Identification, classification and assessment of dyskinesia in children with cerebral palsy : A survey of clinicians

Journal article


Stewart, Kirsty, Tavender, Emma, Rice, James and Harvey, Adrienne. (2018) Identification, classification and assessment of dyskinesia in children with cerebral palsy : A survey of clinicians. Journal of Paediatrics and Child Health. 54(4), pp. 432-438. https://doi.org/10.1111/jpc.13749
AuthorsStewart, Kirsty, Tavender, Emma, Rice, James and Harvey, Adrienne
Abstract

Aim
The aims of this study were to investigate clinicians’ knowledge, and barriers they perceive exist, relating to the identification and measurement of dyskinesia (dystonia/choreoathetosis) in children with cerebral palsy (CP) and to explore educational needs regarding improving identification and assessment of dyskinesia.

Methods
This was a cross-sectional online survey of clinicians working with children with CP. Data analysis was descriptive, with qualitative analysis of unstructured questions.

Results
In total, 163 completed surveys from Australian clinicians were analysed. Respondents were allied health (n = 140) followed by medical doctors (n = 18) working mainly in tertiary hospitals and not-for-profit organisations. Hypertonia subtypes and movement disorders seen in children with CP appear to be identified by clinicians, although limited knowledge about dyskinesia and access to training were reported as significant barriers to accurate identification. Despite knowledge of available measurement scales, only a small percentage were used clinically and reported to be only somewhat useful or not useful at all. Barriers identified for use of scales included limited training opportunities and knowledge of scales and lack of confidence in their use.

Conclusion
A lack of confidence in identifying and measuring movement disorders in children with CP was reported by Australian clinicians. It was identified that a greater understanding of dyskinetic CP and the tools available to identify and measure it would be valuable in clinical practice. The results of this survey will inform the development of a ‘Toolbox’ to help identify, classify and measure dyskinetic CP and its impact on activity and participation using the framework of the International Classification of Functioning, Disability and Health.

Keywordscerebral palsy; dyskinesia (dystonia/choreoathetosis); paediatrics
Year2018
JournalJournal of Paediatrics and Child Health
Journal citation54 (4), pp. 432-438
PublisherBlackwell Publishing
ISSN1034-4810
Digital Object Identifier (DOI)https://doi.org/10.1111/jpc.13749
Scopus EID2-s2.0-85032784572
Research or scholarlyResearch
Page range432-438
FunderNational Health and Medical Research Council
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online31 Oct 2017
Publication process dates
Accepted05 Sep 2017
Deposited15 Jul 2021
Grant IDNHMRC/1057997
Permalink -

https://acuresearchbank.acu.edu.au/item/8w5z1/identification-classification-and-assessment-of-dyskinesia-in-children-with-cerebral-palsy-a-survey-of-clinicians

Restricted files

Publisher's version

  • 2
    total views
  • 0
    total downloads
  • 2
    views this month
  • 0
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

The impact of intrathecal baclofen therapy on health-related quality of life for children with marked hypertonia
Stewart, Kirsty, Copeland, Lisa and Lewis, Jennifer. (2020) The impact of intrathecal baclofen therapy on health-related quality of life for children with marked hypertonia. Developmental Neurorehabilitation. 23(8), pp. 542-547. https://doi.org/10.1080/17518423.2020.1753841
Implementing accurate identification and measurement of dyskinesia in cerebral palsy into clinical practice : A knowledge translation study
Stewart, Kirsty, de Vries, Tessa and Harvey, Adrienne. (2019) Implementing accurate identification and measurement of dyskinesia in cerebral palsy into clinical practice : A knowledge translation study. Journal of Paediatrics and Child Health. 55(11), pp. 1351-1356. https://doi.org/10.1111/jpc.14420
Intrathecal baclofen therapy in children : An analysis of individualized goals
Liew, Peck Yee, Stewart, Kirsty, Khan, Debra, Arnup, Sarah Jane and Scheinberg, Adam. (2018) Intrathecal baclofen therapy in children : An analysis of individualized goals. 60(4), pp. 367-373. https://doi.org/10.1111/dmcn.13660
Using family and staff experiences of a botulinum toxin-A service to improve service quality
Burton, K. L. O., Bau, K., Lewis, J., Aroyan, K. R., Botha, B., Botman, A. G. M., Stewart, K., Waugh, M. C. A. and Paget, S. P.. (2017) Using family and staff experiences of a botulinum toxin-A service to improve service quality. Child: Care, Health and Development. 43(6), pp. 847-853. https://doi.org/10.1111/cch.12500
A systematic review of scales to measure dystonia and choreoathetosis in children with dyskinetic cerebral palsy
Stewart, Kirsty, Harvey, Adrienne and Johnston, Leanne M.. (2017) A systematic review of scales to measure dystonia and choreoathetosis in children with dyskinetic cerebral palsy. Developmental Medicine and Child Neurology. 59(8), pp. 786-795. https://doi.org/10.1111/dmcn.13452
Grading and quantification of upper extremity function in children with spasticity
Wallen, Margaret and Stewart, Kirsty. (2016) Grading and quantification of upper extremity function in children with spasticity. Seminars in Plastic Surgery. 30(1), pp. 5 - 13. https://doi.org/10.1055/s-0035-1571257
Upper limb function in everyday life of children with cerebral palsy: Description and review of parent report measures
Wallen, Margaret and Stewart, Kirsty. (2015) Upper limb function in everyday life of children with cerebral palsy: Description and review of parent report measures. Disability and Rehabilitation. 37(15), pp. 1353 - 1361. https://doi.org/10.3109/09638288.2014.963704