Using co-design to develop an intervention to improve communication about the heart failure trajectory and end-of-life care

Journal article

Hjelmfors, Lisa, Stromberg, Anna, Friedrichsen, Maria J., Sandgren, Anna, Martensson, Jan and Jaarsma, Tiny. (2018). Using co-design to develop an intervention to improve communication about the heart failure trajectory and end-of-life care. BMC Palliative Care. 17(1), pp. 1 - 10. https://doi.org/10.1186/s12904-018-0340-2
AuthorsHjelmfors, Lisa, Stromberg, Anna, Friedrichsen, Maria J., Sandgren, Anna, Martensson, Jan and Jaarsma, Tiny
Abstract

Background
The aim of this paper was to describe the development of an intervention that is developed to improve communication about the heart failure (HF) trajectory and end-of-life care. We also present data that provides a first insight in specific areas of feasibility of the intervention.
Methods
Co-design was used and patients, family members and health care professionals were constructive participants in the design process of the intervention. Feasibility of the intervention was tested in two areas; acceptability and limited efficacy.
Results
Two communication tools were designed and evaluated; 1) a Question Prompt List (QPL) for patients and family members and 2) a communication course for professionals which was web -based with one face-to-face training day with simulation. Data on feasibility was collected with questionnaires that were developed for this study, from the 13 participants who completed the course (all nurses). They reported improved knowledge, confidence and skills to discuss the HF trajectory and end-of-life care. The QPL was evaluated to be a useful tool in communication with patients and family members.
Conclusions
In a co-design process, future users identified the need for a QPL and a communication course. These communication tools can be used as a dual intervention to improve communication about the HF trajectory and end-of-life care. The QPL can help patients and families to ask questions about the HF trajectory and end-of-life care. The communication course can prepare the professionals to be knowledgeable, confident and skilled to discuss the questions in the QPL. Before the tools are ready for implementation in clinical practice, further studies testing the feasibility of the intervention are needed, including also patients and their families.

KeywordsHeart failure; Illness trajectory; End-of-life care; Communication; Co-design; User perspective
Year2018
JournalBMC Palliative Care
Journal citation17 (1), pp. 1 - 10
PublisherBioMed Central
ISSN1472-684X
Digital Object Identifier (DOI)https://doi.org/10.1186/s12904-018-0340-2
Scopus EID2-s2.0-85048548740
Open accessOpen access
Page range1 - 10
Research GroupMary MacKillop Institute for Health Research
Publisher's version
License
Place of publicationUnited Kingdom
EditorsM. Zalm
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Tromp, Jasper, Khan, Mohsin A.F., Klip, IJsbrand T., Meyer, Sven, de Boer, Rudolf A., Jaarsma, Tiny, Hillege, Hans L., van Veldhuisen, Dirk J., van der Meer, Peter and Voors, Adriaan A.. (2017). Biomarker profiles in heart failure patients with preserved and reduced ejection fraction. Journal of the American Heart Association. 6(4), pp. 1 - 25. https://doi.org/10.1161/JAHA.116.003989
Serum potassium levels and outcome in acute heart failure (data from the PROTECT and COACH trials)
Tromp, Jasper, ter Maaten, Jozine M., Damman, Kevin, O'Connor, Christopher M., Metra, Marco, Dittrich, Howard C., Ponikowski, Piotr P., Teerlink, John R., Cotter, Gad, Davison, Beth A., Cleland, John G.F., Givertz, Michael M., Bloomfield, Daniel M., van der Wal, Martje H. L., Jaarsma, Tiny, van Veldhuisen, Dirk J., Hillege, Hans L., Voors, Adriaan A. and van der Meer, Peter. (2017). Serum potassium levels and outcome in acute heart failure (data from the PROTECT and COACH trials). American Journal of Cardiology. 119(2), pp. 290 - 296. https://doi.org/10.1016/j.amjcard.2016.09.038
Reporting on self-care in research studies: Guidance to improve knowledge building
Jaarsma, Tiny, Riegel, Barbara and Stromberg, Anna. (2017). Reporting on self-care in research studies: Guidance to improve knowledge building. Journal of Cardiovascular Nursing. 32(4), pp. 315 - 316. https://doi.org/10.1097/JCN.0000000000000405
Low circulating microRNA levels in heart failure patients are associated with atherosclerotic disease and cardiovascular-related rehospitalizations
Vegter, Eline L., Ovchinnikova, Ekaterina S., van Veldhuisen, Dirk J., Jaarsma, Tiny, Berezikov, Eugene, van der Meer, Peter and Voors, Adriaan A.. (2017). Low circulating microRNA levels in heart failure patients are associated with atherosclerotic disease and cardiovascular-related rehospitalizations. Clinical Research in Cardiology. 106(8), pp. 598 - 609. https://doi.org/10.1007/s00392-017-1096-z
Patterns of self-care in adults with heart failure and their associations with sociodemographic and clinical characteristics, quality of life, and hospitalizations: a cluster analysis
Vellone, Ercole, Fida, Roberta, Ghezzi, Valerio, D'Agostino, Fabio, Biagioli, Valentina, Paturzo, Marco, Stromberg, Anna, Alvaro, Rosaria and Jaarsma, Tiny. (2017). Patterns of self-care in adults with heart failure and their associations with sociodemographic and clinical characteristics, quality of life, and hospitalizations: a cluster analysis. Journal of Cardiovascular Nursing. 32(2), pp. 180 - 189. https://doi.org/10.1097/JCN.0000000000000325
Attitudes of nurses towards family involvement in the care for patients with cardiovascular diseases
Luttik, Marie-Louise, Goossens, E., Agren, Susanna, Jaarsma, Tiny, Martensson, Jan, Thompson, David, Moons, Philip and Stromberg, Anna. (2017). Attitudes of nurses towards family involvement in the care for patients with cardiovascular diseases. European Journal of Cardiovascular Nursing. 16(4), pp. 299 - 308. https://doi.org/10.1177/1474515116663143
Development, usability, and efficacy of a serious game to help patients learn about pain management after surgery: an evaluation study
Ingadottir, Brynja, Blondal, Katrin, Thue, David, Zoega, Sigridur, Thylen, Ingela and Jaarsma, Tiny. (2017). Development, usability, and efficacy of a serious game to help patients learn about pain management after surgery: an evaluation study. JMIR Serious Games (online). 5(2), pp. 1 - 15. https://doi.org/10.2196/games.6894.
Heart failure with reduced ejection fraction
Bloom, Michelle W., Greenberg, Barry H., Jaarsma, Tiny, Januzzi, J., Lam, Carolyn S.P., Maggioni, Aldo P., Trochu, Jean N. and Butler, Javed. (2017). Heart failure with reduced ejection fraction. Nature Reviews Disease Primers. 3(17058), pp. 1 - 19. https://doi.org/10.1038/nrdp.2017.58
Aspects of family caregiving as addressed in planned discussions between nurses, patients with chronic diseases and family caregivers: a qualitative content analysis
Hagedoorn, E. I., Paans, W., Jaarsma, Tiny, Keers, J. C., Van Der Schans, C. P. and Luttik, Marie-Louise. (2017). Aspects of family caregiving as addressed in planned discussions between nurses, patients with chronic diseases and family caregivers: a qualitative content analysis. BMC Nursing. 16(1), pp. 1 - 10. https://doi.org/10.1186/s12912-017-0231-5
Exergaming through the eyes of patients with heart failure: a qualitative content analysis study.
Klompstra, Leonie V., Jaarsma, Tiny, Martensson, Jan and Stromberg, Anna. (2017). Exergaming through the eyes of patients with heart failure: a qualitative content analysis study. Games for Health: research, development, and clinical applications (print). 6(3), pp. 152 - 158. https://doi.org/10.1089/g4h.2016.0087
Representativeness of participants in heart failure e-health trials: a report from the E-Vita HF study
Wagenaar, Kim P., Hakim, Niaz, Broekhuizen, Berna D. L., Jaarsma, Tiny, Rutten, Frans H. and Hoes, Arno W.. (2017). Representativeness of participants in heart failure e-health trials: a report from the E-Vita HF study. Journal of Cardiac Failure. 23(1), pp. 88 - 89. https://doi.org/10.1016/j.cardfail.2016.08.006
The efficacy of a supervised exercise training programme on readmission rates in patients with myocardial ischemia: Results from a randomised controlled trial
Santaularia, Nuria, Caminal, Josefina, Arnau, Anna, Perramon, Montserrat, Montesinos, Jesus, Abenoza-Guardiola, Montserrat and Jaarsma, Tiny. (2017). The efficacy of a supervised exercise training programme on readmission rates in patients with myocardial ischemia: Results from a randomised controlled trial. European Journal of Cardiovascular Nursing. 16(3), pp. 201 - 212. https://doi.org/10.1177/1474515116648801
Factors related to self-care in heart failure patients according to the middle-range theory of self-care of chronic illness: a literature update
Jaarsma, Tiny, Cameron, Jan, Riegel, Barbara and Stromberg, Anna. (2017). Factors related to self-care in heart failure patients according to the middle-range theory of self-care of chronic illness: a literature update. Current Heart Failure Reports (Print). 14(2), pp. 71 - 77. https://doi.org/10.1007/s11897-017-0324-1
EuroHeartCare 2017
Jaarsma, Tiny. (2017). EuroHeartCare 2017. European Heart Journal. 38(30), pp. 2321 - 2322. https://doi.org/10.1093/eurheartj/ehx398
Interpretability of the European heart failure self-care behaviour scale
Wagenaar, Kim P., Broekhuizen, Berna D. L., Rutten, Frans H. L., Stromberg, Anna, van Stel, Henk F., Hoes, Arno W. and Jaarsma, Tiny. (2017). Interpretability of the European heart failure self-care behaviour scale. Patient Preference and Adherence. 11, pp. 1841 - 1849. https://doi.org/10.2147/PPA.S144915
Psychometric validation of the heart failure caregiver questionnaire (HF-CQ)
Stromberg, Anna, Bonner, Nicola, Grant, Laura, Bennett, Bryan, Chung, Misook, Jaarsma, Tiny, Luttik, Marie-Louise, Lewis, E. F., Calado, Frederico and Deschaseaux, Celine. (2017). Psychometric validation of the heart failure caregiver questionnaire (HF-CQ). Patient. 10(5), pp. 579 - 592. https://doi.org/10.1007/s40271-017-0228-x
Long-term effects of a dyadic psycho-educational intervention on caregiver burden and morbidity in partners of patients with heart failure: A randomized controlled trial
Liljeroos, Maria, Ågren, Susanna, Jaarsma, Tiny, Årestedt, Kristofer and Strömberg, Anna. (2017). Long-term effects of a dyadic psycho-educational intervention on caregiver burden and morbidity in partners of patients with heart failure: A randomized controlled trial. Quality of Life Research. 26(2), pp. 367 - 379. https://doi.org/10.1007/s11136-016-1400-9
Heart failure patients' future expectations and their association with disease severity, quality of life, depressive symptoms and clinical outcomes
van der Wal, Martje H. L., Stromberg, Anna, van Veldhuisen, Dirk J. and Jaarsma, Tiny. (2016). Heart failure patients' future expectations and their association with disease severity, quality of life, depressive symptoms and clinical outcomes. International Journal of Clinical Practice. 70(6), pp. 469 - 476. https://doi.org/10.1111/ijcp.12802
High-grade carotid artery stenosis: A forgotten area in cardiovascular risk management
Good, Elin, Länne, Toste, Wilhelm, Elisabeth, Perk, Joep, Jaarsma, Tiny and De Muinck, Ebo. (2016). High-grade carotid artery stenosis: A forgotten area in cardiovascular risk management. European Journal of Preventive Cardiology. 23(13), pp. 1453 - 1460. https://doi.org/10.1177/2047487316632629
Guía ESC 2016 sobre el diagnóstico y tratamiento de la insuficiencia cardiaca aguda y crónica
Ponikowski, Piotr, Voors, Adriaan A., Anker, Stefan D., Bueno, Héctor, Cleland, John G. F., Coats, Andrew J. S., Falk, Volkmar, González-Juanatey, José Ramón, Harjola, Veli-Pekka, Jankowska, Ewa A., Jessup, Mariell, Linde, Cecilia, Nihoyannopoulos, Petros, Parissis, John T., Pieske, Burkert, Riley, Jillian P., Rosano, Giuseppe, Ruilope, Luis Miguel, Ruschitzka, Frank, ... Zamorano, José Luis. (2016). Guía ESC 2016 sobre el diagnóstico y tratamiento de la insuficiencia cardiaca aguda y crónica. Revista Espanola de Cardiologia. 69(12), pp. 1167.e1 - 1167.e85. https://doi.org/10.1016/j.recesp.2016.10.014
Fluid restriction in patients with heart failure: How should we think?
