Self-reported quality of life following stroke : a systematic review of instruments with a focus on their psychometric properties

Journal article

Cameron, Lisa J., Wales, Kylie, Casey, Angela, Pike, Shannon, Jolliffe, Laura, Schneider, Emma J., Christie, Lauren J., Ratcliffe, Julie and Lannin, Natasha. (2022). Self-reported quality of life following stroke : a systematic review of instruments with a focus on their psychometric properties. Quality of Life Research. 31(2), pp. 329-342. https://doi.org/10.1007/s11136-021-02944-9
AuthorsCameron, Lisa J., Wales, Kylie, Casey, Angela, Pike, Shannon, Jolliffe, Laura, Schneider, Emma J., Christie, Lauren J., Ratcliffe, Julie and Lannin, Natasha
Abstract

Purpose
To evaluate the psychometric properties of common health-related quality-of-life instruments used post stroke and provide recommendations for research and clinical use with this diagnostic group.

Methods
A systematic review of the psychometric properties of the five most commonly used quality-of-life measurement tools (EQ-5D, SF-36, SF-6D, AQoL, SS-QOL) was conducted. Electronic searches were performed in MEDLINE, CINAHL, and EMBASE on November 27th 2019. Two authors screened papers against the inclusion criteria and where consensus was not reached, a third author was consulted. Included papers were appraised using the COnsensus-based Standards for the selection of health status Measurement INstruments (COSMIN) checklist and findings synthesized to make recommendations.

Results
A total of n = 50,908 papers were screened and n = 45 papers reporting on 40 separate evaluations of psychometric properties met inclusion criteria (EQ-5D = 19, SF-36 = 16, SF-6D = 4, AQoL = 2, SS-QOL = 4). Studies reported varied psychometric quality of instruments, and results show that psychometric properties of quality-of-life instruments for the stroke population have not been well established. The strongest evidence was identified for the use of the EQ-5D as a quality-of-life assessment for adult stroke survivors.

Conclusions
This systematic evaluation of the psychometric properties of self-reported quality-of-life instruments used with adults after stroke suggests that validity across tools should not be assumed. Clinicians and researchers alike may use findings to help identify the most valid and reliable measurement instrument for understanding the impact of stroke on patient-reported quality of life.

Keywordsquality of life; stroke; validity; outcome measures; rehabilitation; neuroscience
Year01 Jan 2022
JournalQuality of Life Research
Journal citation31 (2), pp. 329-342
PublisherSpringer-Verlag Dordrecht
ISSN0962-9343
Digital Object Identifier (DOI)https://doi.org/10.1007/s11136-021-02944-9
Web address (URL)https://link.springer.com/article/10.1007/s11136-021-02944-9#Abs1
Open accessPublished as non-open access
Research or scholarlyResearch
Page range329-342
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All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online10 Jul 2021
Publication process dates
Accepted06 Jul 2021
Deposited09 Dec 2024
Supplemental file
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File Access Level
Controlled
Additional information

© The Author(s), under exclusive licence to Springer Nature Switzerland AG 2021

Funding: Natasha Lannin is supported by National Heart Foundation of Australia Future Leader Fellowship (102055).

Place of publicationNetherlands
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