The experiences of informal caregivers of people with dementia in web-based psychoeducation programs : Systematic review and metasynthesis

Journal article


Yu, Ying, Xiao, Lily, Ullah, Shahid, Meyer, Claudia, Wang, Jing, Pot, Anne Margriet and Shifaza, Fathimath. (2023). The experiences of informal caregivers of people with dementia in web-based psychoeducation programs : Systematic review and metasynthesis. JMIR Aging. 6, p. Article e47152. https://doi.org/10.2196/47152
AuthorsYu, Ying, Xiao, Lily, Ullah, Shahid, Meyer, Claudia, Wang, Jing, Pot, Anne Margriet and Shifaza, Fathimath
Abstract

Background:
Informal caregivers of people living with dementia experience a higher level of physical and mental stress compared with other types of caregivers. Psychoeducation programs are viewed as beneficial for building caregivers’ knowledge and skills and for decreasing caregiver stress.

Objective:
This review aimed to synthesize the experiences and perceptions of informal caregivers of people with dementia when participating in web-based psychoeducation programs and the factors that enable and impede informal caregivers’ engagement in web-based psychoeducation programs.

Methods:
This review followed the Joanna Briggs Institute protocol of systematic review and meta-aggregation of qualitative studies. We searched 4 English databases, 4 Chinese databases, and 1 Arabic database in July 2021.

Results:
A total of 9 studies written in English were included in this review. From these studies, 87 findings were extracted and grouped into 20 categories. These categories were further synthesized into 5 findings: web-based learning as an empowering experience, peer support, satisfactory and unsatisfactory program content, satisfactory and unsatisfactory technical design, and challenges encountered in web-based learning.

Conclusions:
High-quality and carefully designed web-based psychoeducation programs offered positive experiences for informal caregivers of people living with dementia. To meet broader caregiver education and support needs, program developers should consider information quality and relevancy, the support offered, individual needs, flexibility in delivery, and connectedness between peers and program facilitators.

Keywordsinformal caregivers; dementia; psychoeducation; online; web based; qualitative research; systematic review; metasynthesis
Year2023
JournalJMIR Aging
Journal citation6, p. Article e47152
PublisherJMIR Publications Inc.
ISSN2561-7605
Digital Object Identifier (DOI)https://doi.org/10.2196/47152
PubMed ID37247218
Scopus EID2-s2.0-85164491832
PubMed Central IDPMC10262022
Open accessPublished as ‘gold’ (paid) open access
Page range1-18
FunderNational Health and Medical Research Council (NHMRC)
Dementia Centre for Research Collaboration (DCRC)
Medical Research Future Fund (MRFF), Australian Government
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online29 May 2023
Publication process dates
Accepted01 May 2023
Deposited02 Apr 2025
Additional information

© Ying Yu, Lily Xiao, Shahid Ullah, Claudia Meyer, Jing Wang, Anne Margriet Pot, Fathimath Shifaza. Originally published in JMIR Aging (https://aging.jmir.org), 29.05.2023.

This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Aging, is properly cited. The complete bibliographic information, a link to the original publication on https://aging.jmir.org, as well as this copyright and license information must be included.

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