Johansson, Peter, van der Wal, Martje H. L., Stromberg, Anna, Waldreus, Nana and Jaarsma, Tiny. (2016). Fluid restriction in patients with heart failure: How should we think? European Journal of Cardiovascular Nursing. 15(5), pp. 301 - 304. https://doi.org/10.1177/1474515116650346
Vragen naar de onbekende weg (Sexual history-taking in medical practice: the elephant in the room?})
Leusink, Peter, Van der Waart, Thea H.A.M., Segeren, Christine M. and Jaarsma, Tiny. (2016). Vragen naar de onbekende weg (Sexual history-taking in medical practice: the elephant in the room?}). Nederlands Tijdschrift voor Geneeskunde. 160(17), pp. 1 - 4.
The effect of guided web-based cognitive behavioral therapy on patients with depressive symptoms and heart failure: A pilot randomized controlled trial
Lundgren, Johan Gustav, Dahlstrom, Orjan, Andersson, Gerhard, Jaarsma, Tiny, Kohler, Anita Karner and Johansson, Peter. (2016). The effect of guided web-based cognitive behavioral therapy on patients with depressive symptoms and heart failure: A pilot randomized controlled trial. Journal of Medical Internet Research. 18(8), pp. 1 - 13. https://doi.org/10.2196/jmir.5556
Telerehabilitation in heart failure patients: The evidence and the pitfalls
Piotrowicz, Ewa, Piepoli, Massimo F., Jaarsma, Tiny, Lambrinou, Ekaterini, Coats, Andrew J. S., Schmid, Jean-Paul, Corra, Ugo, Agostoni, Piergiuseppe, Dickstein, Kenneth, Seferovic, Petar M., Adamopoulos, Stamatis and Ponikowski, Piotr P.. (2016). Telerehabilitation in heart failure patients: The evidence and the pitfalls. International Journal of Cardiology. 220, pp. 408 - 413. https://doi.org/10.1016/j.ijcard.2016.06.277
The value of telemonitoring and ICT-guided disease management in heart failure: Results from the IN TOUCH study
Kraai, I. H., de Vries, Arjen E., Vermeulen, Karin, van Deursen, Vincent M., van der Wal, Martje H. L., de Jong, Richard M., van Dijk, Rene, Jaarsma, Trijntje, Hillege, Hans L. and Lesman, Ivonne. (2016). The value of telemonitoring and ICT-guided disease management in heart failure: Results from the IN TOUCH study. International Journal of Medical Informatics. 85(1), pp. 53 - 60. https://doi.org/10.1016/j.ijmedinf.2015.10.001
Sexual counselling for sexual problems in patients with cardiovascular disease
Byrne, Molly, Doherty, Sally, Fridlund, Bengt G. A., Mårtensson, Jan, Steinke, Elaine E., Jaarsma, Tiny and Devane, Declan. (2016). Sexual counselling for sexual problems in patients with cardiovascular disease. Cochrane Database of Systematic Reviews. 2014(2), pp. 1 - 39. https://doi.org/10.1002/14651858.CD010988.pub2
2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure: The Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Gailure of the European Society of Cardiology (ESC)
Ponikowski, Piotr, Voors, Adriaan A., Anker, Stefan D., Bueno, Héctor, Cleland, John G. F., Coats, Andrew J. S., Falk, Volkmar, González-Juanatey, José Ramón, Harjola, Veli-Pekka, Jankowska, Ewa A., Jessup, Mariell, Linde, Cecilia, Nihoyannopoulos, Petros, Parissis, John T., Pieske, Burkert, Riley, Jillian P., Rosano, Giuseppe M. C., Ruilope, Luis Miguel, Ruschitzka, Frank, ... Zamorano, Jose Luis. (2016). 2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure: The Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Gailure of the European Society of Cardiology (ESC). European Journal of Heart Failure. 18(8), pp. 891 - 975. https://doi.org/10.1002/ejhf.592
Self-management interventions: Proposal and validation of a new operational definition
Jonkman, Nini H., Schuurmans, Marieke J., Jaarsma, Tiny, Shortridge-Baggett, Lillie M., Hoes, Arno W. and Trappenburg, Jaap C. A.. (2016). Self-management interventions: Proposal and validation of a new operational definition. Journal of Clinical Epidemiology. 80, pp. 34 - 42. https://doi.org/10.1016/j.jclinepi.2016.08.001
Patients with heart failure with preserved ejection fraction and low levels of natriuretic peptides
Meijers, Wouter C., Hoekstra, Tialda, Jaarsma, Trijntje, van Veldhuisen, Dirk J. and de Boer, Rudolf A.. (2016). Patients with heart failure with preserved ejection fraction and low levels of natriuretic peptides. Netherlands Heart Journal. 24(4), pp. 287 - 295. https://doi.org/10.1007/s12471-016-0816-8
Perceptions about traditional and novel methods to learn about postoperative pain management: A qualitative study
Ingadottir, Brynja, Blondal, Katrin, Jaarsma, Tiny and Thylen, Ingela. (2016). Perceptions about traditional and novel methods to learn about postoperative pain management: A qualitative study. Journal of Advanced Nursing. 72(11), pp. 2672 - 2683. https://doi.org/10.1111/jan.13021
Constipation in specialized palliative care: Factors related to constipation when applying different definitions
Erichsen, Eva, Milberg, Anna, Jaarsma, Tiny and Friedrichsen, Maria J.. (2016). Constipation in specialized palliative care: Factors related to constipation when applying different definitions. Supportive Care in Cancer. https://doi.org/10.1007/s00520-015-2831-5
Sexual counselling for patients with cardiovascular disease: Protocol for a pilot study of the CHARMS sexual counselling intervention
Murphy, Patrick J., McSharry, Jenny, Casey, Dympna, Doherty, Sally, Gillespie, Paddy, Jaarsma, Tiny, Murphy, Andrew W., Newell, John, O'Donnell, Martin, Steinke, Elaine E., Toomey, Elaine and Byrne, Molly. (2016). Sexual counselling for patients with cardiovascular disease: Protocol for a pilot study of the CHARMS sexual counselling intervention. BMJ Open. 6(6), pp. 1 - 10. https://doi.org/10.1136/bmjopen-2016-011219
Sexual counselling for sexual problems in patients with cardiovascular disease
Byrne, Molly, Doherty, Sally, Fridlund, Bengt G. A., Mårtensson, Jan, Steinke, Elaine E., Jaarsma, Tiny and Devane, Declan. (2016). Sexual counselling for sexual problems in patients with cardiovascular disease. Cochrane Database of Systematic Reviews. 2016(2), pp. 1 - 39. https://doi.org/10.1002/14651858.CD010988.pub2
Long-Term Evaluation of the Ambulatory Geriatric Assessment: A Frailty Intervention Trial (AGe-FIT): Clinical Outcomes and Total Costs After 36 Months
Ekdahl, Anne W., Alwin, Jenny, Eckerblad, Jeanette, Husberg, Magnus, Jaarsma, Tiny, Mazya, Amelie Lindh, Milberg, Anna, Krevers, Barbro, Unosson, Mitra, Wiklund, Rolf and Carlsson, Per. (2016). Long-Term Evaluation of the Ambulatory Geriatric Assessment: A Frailty Intervention Trial (AGe-FIT): Clinical Outcomes and Total Costs After 36 Months. Journal of the American Medical Directors Association. 17(3), pp. 263 - 268. https://doi.org/10.1016/j.jamda.2015.12.008
Depressive symptoms, cardiac anxiety, and fear of body sensations in patients with non-cardiac chest pain, and their relation to healthcare-seeking behavior: A cross-sectional study
Mourad, Ghassan, Stromberg, Anna, Johansson, Peter and Jaarsma, Tiny. (2016). Depressive symptoms, cardiac anxiety, and fear of body sensations in patients with non-cardiac chest pain, and their relation to healthcare-seeking behavior: A cross-sectional study. Patient. https://doi.org/10.1007/s40271-015-0125-0
Changing needs of heart failure patients and their families during the illness trajectory: a challenge for health care
Luttik, Marie-Louise, Jaarsma, Trijntje and Stromberg, Anna. (2016). Changing needs of heart failure patients and their families during the illness trajectory: a challenge for health care. European Journal of Cardiovascular Nursing. 15(5), pp. 298 - 300. https://doi.org/10.1177/1474515116653536
Symptom trajectory and symptom burden in older people with multimorbidity, secondary outcome from the RCT AGe-FIT study
Eckerblad, Jeanette, Theander, Kersti, Ekdahl, Anne W. and Jaarsma, Tiny. (2016). Symptom trajectory and symptom burden in older people with multimorbidity, secondary outcome from the RCT AGe-FIT study. Journal of Advanced Nursing. 72(11), pp. 2773 - 2783. https://doi.org/10.1111/jan.13032
The Science Committee of the Council of Cardiovascular Nursing and Allied Professions: Moving forward
Kjellstrom, Barbro, Lee, Geraldine, Khatib, Rani, Mahrer-Imhof, Romy, Moons, Philip, Noureddine, Samar, O'Donnell, Sharon, Stromberg, Anna, Svavarsdottir, Margret H. and Jaarsma, Tiny. (2016). The Science Committee of the Council of Cardiovascular Nursing and Allied Professions: Moving forward. European Journal of Cardiovascular Nursing. 15(7), pp. 476 - 477. https://doi.org/10.1177/1474515116666643
What are effective program characteristics of self-management interventions in patientswith heart failure? An individual patient data meta-analysis
Jonkman, Nini H., Westland, Heleen, Groenwold, Rolf H. H., Agren, Susanna, Anguita, Manuel, Blue, Lynda, Bruggink-Andre de la Porte, Pieta W., DeWalt, Darren A., Hebert, Paul L., Heisler, Michele, Jaarsma, Tiny, Kempen, Gertrudis I. J. M., Leventhal, Marcia E., Lok, Dirk J. A., Martensson, Jan, Muniz, Javier, Otsu, Haruka, Peters-Klimm, Frank, Rich, Michael W., ... Hoes, Arno W.. (2016). What are effective program characteristics of self-management interventions in patientswith heart failure? An individual patient data meta-analysis. Journal of Cardiac Failure. 22(11), pp. 861 - 871. https://doi.org/10.1016/j.cardfail.2016.06.422
Guided Internet-delivered cognitive behavioural therapy in patients with non-cardiac chest pain - A pilot randomized controlled study
Mourad, Ghassan, Stromberg, Anna, Jonsbu, Egil, Gustafsson, Mikael, Johansson, Peter and Jaarsma, Tiny. (2016). Guided Internet-delivered cognitive behavioural therapy in patients with non-cardiac chest pain - A pilot randomized controlled study. Trials. 17(1), pp. 1 - 12. https://doi.org/10.1186/s13063-016-1491-1
Changes in thirst intensity during optimization of heart failure medical therapy by nurses at the outpatient clinic
