and Edenborough, Michel. (2013). Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care. Aging and Mental Health. 17(5), pp. 571 - 578. https://doi.org/10.1080/13607863.2012.751581
Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care
Nicholls, Daniel, Chang, Esther, Johnson, Amanda and Edenborough, Michel. (2013). Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care. Aging and Mental Health. 17(5), pp. 571 - 578. https://doi.org/10.1080/13607863.2012.751581
The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care
Cooper, Katherine L., Chang, Esther, Sheehan, Athena and Johnson, Amanda. (2013). The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care. Nurse Education Today. 33(9), pp. 1057 - 1061. https://doi.org/10.1016/j.nedt.2012.04.005
Contemporary and innovative practice in palliative care
Chang, Ester and Johnson, Amanda. (2012). Contemporary and innovative practice in palliative care InTech. https://doi.org/10.5772/1270
Community palliative care nurse experiences and perceptions of follow-up bereavement support visits to carers
Chang, Esther, Bidewell, John W., Hancock, Karen M., Johnson, Amanda and Easterbrook, Sally. (2012). Community palliative care nurse experiences and perceptions of follow-up bereavement support visits to carers. International Journal of Nursing Practice. 18(4), pp. 332 - 339. https://doi.org/10.1111/j.1440-172X.2012.02046.x
Understanding organisational culture in the community health setting
Johnson, Amanda, Hatcher, Deborah and Dixon, Kathleen A.. (2012). Understanding organisational culture in the community health setting. In In Chang, Esther and Daly, John (Ed.). Transitions in nursing : Preparing for professional practice pp. 45-59 Elsevier Australia.
The efficacy of complementary therapies for agitation among older people in residential care facilities: A systematic review
Watson, Karen, Chang, Esther and Johnson, Amanda. (2012). The efficacy of complementary therapies for agitation among older people in residential care facilities: A systematic review. JBI Database of Systematic Reviews and Implementation Reports. 10(53), pp. 3414 - 3486.
Challenges in advanced dementia
Chang, Ester and Johnson, Amanda. (2012). Challenges in advanced dementia. In In Chang, Esther (Ed.). Contemporary and innovative practice in palliative care pp. 151-164 InTech. https://doi.org/10.5772/31294
Caring for families in the palliative care setting
Johnson, Amanda. (2012). Caring for families in the palliative care setting. In In O'Connor, Margaret, Lee, Susan and Aranda, Sanchia (Ed.). Palliative care nursing : A guide to practice pp. 257-269 Ausmed Education Pty Ltd.
Insights from clinical experts : 6.20: Palliative care nursing
Johnson, Amanda. (2011). Insights from clinical experts : 6.20: Palliative care nursing. In In Levett-Jones, Tracy and Bourgeois, Sharon (Ed.). The Clinical Placement : An essential guide for nursing students pp. 215-218 Churchill Livingstone.
Articulating Course Inherent Requirements: Risk and Response at the University of Western Sydney
Allan, Trevor, Johnson, Amanda, Azzopardi, Kirrilee, Azzopardi, Tony, Dickson, Cathy, Goldsmith, Mary and Hengstberger-Sims, Cecily. (2011). Articulating Course Inherent Requirements: Risk and Response at the University of Western Sydney. In C. Jenkin (Ed.). New Zealand: Equity Practitioners in Higher Education Australasia.