Journeys with dementia

Book chapter


Chang, Ester and Johnson, Amanda. (2013). Journeys with dementia. In In Chang, Ester and Johnson, Amanda (Ed.). Living with dementia : A practical guide for families and personal carers pp. 1-11 ACER Press.
AuthorsChang, Ester and Johnson, Amanda
EditorsChang, Ester and Johnson, Amanda
Abstract

[Extract] This chapter attempts to increase the awareness of the many challenges a person living with and dying with dementia presents to family and professional carers. It is important to understand the whole persosn's response to their illness in the context of their own life history. Better understanding of dementia enables all involved to move beyond the negative perceptions held of dementia to having hope in a person developing a meaningful life within the limitations of the disease.

Page range1-11
Year2013
Book titleLiving with dementia : A practical guide for families and personal carers
PublisherACER Press
Place of publicationCamberwell, VIC
ISBN9781742860442
Research GroupSchool of Nursing, Midwifery and Paramedicine
Output statusPublished
Publication dates
Print2013
Permalink -

https://acuresearchbank.acu.edu.au/item/8q3q0/journeys-with-dementia

  • 63
    total views
  • 0
    total downloads
  • 2
    views this month
  • 0
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

The experience of palliative care among older Chinese people in nursing homes : A scoping review
He, Flora Xuhua, Geng, Xiaowei and Johnson, Amanda. (2021). The experience of palliative care among older Chinese people in nursing homes : A scoping review. International Journal of Nursing Studies. 117, p. Article 103878. https://doi.org/10.1016/j.ijnurstu.2021.103878
An instrument to assess the education needs of nursing assistants within a palliative approach in residential aged care facilities
Karacsony, Sara, Good, Anthony, Chang, Esther, Johnson, Amanda and Edenborough, Michel. (2019). An instrument to assess the education needs of nursing assistants within a palliative approach in residential aged care facilities. BMC Palliative Care. 18, pp. 1 - 15. https://doi.org/10.1186/s12904-019-0447-0
Generation of a function affect model for residents with advanced dementia
Chang, Esther, Edenborough, Michel, Nicholls, Daniel, Johnson, Amanda, Brownhill, Suzanne and Simard, Joyce. (2019). Generation of a function affect model for residents with advanced dementia. International Journal of Nursing Practice. 25(2), pp. 1 - 8. https://doi.org/10.1111/ijn.12718
Assessing nursing assistants’ competency in palliative care: An evaluation tool
Karacsony, Sara, Chang, Esther, Johnson, Amanda, Good, Anthony and Edenborough, Michel. (2018). Assessing nursing assistants’ competency in palliative care: An evaluation tool. Nurse Education in Practice. 33, pp. 70 - 76. https://doi.org/10.1016/j.nepr.2018.09.001
From Social Exclusion to Supported Inclusion: Adults with Intellectual Disability Discuss Their Lived Experiences of a Sructured Social Group
Wilson, Nathan J., Jaques, Hayden, Johnson, Amanda and Brotherton, Michelle. (2016). From Social Exclusion to Supported Inclusion: Adults with Intellectual Disability Discuss Their Lived Experiences of a Sructured Social Group. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12275
Focus on Feeding! Evaluation of a framework for maximizing mealtime in aged care facilities
Chang, Esther, Brownhill, Suzanne, Bidewell, John, Johnson, Amanda and Ratnayake, Shyama. (2015). Focus on Feeding! Evaluation of a framework for maximizing mealtime in aged care facilities. International Journal of Nursing Practice (online version). 21(3), pp. 269 - 277. https://doi.org/10.1111/ijn.12260
Measuring nursing assistants' knowledge, skills and attitudes in a palliative approach: A literature review
Karacsony, Sara, Chang, Esther, Johnson, Amanda, Good, Anthony and Edenborough, Michel. (2015). Measuring nursing assistants' knowledge, skills and attitudes in a palliative approach: A literature review. Nurse Education Today. 35(12), pp. 1232 - 1239. https://doi.org/10.1016/j.nedt.2015.05.008
Advanced dementia
Chang, Ester, Johnson, Amanda and Hancock, Karen. (2014). Advanced dementia. In In Chang, Ester and Johnson, Amanda (Ed.). Chronic illness and disability : Principles for nursing practice pp. 294-313 Elsevier.
A decision model for community nurses providing bereavement care
Brownhill, Suzanne, Chang, Esther, Bidewell, John and Johnson, Amanda. (2014). A decision model for community nurses providing bereavement care. British journal of community nursing. 18(3), pp. 133 - 139. https://doi.org/10.12968/bjcn.2013.18.3.133
Bereavement care
Johnson, Amanda and Chang, Ester. (2014). Bereavement care. In In Johnson, Amanda (Ed.). Caring for older people in Australia : Principles for nursing practice pp. 575-598 John Wiley & Sons Australia, Ltd.