Waldreus, Nana, Hahn, Robert G., Lyngå, Patrik, van der Wal, Martje H. L., Hägglund, Ewa and Jaarsma, Tiny. (2016). Changes in thirst intensity during optimization of heart failure medical therapy by nurses at the outpatient clinic. Journal of Cardiovascular Nursing. 31(5), pp. 17 - 24. https://doi.org/10.1097/JCN.0000000000000319
Sexual counseling in patients with heart failure: A silent phenomenon: Results from a convergent parallel mixed method study
Kolbe, Nina, Kugler, Christiane, Schnepp, Wilfried and Jaarsma, Tiny. (2016). Sexual counseling in patients with heart failure: A silent phenomenon: Results from a convergent parallel mixed method study. The Journal of Cardiovascular Nursing. 31(1), pp. 53 - 61. https://doi.org/10.1097/JCN.0000000000000215
Perception of impairments by patients with heart failure
Kraai, I. H., Vermeulen, Karin M., Hillege, Hans L. and Jaarsma, Trijntje. (2016). Perception of impairments by patients with heart failure. European Journal of Cardiovascular Nursing. 15(2), pp. 178 - 185. https://doi.org/10.1177/1474515115621194
The value of telemonitoring and ICT-guided disease management in heart failure: Results from the IN TOUCH study
Kraai, I. H., de Vries, Arjen E., Vermeulen, Karin, van Deursen, Vincent M., van der Wal, Martje H. L., de Jong, Richard M., van Dijk, Rene, Jaarsma, Tiny, Hillege, Hans L. and Lesman, Ivonne. (2016). The value of telemonitoring and ICT-guided disease management in heart failure: Results from the IN TOUCH study. International Journal of Medical Informatics. 85(1), pp. 53 - 60. https://doi.org/10.1016/j.ijmedinf.2015.10.001
Sexual counseling in patients with heart failure: A silent phenomenon: Results from a convergent parallel mixed method study
Kolbe, Nina, Kugler, Christiane, Schnepp, Wilfried and Jaarsma, Tiny. (2016). Sexual counseling in patients with heart failure: A silent phenomenon: Results from a convergent parallel mixed method study. Journal of Cardiovascular Nursing. 31(1), pp. 53 - 61. https://doi.org/10.1097/JCN.0000000000000215
How effective is an in-hospital heart failure self-care program in a Japanese setting? Lessons from a randomized controlled pilot study
Kato, Naoko P., Kinugawa, Koichiro, Sano, Miho, Kogure, Asuka, Sakuragi, Fumika, Kobukata, Kihoko, Ohtsu, Hiroshi, Wakita, Sanae, Jaarsma, Tiny and Kazuma, Keiko. (2016). How effective is an in-hospital heart failure self-care program in a Japanese setting? Lessons from a randomized controlled pilot study. Patient Preference and Adherence. 10, pp. 171 - 181. https://doi.org/10.2147/PPA.S100203
Challenges in personalised management of chronic diseases-heart failure as prominent example to advance the care process
Brunner-La, Hans Peter, Fleischhacker, Lutz, Golubnitschaja, Olga, Heemskerk, Frank, Helms, Thomas, Hoedemakers, Thom, Allianses, Sandra Huygen, Jaarsma, Tiny, Kinkorova, Judita, Ramaekers, Jan, Ruff, Peter, Schnur, Ivana, Vanoli, Emilio, Verdu, Jose and Zippel-Schultz, Bettina. (2016). Challenges in personalised management of chronic diseases-heart failure as prominent example to advance the care process. EPMA Journal. 7(1), pp. 1 - 9. https://doi.org/10.1186/s13167-016-0051-9
Continuous-time semi-Markov models in health economic decision making: An illustrative example in heart failure disease management
Cao, Qi, Buskens, Erik, Feenstra, Talitha, Jaarsma, Tiny, Hillege, Hans L. and Postmus, Douwe. (2016). Continuous-time semi-Markov models in health economic decision making: An illustrative example in heart failure disease management. Medical Decision Making. https://doi.org/10.1177/0272989X15593080
Sleep disordered breathing, hypoxia and inflammation : Associations with sickness behaviour in community dwelling elderly with and without cardiovascular disease
Johansson, Peter, Svensson, Erland, Alehagen, Urban, Dahlstrom, Ulf, Jaarsma, Trijntje and Brostrom, Anders. (2015). Sleep disordered breathing, hypoxia and inflammation : Associations with sickness behaviour in community dwelling elderly with and without cardiovascular disease. Sleep and Breathing: international journal of the science and practice of sleep medicine. 19(1), pp. 263 - 271. https://doi.org/10.1007/s11325-014-1006-9
Constipation in specialized palliative care : Prevalence, definition, and patient-perceived symptom distress
Erichsen, Eva, Milberg, Anna, Jaarsma, Tiny and Friedrichsen, Maria. (2015). Constipation in specialized palliative care : Prevalence, definition, and patient-perceived symptom distress. Journal of Palliative Medicine. 18(7), pp. 585 - 592. https://doi.org/10.1089/jpm.2014.0414
Effectiveness of an interactive platform, and the ESC/HFA heartfailurematters.org website in patients with heart failure: Design of the multicentre randomized e-Vita heart failure trial
Wagenaar, Kim P., Broekhuizen, Berna D.L., Dickstein, Kenneth, Jaarsma, Tiny, Hoes, Arno W. and Rutten, Frans H.. (2015). Effectiveness of an interactive platform, and the ESC/HFA heartfailurematters.org website in patients with heart failure: Design of the multicentre randomized e-Vita heart failure trial. European Journal of Heart Failure. 17(12), pp. 1310 - 1316. https://doi.org/10.1002/ejhf.413
ExtraHF survey: The first European survey on implementation of exercise training in heart failure patients
Piepoli, Massimo F., Binno, Simone, Corra, Ugo, Seferovic, Petar, Conraads, Viviane, Jaarsma, Tiny, Schmid, Jean-Paul, Filippatos, Gerasimos and Ponikowski, Piotr P.. (2015). ExtraHF survey: The first European survey on implementation of exercise training in heart failure patients. European Journal of Heart Failure. 17(6), pp. 631 - 638. https://doi.org/10.1002/ejhf.271
The course of sleep problems in patients with heart failure and associations to rehospitalizations
Johansson, Peter, Brostrom, Anders, Sanderman, Robbert and Jaarsma, Trijntje. (2015). The course of sleep problems in patients with heart failure and associations to rehospitalizations. Cardiovascular Nursing, The Journal of. 30(5), pp. 403 - 410. https://doi.org/10.1097/JCN.0000000000000176
Biomarkers and low risk in heart failure. Data from COACH and TRIUMPH
Meijers, Wouter C., de Boer, Rudolf A., van Veldhuisen, Dirk J., Jaarsma, Tiny, Hillege, Hans L., Maisel, Alan S., Di Somma, Salvatore, Voors, Adriaan A. and Peacock, W. Frank. (2015). Biomarkers and low risk in heart failure. Data from COACH and TRIUMPH. European Journal of Heart Failure. 17(12), pp. 1271 - 1282. https://doi.org/10.1002/ejhf.407
The challenge of multimorbidity in nurse education: An international perspective
Rushton, Claire A., Green, Julie, Jaarsma, Tiny, Walsh, Pauline, Stromberg, Anna and Kadam, Umesh T.. (2015). The challenge of multimorbidity in nurse education: An international perspective. Nurse Education Today. 35(1), pp. 288 - 292. https://doi.org/10.1016/j.nedt.2014.05.006
Physical activity in patients with heart failure: Barriers and motivations with special focus on sex differences
Klompstra, Leonie Verheijden, Jaarsma, Tiny and Stromberg, Anna. (2015). Physical activity in patients with heart failure: Barriers and motivations with special focus on sex differences. Patient Preference and Adherence. 9, pp. 1603 - 1610. https://doi.org/10.2147/PPA.S90942
Increasing exercise capacity and quality of life of patients with heart failure through Wii gaming: The rationale, design and methodology of the HF-Wii study; A multicentre randomized controlled trial
Jaarsma, Tiny, Klompstra, Leonie Verheijden, Gal, Tuvia Ben, Boyne, Josiane, Vellone, Ercole, Back, Maria, Dickstein, Kenneth, Fridlund, Bengt, Hoes, Arno W., Piepoli, Massimo F., Chiala, Oronzo, Martensson, Jan and Stromberg, Anna. (2015). Increasing exercise capacity and quality of life of patients with heart failure through Wii gaming: The rationale, design and methodology of the HF-Wii study; A multicentre randomized controlled trial. European Journal of Heart Failure. 17(7), pp. 743 - 748. https://doi.org/10.1002/ejhf.305
Costs and effects of an ambulatory geriatric unit (the AGe-FIT Study) : A randomized controlled trial
Ekdahl, Anne, Wirehn, Ann-Britt, Alwin, Jenny, Jaarsma, Tiny, Unosson, Mitra, Husberg, Magnus, Eckerblad, Jeanette, Milberg, Anna, Krevers, Barbro and Carlsson, Per. (2015). Costs and effects of an ambulatory geriatric unit (the AGe-FIT Study) : A randomized controlled trial. Journal of the American Medical Directors Association (JAMDA) (print). 16(6), pp. 497 - 503. https://doi.org/10.1016/j.jamda.2015.01.074
Adherence to self-care in patients with heart failure in the HeartCycle study
Stut, Wim, Deighan, Carolyn, Cleland, John G. F. and Jaarsma, Tiny. (2015). Adherence to self-care in patients with heart failure in the HeartCycle study. Patient Preference and Adherence. 9, pp. 1195 - 1206. https://doi.org/10.2147/PPA.S88482
Struggling with issues about cardiopulmonary resuscitation (CPR) for end-stage heart failure patients
Brannstrom, Margareta and Jaarsma, Trijntje. (2015). Struggling with issues about cardiopulmonary resuscitation (CPR) for end-stage heart failure patients. Scandinavian Journal of Caring Sciences. 29(2), pp. 379 - 385. https://doi.org/10.1111/scs.12174
Patient-nurse communication about prognosis and end-of-life care
Hjelmfors, Lisa, van der Wal, Martje H.L., Friedrichsen, Maria J., Martensson, Jan, Stromberg, Anna and Jaarsma, Tiny. (2015). Patient-nurse communication about prognosis and end-of-life care. Journal of Palliative Medicine. 18(10), pp. 865 - 871. https://doi.org/10.1089/jpm.2015.0037
Caregiving tasks and caregiver burden : Effects of an psycho-educational intervention in partners of patients withpost-operative heart failure
Agren, Susanna, Stromberg, Anna, Jaarsma, Tiny and Luttik, Marie-Louise. (2015). Caregiving tasks and caregiver burden : Effects of an psycho-educational intervention in partners of patients withpost-operative heart failure. Heart & Lung: the journal of acute and critical care. 44(4), pp. 270 - 275. https://doi.org/10.1016/j.hrtlng.2015.04.003
Exercise programs for LVAD supported patients: A snapshot from the ESC affiliated countries
Gal, Tuvia Ben, Piepoli, Massimo F., Corra, Ugo, Conraads, Viviane, Adamopoulos, Stamatis, Agostoni, Piergiuseppe, Piotrowicz, Ewa, Schmid, Jean-Paul, Seferovic, Petar M., Ponikowski, Piotr P., Filippatos, Gerasimos S. and Jaarsma, Tiny. (2015). Exercise programs for LVAD supported patients: A snapshot from the ESC affiliated countries. International Journal of Cardiology. 201(December), pp. 215 - 219. https://doi.org/10.1016/j.ijcard.2015.08.081
Symptom burden in community-dwelling older people with multimorbidity: A cross-sectional study
Eckerblad, Jeanette, Theander, Kersti, Ekdahl, Anne, Unosson, Mitra, Wirehn, Ann-Britt, Milberg, Anna, Krevers, Barbro and Jaarsma, Trijntje. (2015). Symptom burden in community-dwelling older people with multimorbidity: A cross-sectional study. BMC Geriatrics. 15(1), pp. 1 - 9. https://doi.org/10.1186/1471-2318-15-1
The contribution of hypoxia to the association between sleep apnoea, insomnia, and cardiovascular mortality in community-dwelling elderly with and without cardiovascular disease
Johansson, Peter, Svensson, Erland, Alehagen, Urban, Jaarsma, Trijntje and Brostrom, Anders. (2015). The contribution of hypoxia to the association between sleep apnoea, insomnia, and cardiovascular mortality in community-dwelling elderly with and without cardiovascular disease. European Journal of Cardiovascular Nursing. 14(3), pp. 222 - 231. https://doi.org/10.1177/1474515114524072
Sexual counseling and cardiovascular disease: Practical approaches
Steinke, Elaine E. and Jaarsma, Tiny. (2015). Sexual counseling and cardiovascular disease: Practical approaches. Asian Journal of Andrology. 17(1), pp. 32 - 39. https://doi.org/10.4103/1008-682X.135982
Quality of life and influential factors in patients implanted with a left ventricular assist device
Kato, Naoko P., Okada, Ikuko, Imamura, Teruhiko, Kagami, Yukie, Endo, Miyoko, Nitta, Daisuke, Fujino, Takeo, Muraoka, Hironori, Minatsuki, Shun, Maki, Hisataka, Inaba, Toshiro, Kinoshita, Osamu, Nawata, Kan, Hatano, Masaru, Yao, Atsushi, Kyo, Shunei, Ono, Minoru, Jaarsma, Tiny and Kinugawa, Koichiro. (2015). Quality of life and influential factors in patients implanted with a left ventricular assist device. Circulation Journal. 79(10), pp. 2186 - 2192. https://doi.org/10.1253/circj.CJ-15-0502
Internet-based cognitive behavior therapy for patients with heart failure and depressive symptoms: A proof of concept study
Lundgren, Johan, Andersson, Gerhard, Dahlstrom, Orjan, Jaarsma, Tiny, Kohler, Anita Karner and Johansson, Peter. (2015). Internet-based cognitive behavior therapy for patients with heart failure and depressive symptoms: A proof of concept study. Patient Education and Counseling. 98(8), pp. 935 - 942. https://doi.org/10.1016/j.pec.2015.04.013
Long term follow-up after a randomized integrated educational and psychosocial intervention in patient-partner dyads affected by heart failure
Liljeroos, Maria, Agren, Susanna, Jaarsma, Tiny, Arestedt, Kristofer and Stromberg, Anna. (2015). Long term follow-up after a randomized integrated educational and psychosocial intervention in patient-partner dyads affected by heart failure. PLoS ONE. 10(9), pp. 1 - 16. https://doi.org/10.1371/journal.pone.0138058
Heart failure telemonitoring in Japan and Sweden: A cross-sectional survey
Kato, Naoko P., Johansson, Peter, Okada, Ikuko, de Vries, Arjen E., Kinugawa, Koichiro, Stromberg, Anna and Jaarsma, Tiny. (2015). Heart failure telemonitoring in Japan and Sweden: A cross-sectional survey. Journal of Medical Internet Research. 17(11), pp. 1 - 11. https://doi.org/10.2196/jmir.4825
To adjust and endure: A qualitative study of symptom burden in older people with multimorbidity
Eckerblad, Jeanette, Theander, Kersti, Ekdahl, Anne W., Jaarsma, Tiny and Hellstrom, Ingrid. (2015). To adjust and endure: A qualitative study of symptom burden in older people with multimorbidity. Applied Nursing Research. 28(4), pp. 322 - 327. https://doi.org/10.1016/j.apnr.2015.03.008
Knowledge expectations, self-care, and health complaints of heart failure patients scheduled for cardiac resynchronization therapy implantation
Ingadottir, Brynja, Thylen, Ingela and Jaarsma, Tiny. (2015). Knowledge expectations, self-care, and health complaints of heart failure patients scheduled for cardiac resynchronization therapy implantation. Patient Preference and Adherence. 9, pp. 913 - 921. https://doi.org/10.2147/PPA.S83069
Improving care for patients with acute heart failure: Before, during and after hospitalization
Cowie, Martin R., Anker, Stefan D., Cleland, John G. F., Felker, G. Michael, Filippatos, Gerasimos S., Jaarsma, Tiny, Jourdain, Patrick, Knight, Eve, Massie, Barry M., Ponikowski, Piotr and López-Sendón, José. (2014). Improving care for patients with acute heart failure: Before, during and after hospitalization. ESC Heart Failure. 1(2), pp. 110 - 145. https://doi.org/10.1002/ehf2.12021
Patient participation in patients with heart failure receiving structured home care:- A prospective longitudinal study
Näsström, Lena, Jaarsma, Tiny, Idvall, Ewa, Arestedt, Kristofer and Stromberg, Anna. (2014). Patient participation in patients with heart failure receiving structured home care:- A prospective longitudinal study. BMC Health Services Research. 14(633), pp. 1 - 12. https://doi.org/10.1186/s12913-014-0633-y
Towards tailoring of self-management for patients with chronic heart failure or chronic obstructive pulmonary disease : A protocol for an individual patient data meta-analysis
Jonkman, Nini, Westland, Heleen, Trappenburg, Jaap, Groenwold, Rolf, Effing-Tijdhof, Tanja, Troosters, Thierry, van der Palen, Job, Bourbeau, Jean, Jaarsma, Tiny, Hoes, Arno and Schuurmans, Marieke. (2014). Towards tailoring of self-management for patients with chronic heart failure or chronic obstructive pulmonary disease : A protocol for an individual patient data meta-analysis. BMJ Open. https://doi.org/10.1136/bmjopen-2014-005220
Prognostic value of N-terminal pro C-type natriuretic peptide in heart failure patients with preserved and reduced ejection fraction
Lok, Dirk, Klip, IJsbrand, Voors, Adriaan, Lok, Sjoukje, Bruggink-Andre de la Porte, Pieta, Hillege, Hans, Jaarsma, Trijntje, van Veldhuisen, Dirk and van der Meer, Peter. (2014). Prognostic value of N-terminal pro C-type natriuretic peptide in heart failure patients with preserved and reduced ejection fraction. European Journal of Heart Failure. 16(9), pp. 958 - 966. https://doi.org/10.1002/ejhf.140
Sexual counseling is important in cardiovascular disease. Returning to sexual activity is a common concern
Martensson, Jan, Fridlund, Bengt and Jaarsma, Tiny. (2014). Sexual counseling is important in cardiovascular disease. Returning to sexual activity is a common concern. Lakartidningen. 111(49-50), pp. 2219 - 2222.
Sexrådgivning viktig vid kardiovaskulär sjukdom: Återgång till sexuell aktivitet ett vanligt problem [Sexual counseling is important in cardiovascular disease: Returning to sexual activity is a common concern]
Mårtensson, Jan, Fridlund, Bengt and Jaarsma, Tiny. (2014). Sexrådgivning viktig vid kardiovaskulär sjukdom: Återgång till sexuell aktivitet ett vanligt problem [Sexual counseling is important in cardiovascular disease: Returning to sexual activity is a common concern]. Läkartidningen. 111(49-50), pp. 1 - 5.
Heart failure clinics are still useful (more than ever?)
Jaarsma, Tiny and Strömberg, Anna. (2014). Heart failure clinics are still useful (more than ever?). Canadian Journal of Cardiology. 30(3), pp. 272 - 275. https://doi.org/10.1016/j.cjca.2013.09.022
Exergaming to increase the exercise capacity and daily physical activity in heart failure patients: A pilot study
Klompstra, Leonie, Jaarsma, Tiny and Stromberg, Anna. (2014). Exergaming to increase the exercise capacity and daily physical activity in heart failure patients: A pilot study. BMC Geriatrics. 14(119), pp. 1 - 9. https://doi.org/10.1186/1471-2318-14-119
Exergaming in older adults : A scoping review and implementation potential for patients with heart failure
Klompstra, Leonie Verheijden, Jaarsma, Tiny and Stromberg, Anna. (2014). Exergaming in older adults : A scoping review and implementation potential for patients with heart failure. European Journal of Cardiovascular Nursing. 13(5), pp. 388 - 398. https://doi.org/10.1177/1474515113512203
Daily physical activity in stable heart failure patients
Dontje, Manon, van der Wal, Martje, Stolk, Ronald, Brugemann, Johan, Jaarsma, Tiny, Wijtvliet, Petra, Van Der Schans, C and de Greef, Mathieu. (2014). Daily physical activity in stable heart failure patients. Cardiovascular Nursing, The Journal of. 29(3), pp. 218 - 226. https://doi.org/10.1097/JCN.0b013e318283ba14
20 things you didn't know about European cardiac nurses
Jaarsma, Tiny and Stromberg, Anna. (2014). 20 things you didn't know about European cardiac nurses. Journal of Cardiovascular Nursing. 29(4), pp. 291 - 292. https://doi.org/10.1097/JCN.0000000000000109
Prognostic value of plasma neutrophil gelatinase-associated lipocalin for mortality in patients with heart failure
van Deursen, Vincent, Damman, Kevin, Voors, Adriaan, van der Wal, Martje, Jaarsma, Trijntje, van Veldhuisen, Dirk and Hillege, Hans. (2014). Prognostic value of plasma neutrophil gelatinase-associated lipocalin for mortality in patients with heart failure. Circulation: Heart Failure. 7(1), pp. 35 - 42. https://doi.org/10.1161/CIRCHEARTFAILURE.113.000242
Cross-cultural adaptation and reliability testing of polish adaptation of the European heart failure self-care behavior scale (EHFScBS)
Uchmanowicz, Izabella, Loboz-Rudnicka, Maria, Jaarsma, Tiny and Loboz-Grudzien, Krystyna. (2014). Cross-cultural adaptation and reliability testing of polish adaptation of the European heart failure self-care behavior scale (EHFScBS). Patient Preference and Adherence. 8, pp. 1521 - 1526. https://doi.org/10.2147/PPA.S65890