Simulation as a learning strategy: Supporting undergraduate nursing students with disabilities
Azzopardi, Toni, Johnson, Amanda, Phillips, Kirrilee, Dickson, Cath, Hengstberger-Sims, Cecily, Goldsmith, Mary and Allan, Trevor. (2014). Simulation as a learning strategy: Supporting undergraduate nursing students with disabilities. Journal of Clinical Nursing. 23(43924), pp. 402 - 409. https://doi.org/10.1111/jocn.12049
Spirituality and the nurse : Engaging in human suffering, hope and meaning
Rolley, John, Chang, Ester and Johnson, Amanda. (2014). Spirituality and the nurse : Engaging in human suffering, hope and meaning. In In Chang, Ester and Johnson, Amanda (Ed.). Chronic illness and disability : Principles for nursing practice pp. 60-80 Elsevier Australia.
Community nurses' perceptions of providing bereavement care
Redshaw, Sarah, Harrison, Kath, Johnson, Amanda and Chang, Esther. (2013). Community nurses' perceptions of providing bereavement care. International Journal of Nursing Practice. 19(3), pp. 344 - 350. https://doi.org/10.1111/ijn.12069
The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care
Cooper, Katherine L, Chang, Esther, Sheehan, Athena and Johnson, Amanda. (2013). The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care. Nurse Education Today. 33(9), pp. 1057 - 1061. https://doi.org/10.1016/j.nedt.2012.04.005
Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care
Nicholls, Daniel, Chang, Esther, Johnson, Amanda and Edenborough, Michel. (2013). Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care. Aging and Mental Health. 17(5), pp. 571 - 578. https://doi.org/10.1080/13607863.2012.751581
Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care
Nicholls, Daniel, Chang, Esther, Johnson, Amanda and Edenborough, Michel. (2013). Touch, the essence of caring for people with end-stage dementia : A mental health perspective in Namaste Care. Aging and Mental Health. 17(5), pp. 571 - 578. https://doi.org/10.1080/13607863.2012.751581
The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care
Cooper, Katherine L., Chang, Esther, Sheehan, Athena and Johnson, Amanda. (2013). The impact of spiritual care education upon preparing undergraduate nursing students to provide spiritual care. Nurse Education Today. 33(9), pp. 1057 - 1061. https://doi.org/10.1016/j.nedt.2012.04.005
Contemporary and innovative practice in palliative care
Chang, Ester and Johnson, Amanda. (2012). Contemporary and innovative practice in palliative care InTech. https://doi.org/10.5772/1270
Community palliative care nurse experiences and perceptions of follow-up bereavement support visits to carers
Chang, Esther, Bidewell, John W., Hancock, Karen M., Johnson, Amanda and Easterbrook, Sally. (2012). Community palliative care nurse experiences and perceptions of follow-up bereavement support visits to carers. International Journal of Nursing Practice. 18(4), pp. 332 - 339. https://doi.org/10.1111/j.1440-172X.2012.02046.x
Understanding organisational culture in the community health setting
Johnson, Amanda, Hatcher, Deborah and Dixon, Kathleen A.. (2012). Understanding organisational culture in the community health setting. In In Chang, Esther and Daly, John (Ed.). Transitions in nursing : Preparing for professional practice pp. 45-59 Elsevier Australia.
The efficacy of complementary therapies for agitation among older people in residential care facilities: A systematic review
Watson, Karen, Chang, Esther and Johnson, Amanda. (2012). The efficacy of complementary therapies for agitation among older people in residential care facilities: A systematic review. JBI Database of Systematic Reviews and Implementation Reports. 10(53), pp. 3414 - 3486.
Challenges in advanced dementia
Chang, Ester and Johnson, Amanda. (2012). Challenges in advanced dementia. In In Chang, Esther (Ed.). Contemporary and innovative practice in palliative care pp. 151-164 InTech. https://doi.org/10.5772/31294
Caring for families in the palliative care setting
Johnson, Amanda. (2012). Caring for families in the palliative care setting. In In O'Connor, Margaret, Lee, Susan and Aranda, Sanchia (Ed.). Palliative care nursing : A guide to practice pp. 257-269 Ausmed Education Pty Ltd.
Insights from clinical experts : 6.20: Palliative care nursing
Johnson, Amanda. (2011). Insights from clinical experts : 6.20: Palliative care nursing. In In Levett-Jones, Tracy and Bourgeois, Sharon (Ed.). The Clinical Placement : An essential guide for nursing students pp. 215-218 Churchill Livingstone.
Articulating Course Inherent Requirements: Risk and Response at the University of Western Sydney
Allan, Trevor, Johnson, Amanda, Azzopardi, Kirrilee, Azzopardi, Tony, Dickson, Cathy, Goldsmith, Mary and Hengstberger-Sims, Cecily. (2011). Articulating Course Inherent Requirements: Risk and Response at the University of Western Sydney. In C. Jenkin (Ed.). New Zealand: Equity Practitioners in Higher Education Australasia.