Perceived caring needs in patient-partner dyads affected by heart failure : A qualitative study
Liljeroos, Maria, Agren, Susanna, Jaarsma, Tiny and Stromberg, Anna. (2014). Perceived caring needs in patient-partner dyads affected by heart failure : A qualitative study. Journal of Clinical Nursing. 23(19-20), pp. 2928 - 2938. https://doi.org/10.1111/jocn.12588
Sexual dysfunction in heart failure patients
Jaarsma, Tiny, Fridlund, Bengt and Martensson, Jan. (2014). Sexual dysfunction in heart failure patients. Current Heart Failure Reports. 11(3), pp. 330 - 336. https://doi.org/10.1007/s11897-014-0202-z
Sickness behavior in community-dwelling elderly : Associations with impaired cardiac function and inflammation
Johansson, Peter, Riegel, Barbara, Svensson, Erland, Brostrom, Anders, Alehagen, Urban, Dahlstrom, Ulf and Jaarsma, Tiny. (2014). Sickness behavior in community-dwelling elderly : Associations with impaired cardiac function and inflammation. Biological Research for Nursing. 16(1), pp. 105 - 113. https://doi.org/10.1177/1099800412466170
Fibrosis marker syndecan-1 and outcome in patients with heart failure with reduced and preserved ejection fraction
Tromp, Jasper, van der Pol, Atze, Klip, IJsbrand, de Boer, Rudolf, Jaarsma, Tiny, van Gilst, Wiek, Voors, Adriaan, van Veldhuisen, Dirk and van der Meer, Peter. (2014). Fibrosis marker syndecan-1 and outcome in patients with heart failure with reduced and preserved ejection fraction. Circulation: Heart Failure. 7(3), pp. 457 - 462. https://doi.org/10.1161/CIRCHEARTFAILURE.113.000846
Sexual function in patients supported with left ventricular assist device and with heart transplant
Hasin, Tal, Jaarsma, Tiny, Murninkas, Daniel, Setareh-Shenas, Saman, Yaari, Victoria, Bar-Yosef, Simona, Medalion, Benjamin, Gerber, Yariv and Ben-Gal, Tuvia. (2014). Sexual function in patients supported with left ventricular assist device and with heart transplant. ESC Heart Failure. 1(2), pp. 103 - 109. https://doi.org/10.1002/ehf2.12014
Thirst trajectory and factors associated with persistent thirst in patients with heart failure
Waldreus, Nana, van der Wal, Martje, Hahn, Robert, van Veldhuisen, Dirk and Jaarsma, Tiny. (2014). Thirst trajectory and factors associated with persistent thirst in patients with heart failure. Journal of Cardiac Failure. 20(9), pp. 689 - 695. https://doi.org/10.1016/j.cardfail.2014.06.352
European cardiac nurses' current practice and knowledge on anticoagulation therapy
Otherhals, Kjersti, Deaton, Christi, De Geest, Sabina, Jaarsma, Tiny, Lenzen, Mattie, Moons, Philip, Martensson, Jan, Smith, Karen, Stewart, Simon and Stromberg, Anna. (2014). European cardiac nurses' current practice and knowledge on anticoagulation therapy. European Journal of Cardiovascular Nursing. 13(3), pp. 261 - 269. https://doi.org/10.1177/1474515113491658
Effect of spironolactone on 30-day death and heart failure rehospitalization (from the COACH study)
Maisel, Alan, Xue, Yang, van Veldhuisen, Dirk, Voors, Adriaan, Jaarsma, Tiny, Pang, Peter, Butler, Javed, Pitt, Bertram, Clopton, Paul and de Boer, Rudolf. (2014). Effect of spironolactone on 30-day death and heart failure rehospitalization (from the COACH study). The American Journal of Cardiology. 114(5), pp. 737 - 742. https://doi.org/10.1016/j.amjcard.2014.05.062
Research in cardiovascular care : A position statement of the Council on Cardiovascular Nursing & Allied Professionals of the European Society of Cardiology
Jaarsma, Tiny, Deaton, Christi, Fitzsimmons, Donna, Fridlund, Bengt, Hardig, Bjarne, Mahrer-Imhof, Romy, Moons, Philip, Noureddine, Samar, O'Donnell, Sharon and Pedersen, Susanne. (2014). Research in cardiovascular care : A position statement of the Council on Cardiovascular Nursing & Allied Professionals of the European Society of Cardiology. European Journal of Cardiovascular Nursing. 13(1), pp. 9 - 21. https://doi.org/10.1177/1474515113509761
20 things you didn't know about sex and heart disease
Jaarsma, Tiny and Steinke, Elaine. (2014). 20 things you didn't know about sex and heart disease. Journal of Cardiovascular Nursing. 29(3), pp. 207 - 208. https://doi.org/10.1097/JCN.0000000000000119
Characteristics associated with anxiety, depressive symptoms, and quality-of-life in a large cohort of implantable cardioverter defibrillator recipients
Thylen, Ingela, Dekker, Rebecca, Jaarsma, Tiny, Stromberg, Anna and Moser, Debra. (2014). Characteristics associated with anxiety, depressive symptoms, and quality-of-life in a large cohort of implantable cardioverter defibrillator recipients. Journal of Psychosomatic Research. 77(2), pp. 122 - 127. https://doi.org/10.1016/j.jpsychores.2014.05.007
Heart failure: Preventing disease and death worldwide
Ponikowski, Piotr P., Anker, Stefan D., AlHabib, Khalid F., Cowie, Martin R., Force, Thomas L., Hu, Shengshou, Jaarsma, Tiny, Krum, Henry, Rastogi, Vishal, Rohde, Luis E., Samal, Umesh C., Shimokawa, Hiroaki, Siswanto, Bambang Budi, Sliwa, Karen and Filippatos, Gerasimos S.. (2014). Heart failure: Preventing disease and death worldwide. ESC Heart Failure. 1(1), pp. 4 - 25. https://doi.org/10.1002/ehf2.12005
Zelfmanagement bij chronische ziekten
Trappenburg, Jaap C. A., Jonkman, Nini H., Jaarsma, Trijntje, van Os-Medendorp, Harmieke, Kort, Helianthe, de Wit, Niek, Hoes, Arno W. and Schuurmans, Marieke J.. (2014). Zelfmanagement bij chronische ziekten. Huisarts en Wetenschap. 57(3), pp. 120 - 124. https://doi.org/10.1007/s12445-014-0064-3
Identification of symptom clusters among patients with heart failure : An international observational study
Moser, Debra, Lee, Kyoung Suk, Wu, Jia-Rong, Mudd-Martin, Gia, Jaarsma, Tiny, Huang, Tsuey-Yuan, Fan, Xui-Zhen, Stromberg, Anna, Lennie, Terry and Riegel, Barbara. (2014). Identification of symptom clusters among patients with heart failure : An international observational study. International Journal of Nursing Studies. 51, pp. 1366 - 1372. https://doi.org/10.1016/j.ijnurstu.2014.02.004
Multidrug and optimal heart failure therapy prescribing in older general practice populations : A clinical data linkage study
Rushton, Claire, Stromberg, Anna, Jaarsma, Tiny and Kadam, Umesh. (2014). Multidrug and optimal heart failure therapy prescribing in older general practice populations : A clinical data linkage study. BMJ Open. 4(1), pp. 1 - 7. https://doi.org/10.1136/bmjopen-2013-003698
Long-term follow-up in optimally treated and stable heart failure patients : Primary care vs. heart failure clinic. Results of the COACH-2 study
Luttik, Marie-Louise, Jaarsma, Tiny, van Geel, Peter, Brons, Maaike, Hillege, Hans, Hoes, Arno, de Jong, Richard, Linssen, Gerard, Lok, Dirk, Berge, Marjolein and van Veldhuisen, Dirk. (2014). Long-term follow-up in optimally treated and stable heart failure patients : Primary care vs. heart failure clinic. Results of the COACH-2 study. European Journal of Heart Failure. 16(11), pp. 1241 - 1248. https://doi.org/10.1002/ejhf.173
Communicating prognosis and end-of-life care to heart failure patients : A survey of heart failure nurses' perspectives
Hjelmfors, Lisa, Stromberg, Anna, Friedrichsen, Maria, Martensson, Jan and Jaarsma, Tiny. (2014). Communicating prognosis and end-of-life care to heart failure patients : A survey of heart failure nurses' perspectives. European Journal of Cardiovascular Nursing. 13(2), pp. 152 - 161. https://doi.org/10.1177/1474515114521746
The European heart failure self-care behaviour scale : New insights into factorial structure, reliability, precision and scoring procedure
Vellone, Ercole, Jaarsma, Trijntje, Stromberg, Anna, Fida, Roberta, Arestedt, Kristofer, Rocco, Gennaro, Cocchieri, Antonello and Alvaro, Rosaria. (2014). The European heart failure self-care behaviour scale : New insights into factorial structure, reliability, precision and scoring procedure. Patient Education and Counseling. 94(1), pp. 97 - 102. https://doi.org/10.1016/j.pec.2013.09.014
A good manuscript review for the European Journal of Cardiovascular Nursing [Editorial]
Jaarsma, Tiny, Strömberg, Anna, Årestedt, Kristofer, Broström, Anders, Kärner, Anita, Mårtensson, Jan, Moons, Philip, Thylén, Ingela and Thompson, David R.. (2013). A good manuscript review for the European Journal of Cardiovascular Nursing [Editorial] Oxford University Press. https://doi.org/10.1177/1474515113476605
Components of heart failure management in home care : A literature review
Jaarsma, Tiny, Brons, Maaike, Kraai, Imke, Luttik, Marie-Louise and Stromberg, Anna. (2013). Components of heart failure management in home care : A literature review. European Journal of Cardiovascular Nursing. 12(3), pp. 230 - 241. https://doi.org/10.1177/1474515112449539
Time-course of depressive symptoms in patients with heart failure+
Johansson, Peter, Lesman-Leegte, Ivonne, Lundgren, Johan, Hillege, Hans, Hoes, Arno, Sanderman, Robbert, van Veldhuisen, Dirk and Jaarsma, Tiny. (2013). Time-course of depressive symptoms in patients with heart failure+. Journal of Psychosomatic Research. 74(3), pp. 238 - 243. https://doi.org/10.1016/j.jpsychores.2012.09.019
Guía de práctica clínica de la ESH/ESC para el manejo de la hipertensión arterial (2013)
Mancia, Giuseppe, Fagard, Robert, Narkiewicz, Krzysztof, Redon, Josep, Zanchetti, Alberto, Bohm, Michael, Christiaens, Thierry, Cifkova, Renata, De Backer, Guy, Dominiczak, Anna, Galderisi, Maurizio, Grobbee, Diederick E., Jaarsma, Tiny, Kirchhof, Paulus, Kjeldsen, Sverre E., Laurent, Stephane, Manolis, Athanasios J., Nilsson, Peter M., Ruilope, Luis Miguel, ... Zannad Chu de Nancy, Faiez. (2013). Guía de práctica clínica de la ESH/ESC para el manejo de la hipertensión arterial (2013). Hipertension y Riesgo Vascular. 30(SUPPL.3), pp. 4 - 91. https://doi.org/10.1016/S1889-1837(13)70027-8
Communicating about sexual concerns within cardiac health services : Do service providers and service users agree?
Byrne, Molly, Doherty, Sally, Murphy, Andrew, McGee, Hannah and Jaarsma, Tiny. (2013). Communicating about sexual concerns within cardiac health services : Do service providers and service users agree? Patient Education and Counseling. 92(3), pp. 398 - 403. https://doi.org/10.1016/j.pec.2013.03.010
Health professionals' expectations versus experiences of internet-based telemonitoring : Survey among heart failure clinics
de Vries, Arjen, van der Wal, Martje, Nieuwenhuis, Maurice, de Jong, Richard, van Dijk, Rene, Jaarsma, Tiny and Hillege, Hans. (2013). Health professionals' expectations versus experiences of internet-based telemonitoring : Survey among heart failure clinics. Journal of Medical Internet Research (online version). 15(1), pp. 1 - 13. https://doi.org/10.2196/jmir.2161
The WAP four-disulfide core domain protein HE4 : A novel biomarker for heart failure
de Boer, Rudolf, Cao, Qi, Postmus, Douwe, Damman, Kevin, Voors, Adriaan, Jaarsma, Trijntje, van Veldhuisen, Dirk, Arnold, William, Hillege, Hans and Sillje, Herman. (2013). The WAP four-disulfide core domain protein HE4 : A novel biomarker for heart failure. JACC: Heart Failure. 1(2), pp. 164 - 169. https://doi.org/10.1016/j.jchf.2012.11.005
Wytyczne ESH/ESC dotyczace postepowania w nadcisnieniu tetniczym w 2013 roku
Mancia, Giuseppe, Fagard, Robert, Narkiewicz, Krzysztof, Redon, Josep, Zanchetti, Alberto, Bohm, Michael, Christiaens, Thierry, Cifkova, Renata, De Backer, Guy, Dominiczak, Anna, Galderisi, Maurizio, Grobbee, Diederick E., Jaarsma, Tiny, Kirchhof, Paulus, Kjeldsen, Sverre E., Laurent, Stephane, Manolis, Athanasios J., Nilsson, Peter M., Ruilope, Luis Miguel, ... Zannad, Faiez. (2013). Wytyczne ESH/ESC dotyczace postepowania w nadcisnieniu tetniczym w 2013 roku. Kardiologia Polska. 71(SUPPL3), pp. 27 - 118. https://doi.org/10.5603/KP.2013.0177
2013 ESH/ESC Guidelines for the management of arterial Hypertension. The task force for the management of arterial hypertension of the European Society of Hypertension (ESH) and of the European Society of Cardiology (ESC)
Mancia, Giuseppe, Fagard, Robert, Narkiewicz, Krzysztof, Redon, Josep, Zanchetti, Alberto, Bohm, Michael, Christiaens, Thierry, Cifkova, Renata, De Backer, Guy, Dominiczak, Anna, Galderisi, Maurizio, Grobbee, Diederick E., Jaarsma, Tiny, Kirchhof, Paulus, Kjeldsen, Sverre E., Laurent, Stephane, Manolis, Athanasios J., Nilsson, Peter M., Ruilope, Luis Miguel, ... Zannad, Faiez. (2013). 2013 ESH/ESC Guidelines for the management of arterial Hypertension. The task force for the management of arterial hypertension of the European Society of Hypertension (ESH) and of the European Society of Cardiology (ESC). Journal of Hypertension. 31(7), pp. 1281 - 1357. https://doi.org/10.1097/01.hjh.0000431740.32696.cc
Comparison of self-care behaviors of heart failure patients in 15 countries worldwide
Jaarsma, Tiny, Stromberg, Anna, Ben Gal, Tuvia, Cameron, Janette, Driscoll, Andrea, Duengen, Hans-Dirk, Inkrot, Simone, Huang, Tsuey-Yuan, Huyen, Nguyen Ngoc and Kato, Naoko. (2013). Comparison of self-care behaviors of heart failure patients in 15 countries worldwide. Patient Education and Counseling. https://doi.org/10.1016/j.pec.2013.02.017
Perceived barriers of heart failure nurses and cardiologists in using clinical decision support systems in the treatment of heart failure patients
de Vries, Arjen, van der Wal, Martje, Nieuwenhuis, Maurice, de Jong, Richard, van Dijk, Rene, Jaarsma, Tiny, Hillege, Hans and Jorna, Rene. (2013). Perceived barriers of heart failure nurses and cardiologists in using clinical decision support systems in the treatment of heart failure patients. BMC Medical Information and Decision Making. 13(54), pp. 1 - 8. https://doi.org/10.1186/1472-6947-13-54
Thirst in heart failure : A systematic literature review
Waldreus, Nana, Hahn, Robert and Jaarsma, Tiny. (2013). Thirst in heart failure : A systematic literature review. European Journal of Heart Failure. 15(2), pp. 141 - 149. https://doi.org/10.1093/eurjhf/hfs174
The CHARMS Study : Cardiac patients' experiences of sexual problems following cardiac rehabilitation
Byrne, Molly, Doherty, Sally, Murphy, Andrew, McGee, Hannah and Jaarsma, Trijntje. (2013). The CHARMS Study : Cardiac patients' experiences of sexual problems following cardiac rehabilitation. European Journal of Cardiovascular Nursing. 12(6), pp. 558 - 566. https://doi.org/10.1177/1474515113477273
The CopenHeartSF trial - Comprehensive sexual rehabilitation programme for male patients with implantable cardioverter defibrillator or ischaemic heart disease and impaired sexual function : Protocol of a randomised clinical trial
Johansen, Pernille, Zwisler, Ann-Dorthe, Hastrup-Svendsen, Jesper, Frederiksen, Marianne, Lindschou, Jane, Winkel, Per, Gluud, Christian, Giraldi, Annamaria, Steinke, Elaine, Jaarsma, Trijntje and Berg, Selina Kikkenborg. (2013). The CopenHeartSF trial - Comprehensive sexual rehabilitation programme for male patients with implantable cardioverter defibrillator or ischaemic heart disease and impaired sexual function : Protocol of a randomised clinical trial. BMJ Open. 3(11), pp. 1 - 11. https://doi.org/10.1136/bmjopen-2013-003967
Sexual counseling for individuals with cardiovascular disease and their partners: A consensus document from the american heart association and the esc council on cardiovascular nursing and allied professions (CCNAP)
Steinke, Elaine E., Jaarsma, Tiny, Barnason, Susan A., Byrne, Molly, Doherty, Sally, Dougherty, Cynthia M., Fridlund, Bengt, Kautz, Donald D., Mårtensson, Jan, Mosack, Victoria and Moser, Debra K.. (2013). Sexual counseling for individuals with cardiovascular disease and their partners: A consensus document from the american heart association and the esc council on cardiovascular nursing and allied professions (CCNAP). Circulation. 128(18), pp. 2075 - 2096. https://doi.org/10.1161/CIR.0b013e31829c2e53
Determinants of adherence to heart failure medication : A systematic literature review
Oosterom-Calo, R., van Ballegooijen, A., Terwee, C., te Velde, S., Brouwer, I., Jaarsma, Trijntje and Brug, J. (2013). Determinants of adherence to heart failure medication : A systematic literature review. Heart Failure Reviews. 18(4), pp. 409 - 427. https://doi.org/10.1007/s10741-012-9321-3
Preferences of heart failure patients in daily clinical practice : Quality of life or longevity?
Kraai, Imke, Vermeulen, Karin, Luttik, Marie-Louise, Hoekstra, Tialda, Jaarsma, Trijntje and Hillege, Hans. (2013). Preferences of heart failure patients in daily clinical practice : Quality of life or longevity? European Journal of Heart Failure. 15(10), pp. 1113 - 1121. https://doi.org/10.1093/eurjhf/hft071
Neurohormonal and clinical sex differences in heart failure
Meyer, Sven, van der Meer, Peter, van Deursen, Vincent, Jaarsma, Tiny, van Veldhuisen, Dirk, van der Wal, Martje, Hillege, Hans and Voors, Adriaan. (2013). Neurohormonal and clinical sex differences in heart failure. European Heart Journal (English Edition). 34(32), pp. 2538 - 2547. https://doi.org/10.1093/eurheartj/eht152
Validity and reliability of the European Heart Failure Self-care Behavior Scale among adults from the United States with symptomatic heart failure
Lee, Christopher, Lyons, Karen, Gelow, Jill, Mudd, James, Hiatt, Shirin, Nguyen, Thuan and Jaarsma, Tiny. (2013). Validity and reliability of the European Heart Failure Self-care Behavior Scale among adults from the United States with symptomatic heart failure. European Journal of Cardiovascular Nursing. 12(2), pp. 214 - 218. https://doi.org/10.1177/1474515112469316
B-type natriuretic peptide and prognosis in heart failure patients with preserved and reduced ejection fraction
van Veldhuisen, Dirk, Linssen, Gerard, Jaarsma, Tiny, van Gilst, Wiek, Hoes, Arno, Tijssen, Jan, Paulus, Walter, Voors, Adriaan and Hillege, Hans. (2013). B-type natriuretic peptide and prognosis in heart failure patients with preserved and reduced ejection fraction. Journal of the American College of Cardiology. 61(14), pp. 1498 - 1506. https://doi.org/10.1016/j.jacc.2012.12.044
The Ambulatory Geriatric Assessment - a Frailty Intervention Trial (AGe-FIT) - A randomised controlled trial aimed to prevent hospital readmissions and functional deterioration in high risk older adults : A study protocol
Mazya, A. L., Eckerblad, Jeanette, Jaarsma, Trijntje, Hellstrom, I., Krevers, B., Milberg, Anna, Unosson, Mitra, Westoo, A. and Ekdahl, Anne. (2013). The Ambulatory Geriatric Assessment - a Frailty Intervention Trial (AGe-FIT) - A randomised controlled trial aimed to prevent hospital readmissions and functional deterioration in high risk older adults : A study protocol. European Geriatric Medicine. 4(4), pp. 242 - 247. https://doi.org/10.1016/j.eurger.2013.05.004
Randomized clinical trial to evaluate the effect of a supervised exercise training program on readmissions in patients with myocardial ischemia: A study protocol
Santaularia, Nuria, Caminal, Josefina, Arnau, Anna, Perramon, Montserrat, Montesinos, Jesus, Trape, Jaume, Abenoza-Guardiola, Montserrat, Guiteras-Val, Pere and Jaarsma, Trijntje. (2013). Randomized clinical trial to evaluate the effect of a supervised exercise training program on readmissions in patients with myocardial ischemia: A study protocol. BMC Cardiovascular Disorders. 13(32), pp. 1 - 8. https://doi.org/10.1186/1471-2261-13-32
Societal costs of non-cardiac chest pain compared with ischemic heart disease: A longitudinal study
Mourad, Ghassan, Alwin, Jenny, Stromberg, Anna and Jaarsma, Trijntje. (2013). Societal costs of non-cardiac chest pain compared with ischemic heart disease: A longitudinal study. BMC Health Services Research. 13(13), pp. 1 - 11. https://doi.org/10.1186/1472-6963-13-403
Motivational factors for exercise in cardiac patients? A literature review
Santaularia, Nuria and Jaarsma, Tiny. (2013). Motivational factors for exercise in cardiac patients? A literature review. European Journal of Preventive Medicine. 1(1), pp. 1 - 19. https://doi.org/10.11648/j.ejpm.20130101.11
Quality of life and survival in patients with heart failure
Hoekstra, Tialda, Jaarsma, Trijntje, van Veldhuisen, Dirk, Hillege, Hans, Sanderman, Robbert and Lesman-Leegte, Ivonne. (2013). Quality of life and survival in patients with heart failure. European Journal of Heart Failure. 15(1), pp. 94 - 102. https://doi.org/10.1093/eurjhf/hfs148
Design and methodology of the COACH-2 (Comparative study on guideline adherence and patient compliance in heart failure patients) study : HF clinics versus primary care is stable patients on optimal therapy
Luttik, M., Brons, Maaike, Jaarsma, Tiny, Hillege, Hans, Hoes, A., de Jong, Richard, Linssen, G., Lok, D., Berger, M. and van Veldhuisen, Dirk. (2012). Design and methodology of the COACH-2 (Comparative study on guideline adherence and patient compliance in heart failure patients) study : HF clinics versus primary care is stable patients on optimal therapy. Netherlands Heart Journal. 20(7-8), pp. 307 - 312. https://doi.org/10.1007/s12471-012-0284-8
What keeps nurses from the sexual counseling of patients with heart failure?
Hoekstra, Tialda, Lesman-Leegte, Ivonne, Couperus, Margriet, Sanderman, Robbert and Jaarsma, Tiny. (2012). What keeps nurses from the sexual counseling of patients with heart failure? Heart & Lung: the journal of acute and critical care. 41(5), pp. 492 - 499. https://doi.org/10.1016/j.hrtlng.2012.04.009
Inflammation and anaemia in a broad spectrum of patients with heart failure
Kleijn, Lennaert, Belonje, Anne, Voors, Adriaan, de Boer, Rudolf, Jaarsma, Tiny, Ghosh, Sudip, Kim, Joseph, Hillege, Hans, van Gilst, Wiek, van Veldhuisen, Dirk and van der Meer, Peter. (2012). Inflammation and anaemia in a broad spectrum of patients with heart failure. Heart. 98(16), pp. 1237 - 1241. https://doi.org/10.1136/heartjnl-2012-301954
Wytyczne ESC dotycza ce rozpoznania oraz leczenia ostrej i przewlek ej niewydolno ci sierca na 2012 rok
McMurray, J. J., Adamopoulos, Stamatis, Anker, Stefan D., Auricchio, Angelo, Bohm, Michael, Dickstein, Kenneth, Falk, Volkmar, Filippatos, Gerasimos S., Fonseca, Candida, Gomez-Sanchez, Miguel Angel, Jaarsma, Tiny, Kober, Lars, Lip, Gregory Y. H., Maggioni, Aldo Pietro, Parkhomenko, Alexander, Pieske, Burkert, Popescu, Bogdan A., Ronnevik, Per K., Rutten, Frans H., ... Bax, Jeroen J.. (2012). Wytyczne ESC dotycza ce rozpoznania oraz leczenia ostrej i przewlek ej niewydolno ci sierca na 2012 rok. Kardiologia Polska. 70(SUPPL. 2), pp. 101 - 175.
Validity and reliability of the German version of the 9-item European heart failure self-care behaviour scale
Koberich, Stefan, Glattacker, Manuela, Jaarsma, Tiny, Lohrmann, Christa and Dassen, Theo. (2012). Validity and reliability of the German version of the 9-item European heart failure self-care behaviour scale. European Journal of Cardiovascular Nursing. 12(2), pp. 150 - 158. https://doi.org/10.1177/1474515112438639
Self-reported versus 'true' adherence in heart failure patients : A study using the Medication Event Monitoring System
Nieuwenhuis, M., Jaarsma, T., van Veldhuisen, D. and van der Wal, M.. (2012). Self-reported versus 'true' adherence in heart failure patients : A study using the Medication Event Monitoring System. Netherlands Heart Journal. 20(7-8), pp. 313 - 319. https://doi.org/10.1007/s12471-012-0283-9
The COACH risk engine : A multistate model for predicting survival and hospitalization in patients with heart failure
Postmus, Douwe, van Veldhuisen, Dirk, Jaarsma, Trijntje, Luttik, Marie-Louise, Lassus, Johan, Mebazaa, Alexandre, Nieminen, Markku, Harjola, Veli-Pekka, Lewsey, James, Buskens, Erik and Hillege, Hans. (2012). The COACH risk engine : A multistate model for predicting survival and hospitalization in patients with heart failure. European Journal of Heart Failure. 14(2), pp. 168 - 175. https://doi.org/10.1093/eurjhf/hfr163
Health-related quality of life and anemia in hospitalized patients with heart failure
Kraai, I., Luttik, M., Johansson, Peter, de Jong, Richard, van Veldhuisen, Dirk, Hillege, Hans and Jaarsma, Tiny. (2012). Health-related quality of life and anemia in hospitalized patients with heart failure. International Journal of Cardiology. 161(3), pp. 151 - 155. https://doi.org/10.1016/j.ijcard.2012.05.036
Association between prehospital delay and subsequent clinical course in patients with/hospitalized for heart failure
Johansson, Peter, van der Wal, Martje, van Veldhuisen, Dirk J. and Jaarsma, Tiny. (2012). Association between prehospital delay and subsequent clinical course in patients with/hospitalized for heart failure. Journal of Cardiac Failure. 18(3), pp. 202 - 207. https://doi.org/10.1016/j.cardfail.2011.12.007
Anaemia and iron deficiency in cardiac patients : what do nurses and allied professionals know?
Klompstra, Leonie Verheijden, Jaarsma, Tiny, Moons, Philip, Norekval, Tone, Smith, Karen, Martensson, Jan, Thompson, David, De Geest, Sabina, Lenzen, Mattie and Stromberg, Anna. (2012). Anaemia and iron deficiency in cardiac patients : what do nurses and allied professionals know? European Journal of Cardiovascular Nursing. 11(1 Suppl), pp. S90 - S95. https://doi.org/10.1177/1474515111435602
Coping with adverse drug events in patients with heart failure : Exploring the role of medication beliefs and perceptions
De Smedt, R., Jaarsma, Trijntje, Ranchor, A., van der Meer, K., Groenier, K., Haaijer-Ruskamp, F. and Denig, P.. (2012). Coping with adverse drug events in patients with heart failure : Exploring the role of medication beliefs and perceptions. Psychology and Health. 27(5), pp. 570 - 587. https://doi.org/10.1080/08870446.2011.605886
Nurses' strategies to address self-care aspects related to medication adherence and symptom recognition in heart failure patients : An in-depth look
Jaarsma, Tiny, Nikolova-Simons, Mariana and van der Wal, Martje. (2012). Nurses' strategies to address self-care aspects related to medication adherence and symptom recognition in heart failure patients : An in-depth look. Heart & Lung: the journal of acute and critical care. 41(6), pp. 583 - 593. https://doi.org/10.1016/j.hrtlng.2012.03.003
Depressive symptoms and healthcare utilization in patients with noncardiac chest pain compared to patients with ischemic heart disease
Mourad, Ghassan, Jaarsma, Tiny, Hallert, Claes and Stromberg, Anna. (2012). Depressive symptoms and healthcare utilization in patients with noncardiac chest pain compared to patients with ischemic heart disease. Heart & Lung: the journal of acute and critical care. 41(5), pp. 446 - 455. https://doi.org/10.1016/j.hrtlng.2012.04.002
Sexual problems in elderly male and female patients with heart failure
Hoekstra, Tialda, Lesman-Leegte, Ivonne, Luttik, Marie-Louise, Sanderman, Robbert, van Veldhuisen, Dirk and Jaarsma, Tiny. (2012). Sexual problems in elderly male and female patients with heart failure. Heart. 98(22), pp. 1647 - 1652. https://doi.org/10.1136/heartjnl-2012-302305
Perceived sexual difficulties and associated factors in patients with heart failure
Hoekstra, Tialda, Jaarsma, Tiny, Sanderman, Robbert, van Veldhuisen, Dirk and Lesman-Leegte, Ivonne. (2012). Perceived sexual difficulties and associated factors in patients with heart failure. American Heart Journal. 163(2), pp. 246 - 251. https://doi.org/10.1016/j.ahj.2011.10.011
The contribution of heart failure to sleep disturbances and depressive symptoms in older adults
Johansson, Peter, Riegel, Barbara, Svensson, Erland, Brostrom, Anders, Alehagen, Urban, Dahlstrom, Ulf and Jaarsma, Trijntje. (2012). The contribution of heart failure to sleep disturbances and depressive symptoms in older adults. Journal of Geriatric Psychiatry and Neurology. 25(3), pp. 179 - 187. https://doi.org/10.1177/0891988712458366
The effect of problem-based learning in patient education after an event of CORONARY heart disease - A randomised study in PRIMARY health care: Design and methodology of the COR-PRIM study
Karner, Anita, Nilsson, Staffan, Jaarsma, Trijntje, Andersson, Agneta, Wirehn, Ann-Britt, Wodlin, Peter, Hjelmfors, Lisa and Tingstrom, Pia. (2012). The effect of problem-based learning in patient education after an event of CORONARY heart disease - A randomised study in PRIMARY health care: Design and methodology of the COR-PRIM study. BMC Family Practice (online version). 13(110), pp. 1 - 9. https://doi.org/10.1186/1471-2296-13-110
ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012
McMurray, John J. V., Stamatis,, Anker, Stefen D., Auricchio, Angelo, Boḧm, Michael, Dickstein, Kenneth, Falk, Volkmar, Filippatos, Gerasimos, Fonseca, Cândida, Gomez-Sanchez, Miguel Angel, Jaarsma, Tiny, Køber, Lars, Lip, Gregory Y. H., Maggioni, Aldo Pietro, Parkhomenko, Alexander, Pieske, Burkert M., Popescu, Bogdan A., Rønnevik, K., Rutten, Frans H., ... Zeiher, Andreas. (2012). ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012. European Heart Journal. 33, pp. 1787 - 1847. https://doi.org/10.1093/eurheartj/ehs104b
Long-term compliance with nonpharmacologic treatment of patients with heart failure
Nieuwenhuis, Maurice, Jaarsma, Tiny, van Veldhuisen, Dirk, Postmus, Douwe and van der Wal, Martje. (2012). Long-term compliance with nonpharmacologic treatment of patients with heart failure. The American Journal of Cardiology. 110(3), pp. 392 - 397. https://doi.org/10.1016/j.amjcard.2012.03.039
Cross-cultural adaptation and validation of the European Heart failure self-care behavior scale for Brazilian Portuguese
Feijo, Maria, Avila, Christiane, de Souza, Emiliane, Jaarsma, Tiny and Rabelo, Eneida. (2012). Cross-cultural adaptation and validation of the European Heart failure self-care behavior scale for Brazilian Portuguese. Revista Latino-Americana de Efermagem. 20(5), pp. 988 - 996. https://doi.org/10.1590/S0104-11692012000500022
ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012
McMurray, John, Adamopoulos, Stamatis, Anker, Stefan D., Auricchio, Angelo, Bohm, Michael, Dickstein, Kenneth, Falk, Volkmar, Filippatos, Gerasimos S., Fonseca, Candida, Gomez-Sanchez, Miguel Angel, Jaarsma, Tiny, Kober, Lars, Lip, Gregory Y. H., Maggioni, Aldo Pietro, Parkhomenko, Alexander, Pieske, Burkert, Popescu, Bogdan A., Ronnevik, Per K., Rutten, Frans H., ... Ceconi, Claudio. (2012). ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012. European Journal of Heart Failure. 14(8), pp. 803 - 869. https://doi.org/10.1093/eurjhf/hfs105
The role of advanced glycation end-products and their receptor on outcome in heart failure patients with preserved and reduced ejection fraction
Willemsen, Suzan, Hartog, Jasper, van Veldhuisen, Dirk, van der Meer, Peter, Roze, Joline, Jaarsma, Tiny, Schalkwijk, Casper, van der Horst, Iwan, Hillege, Hans and Voors, Adriaan. (2012). The role of advanced glycation end-products and their receptor on outcome in heart failure patients with preserved and reduced ejection fraction. American Heart Journal. 164(5), pp. 742 - 749. https://doi.org/10.1016/j.ahj.2012.07.027
Determinants of heart failure self-care : A systematic literature review
Oosterom-Calo, R., van Ballegooijen, A., Terwee, C., te Velde, S., Brouwer, I., Jaarsma, Trijntje and Brug, J. (2012). Determinants of heart failure self-care : A systematic literature review. Heart Failure Reviews. 17(3), pp. 367 - 385. https://doi.org/10.1007/s10741-011-9292-9
Quality of life is impaired similarly in heart failure patients with preserved and reduced ejection fraction
Hoekstra, Tialda, Lesman-Leegte, Ivonne, van Veldhuisen, Dirk, Sanderman, Robbert and Jaarsma, Tiny. (2011). Quality of life is impaired similarly in heart failure patients with preserved and reduced ejection fraction. European Journal of Heart Failure. 13(9), pp. 1013 - 1018. https://doi.org/10.1093/eurjhf/hfr072
Perceived adverse drug events in heart failure : Patients' perception and related factors
De Smedt, R., Haaijer-Ruskamp, F., Groenier, K., van der Meer, K. and Jaarsma, Tiny. (2011). Perceived adverse drug events in heart failure : Patients' perception and related factors. Cardiovascular Nursing, The Journal of. 26(3), pp. 250 - 260. https://doi.org/10.1097/JCN.0b013e318200ed94
Clinical and prognostic effects of atrial fibrillation in heart failure patients with reduced and preserved left ventricular ejection fraction
Linssen, Gerard, Rienstra, Michiel, Jaarsma, Tiny, Voors, Adriaan, van Gelder, Isabelle, Hillege, Hans and van Veldhuisen, Dirk. (2011). Clinical and prognostic effects of atrial fibrillation in heart failure patients with reduced and preserved left ventricular ejection fraction. European Journal of Heart Failure. 13(10), pp. 1111 - 1120. https://doi.org/10.1093/eurjhf/hfr066
The value of INnovative ICT guided disease management combined with Telemonitoring in OUtpatient clinics for Chronic Heart failure patients. Design and methodology of the IN TOUCH study: A multicenter randomised trial
de Vries, Arjen, de Jong, Richard, van der Wal, Martje, Jaarsma, Trijntje, van Dijk, Rene and Hillege, Hans. (2011). The value of INnovative ICT guided disease management combined with Telemonitoring in OUtpatient clinics for Chronic Heart failure patients. Design and methodology of the IN TOUCH study: A multicenter randomised trial. BMC Health Services Research. 11(167), pp. 1 - 7. https://doi.org/10.1186/1472-6963-11-167
The global burden of cardiovascular disease
Deaton, Christi, Froelicher, Erika Sivarajan, Wu, Lai Har, Ho, Camille, Shishani, Kawkab and Jaarsma, Tiny. (2011). The global burden of cardiovascular disease. European Journal of Cardiovascular Nursing. 10(SUPPL. 2), pp. 5 - 13. https://doi.org/10.1016/S1474-5151(11)00111-3
Social support and self-care in heart failure
Gallagher, Robyn, Luttik, Marie-Louise and Jaarsma, Trijntje. (2011). Social support and self-care in heart failure. Cardiovascular Nursing, The Journal of. 26(6), pp. 439 - 445. https://doi.org/10.1097/JCN.0b013e31820984e1
Predictive value of plasma galectin-3 levels in heart failure with reduced and preserved ejection fraction
de Boer, Rudolf, Lok, Dirk, Jaarsma, Tiny, van der Meer, Peter, Voors, Adriaan, Hillege, Hans and van Veldhuisen, Dirk. (2011). Predictive value of plasma galectin-3 levels in heart failure with reduced and preserved ejection fraction. Annals of Medicine. 43(1), pp. 60 - 68. https://doi.org/10.3109/07853890.2010.538080
The body of knowledge on compliance in heart failure patients : We are not there yet
Nieuwenhuis, Maurice, van der Wal, Martje and Jaarsma, Trijntje. (2011). The body of knowledge on compliance in heart failure patients : We are not there yet. Cardiovascular Nursing, The Journal of. 26(1), pp. 21 - 28. https://doi.org/10.1097/JCN.0b013e3181e27a2d
Educational level and the quality of life of heart failure patients : A longitudinal study
Barbareschi, Giorgio, Sanderman, Robbert, Lesman-Leegte, Ivonne, van Veldhuisen, Dirk and Jaarsma, Trijntje. (2011). Educational level and the quality of life of heart failure patients : A longitudinal study. Journal of Cardiac Failure. 17(1), pp. 47 - 53. https://doi.org/10.1016/j.cardfail.2010.08.005
Depressive symptoms and inflammation in patients hospitalized for heart failure
Johansson, Peter, Lesman-Leegte, Ivonne, Svensson, Erland, Voors, Adriaan, van Veldhuisen, Dirk and Jaarsma, Tiny. (2011). Depressive symptoms and inflammation in patients hospitalized for heart failure. American Heart Journal. 161(6), pp. 1053 - 1059. https://doi.org/10.1016/j.ahj.2011.03.011
Psychometric properties of the chinese version of the european heart failure self-care behaviour scale
Yu, D., Lee, D., Thompson, David R., Jaarsma, T., Woo, J. and Leung, E.. (2011). Psychometric properties of the chinese version of the european heart failure self-care behaviour scale. International Journal of Nursing Studies. 48(4), pp. 458 - 467. https://doi.org/10.1016/j.ijnurstu.2010.08.011
Self-reported adverse drug events and the role of illness perception and medication beliefs in ambulatory heart failure patients : A cross-sectional survey
De Smedt, Ruth, Denig, Petra, van der Meer, Klaas, Haaijer-Ruskamp, Flora and Jaarsma, Tiny. (2011). Self-reported adverse drug events and the role of illness perception and medication beliefs in ambulatory heart failure patients : A cross-sectional survey. International Journal of Nursing Studies. 48(12), pp. 1540 - 1550. https://doi.org/10.1016/j.ijnurstu.2011.05.014
Which interventions are used by health care professionals to enhance medication adherence in cardiovascular patients? A survey of current clinical practice
Berben, Lut, Bogert, Laura, Leventhal, Marcia E., Fridlund, Bengt, Jaarsma, Tiny, Norekvål, Tone M., Smith, Karen, Strömberg, Anna, Thompson, David R. and De Geest, Sabina. (2011). Which interventions are used by health care professionals to enhance medication adherence in cardiovascular patients? A survey of current clinical practice. European Journal of Cardiovascular Nursing (print version). 10(1), pp. 14 - 21. https://doi.org/10.1016/j.ejcnurse.2010.10.004
Factors associated with patient delay in seeking care after worsening symptoms in heart failure patients
Nieuwenhuis, Maurice, Jaarsma, Tiny, van Veldhuisen, Dirk and van der Wal, Martje. (2011). Factors associated with patient delay in seeking care after worsening symptoms in heart failure patients. Journal of Cardiac Failure. 17(8), pp. 657 - 663. https://doi.org/10.1016/j.cardfail.2011.04.004
Self-care management of heart failure :Practical recommendations from the patient care committee of the heart failure association of the European society of cardiology
Lainscak, Mitja, Blue, Lynda, Andrew, Clark, Dahlstrom, Ulf, Dickstein, Kenneth, Ekman, Inger, McDonagh, Theresa, McMurray, J, Ryder, Mary, Stromberg, Anna and Jaarsma, Tiny. (2011). Self-care management of heart failure :Practical recommendations from the patient care committee of the heart failure association of the European society of cardiology. European Journal of Heart Failure. 13(2), pp. 115 - 126. https://doi.org/10.1093/eurjhf/hfq219
The advisory brought to practice : Routine screening on depression (and anxiety) in coronary heart disease; consequences and implications
Luttik, M., Jaarsma, Trijntje, Sanderman, Robbert and Fleer, J.. (2011). The advisory brought to practice : Routine screening on depression (and anxiety) in coronary heart disease; consequences and implications. European Journal of Cardiovascular Nursing. 10(4), pp. 228 - 233. https://doi.org/10.1016/j.ejcnurse.2010.08.005
Vitamin D status and outcomes in heart failure patients
Liu, Licette, Voors, Adriaan, van Veldhuisen, Dirk, van der Veer, Eveline, Belonje, Anne, Szymanski, Mariusz, Sillje, Herman, van Gilst, Wiek, Jaarsma, Tiny and de Boer, Rudolf. (2011). Vitamin D status and outcomes in heart failure patients. European Journal of Heart Failure. 13(6), pp. 619 - 625. https://doi.org/10.1093/eurjhf/hfr032
Depression and the delay between symptom onset and hospitalization in heart failure patients
Johansson, Peter, Nieuwenhuis, Maurice, Lesman-Leegte, Ivonne, van Veldhuisen, Dirk and Jaarsma, Tiny. (2011). Depression and the delay between symptom onset and hospitalization in heart failure patients. European Journal of Heart Failure. 13(2), pp. 214 - 219. https://doi.org/10.1093/eurjhf/hfq200
Sexual counselling of cardiac patients in Europe : Culture matters
Goossens, E., Norekval, T M, Faerch, J., Hody, L., Olsen, S S, Darmer, M R, Jaarsma, T and Moons, P. (2011). Sexual counselling of cardiac patients in Europe : Culture matters. International Journal of Clinical Practice (print). 65(10), pp. 1092 - 1099. https://doi.org/10.1111/j.1742-1241.2011.02756.x
Effective communication and ethical consent in decisions related to ICDs
Clark, Alexander Michael, Jaarsma, Tiny, Strachan, P., Davidson, P., Megan, J., Beattie, J. M., Duncan, A. S., Ski, Chantal and Thompson, David R.. (2011). Effective communication and ethical consent in decisions related to ICDs. Nature Reviews Cardiology (print version). 8(12), pp. 694 - 705. https://doi.org/10.1038/nrcardio.2011.101
Lack of prognostic value of type D personality for mortality in a large sample of heart failure patients
Coyne, James, Jaarsma, Tiny, Luttik, Marie-Louise, van Sonderen, Eric, van Veldhuisen, Dirk and Sanderman, Robbert. (2011). Lack of prognostic value of type D personality for mortality in a large sample of heart failure patients. Psychosomatic Medicine. 73(7), pp. 557 - 562. https://doi.org/10.1097/PSY.0b013e318227ac75
Heart failure patients monitored with telemedicine : Patient satisfaction, a review of the literature
Kraai, I., Luttik, M., de Jong, Richard, Jaarsma, Tiny and Hillege, Hans. (2011). Heart failure patients monitored with telemedicine : Patient satisfaction, a review of the literature. Journal of Cardiac Failure. https://doi.org/10.1016/j.cardfail.2011.03.009
A physiotherapist-delivered, combined exercise and pain coping skills training intervention for individuals with knee osteoarthritis: A pilot study
Hunt, Douwe, Abdul Pari, Ances, Jaarsma, Trijntje, Luttik, Marie-Louise, van Veldhuisen, Dirk, Hillege, Hans and Buskens, Erik. (2011). A physiotherapist-delivered, combined exercise and pain coping skills training intervention for individuals with knee osteoarthritis: A pilot study. The Knee. 162(6), pp. 1096 - 1104. https://doi.org/10.1016/j.knee.2012.07.008
What works in chronic care management: The case of heart failure
Sochalski, Julie, Jaarsma, Tiny, Krumholz, Harlan M., Laramee, Ann, McMurray, John J.V., Naylor, Mary D., Rich, Michael W., Riegel, Barbara and Stewart, Simon. (2009). What works in chronic care management: The case of heart failure. Health Affairs. 28(1), pp. 179 - 189. https://doi.org/10.1377/hlthaff.28.1.179
What do cardiovascular nurses know about the hematological management of eisenmenger syndrome?
Moons, Philip, Fleck, Desiree, Jaarsma, Tiny, Norekval, Tone, Smith, Karen, Stromberg, Anna, Thompson, David and Budts, Werner. (2009). What do cardiovascular nurses know about the hematological management of eisenmenger syndrome? European Journal of Cardiovascular Nursing. 8(4), pp. 246 - 250. https://doi.org/10.1016/j.ejcnurse.2009.05.002
Heart failure management programmes in Europe
Jaarsma, Tiny, Stromberg, Anna, De Geest, Sabina, Fridlund, Bengt, Heikkila, Johanna, Martensson, Jan, Moons, Philip, Reimer, Wilma Scholte, Smith, Karen, Stewart, Simon and Thompson, David. (2006). Heart failure management programmes in Europe. European Journal of Cardiovascular Nursing. 5(3), pp. 197 - 205. https://doi.org/10.1016/j.ejcnurse.2006.04.002
Pharmacological treatment and perceived health status during 1- year follow-up in patients diagnosed with coronary artery disease, but in ineligible for revascularization. Results from the Euro Heart Survey on Coronary Revascularization
Lenzen, Mattie, Reimer, Wilma Scholte, Norekval, Tone, De Geest, Sabina, Fridlund, Bengt, Heikkila, Johanna, Jaarsma, Tiny, Martensson, Jan, Moons, Philip, Smith, Karen, Stewart, Simon, Stromberg, Anna, Thompson, David and Wijns, William. (2006). Pharmacological treatment and perceived health status during 1- year follow-up in patients diagnosed with coronary artery disease, but in ineligible for revascularization. Results from the Euro Heart Survey on Coronary Revascularization. European Journal of Cardiovascular Nursing. 5(2), pp. 115 - 121. https://doi.org/10.1016/j.ejcnurse.2006.01.003
Nurse specialists in adult congenital heart disease: the current status in Europe
Moons, Philip, Reimer, Wilma Scholte, De Geest, Sabina, Fridlund, Bengt, Heikkila, Johanna, Jaarsma, Tiny, Martensson, Jan, Smith, Karen, Stewart, Simon, Stromberg, Anna and Thompson, David. (2006). Nurse specialists in adult congenital heart disease: the current status in Europe. European Journal of Cardiovascular Nursing. 5(1), pp. 60 - 67. https://doi.org/10.1016/j.ejcnurse.2005.10.010
Cardiovascular risk estimation by professionally active cardiovascular nurses: results from the Basel 2005 Nurses Cohort
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