Health professionals perspectives of care for seriously ill children living at home

Journal article


Ward, Cynthia, Evans, Alicia, Ford, Rosemary and Glass, Nel 2015. Health professionals perspectives of care for seriously ill children living at home. Nursing Praxis in New Zealand. 31 (2), pp. 25 - 34.
AuthorsWard, Cynthia, Evans, Alicia, Ford, Rosemary and Glass, Nel
Abstract

The aim of this article is to report the findings on health professional's perceptions of beneficial care for seriously ill children and their families. This paper represents one component of a PhD qualitative evaluation study investigation care provided by a child health Trust in New Zealand. The Trust provides an integrated care model of nursing and psychological support to children with complex health needs and their families who live at home. The research methodology was informed by critical realism. The research method chosen was a focus group. There were twelve health professional participants who worked in collaboration with the Trust team to provide care to seriously ill children. Data were analysed using a realist analysis to identify initial key aspects and subsequent themes. Five themes were identified: collaboration between health providers; effective communication; expert skills; support for colleagues and, after-hours care availability. Participants perceived the Trust model of care to be integral for children with serious illness, and their families in the community. This study extends our current understanding of models of care for children with complex health needs. It has relevance to health providers who are first 'on call' for children with serious illness and their families as well as those involved with continuity of care.

Year2015
JournalNursing Praxis in New Zealand
Journal citation31 (2), pp. 25 - 34
ISSN0112-7438
Page range25 - 34
Research GroupSchool of Nursing, Midwifery and Paramedicine
Permalink -

https://acuresearchbank.acu.edu.au/item/850qx/health-professionals-perspectives-of-care-for-seriously-ill-children-living-at-home

Restricted files

Publisher's version

  • 0
    total views
  • 0
    total downloads
  • 0
    views this month
  • 0
    downloads this month

Export as

Related outputs

The governance of sexuality in a Recovery-oriented mental health service: Psychosis, consumers and clinical approaches
Evans, Alicia M., Quinn, Chris and McKenna, Brian 2020. The governance of sexuality in a Recovery-oriented mental health service: Psychosis, consumers and clinical approaches. Journal of Psychiatric and Mental Health Nursing. 27 (2), pp. 194 - 202. https://doi.org/10.1111/jpm.12569
Registered nurse buddies: educators by proxy?
Rebeiro, Geraldine, Evans, Alicia, Edward, Karen-Leigh and Chapman, Rose 2017. Registered nurse buddies: educators by proxy? Nurse Education Today. 55, pp. 1 - 4. https://doi.org/10.1016/j.nedt.2017.04.019
From student to practicing oncology nurse: A novel collaboration to create a transition to practice program in ambulatory cancer care
Dorcy, Kathleen Shannon, Elgar, Suni, Heye, Diane, Ford, Rosemary, Bohl, Sharol, Eisenberg, Seth, Coumar, Arlyce, Pearson, Pamela, Pugh, Julianne, Mather, Karla and Matthews, Debra Wise 2016. From student to practicing oncology nurse: A novel collaboration to create a transition to practice program in ambulatory cancer care. Clinical Journal of Oncology Nursing. 20 (3), pp. 298 - 302. https://doi.org/10.1188/16.CJON.298-302
Risk or Right': A discourse analysis of midwifery and obstetric colleges' homebirth position statements
Licqurish, Sharon Maree and Evans, Alicia Maree 2016. Risk or Right': A discourse analysis of midwifery and obstetric colleges' homebirth position statements. Nursing Inquiry. 23 (1), pp. 86 - 94. https://doi.org/10.1111/nin.12111
A systematic review of the effect of telephone, internet or combined support for carers of people living with Alzheimer's, vascular or mixed dementia in the community
Jackson, David Andrew, Roberts, Gail, Wu, Min Lin, Ford, Rosemary and Doyle, Colleen Joy 2016. A systematic review of the effect of telephone, internet or combined support for carers of people living with Alzheimer's, vascular or mixed dementia in the community. Archives of Gerontology and Geriatrics. 66 (September-October), pp. 218 - 236. https://doi.org/10.1016/j.archger.2016.06.013
Moments of speaking and silencing : Nurses share their experiences of manual handling in healthcare
Kay, Kate, Evans, Alicia and Glass, Nel 2015. Moments of speaking and silencing : Nurses share their experiences of manual handling in healthcare. Collegian. 22 (1), pp. 61 - 70. https://doi.org/10.1016/j.colegn.2013.11.005
Interpersonal relationships between registered nurses and student nurses in the clinical setting - A systematic integrative review
Rebeiro, Geraldine, Edward, Karen-Leigh, Chapman, Rose and Evans, Alicia 2015. Interpersonal relationships between registered nurses and student nurses in the clinical setting - A systematic integrative review. Nurse Education Today. 35, pp. 1206 - 1211. https://doi.org/10.1016/j.nedt.2015.06.012
The electronic self report assessment and intervention for cancer: Promoting patient verbal reporting of symptom and quality of life issues in a randomized controlled trial
Berry, Donna L., Hong, Fangxin, Halpenny, Barbara, Partridge, Anne, Fox, Erica, Fann, Jesse R., Wolpin, Seth, Lober, William B., Bush, Nigel, Parvathaneni, Upendra, Amtmann, Dagmar and Ford, Rosemary 2014. The electronic self report assessment and intervention for cancer: Promoting patient verbal reporting of symptom and quality of life issues in a randomized controlled trial. BMC Cancer. 14 (1), pp. 1 - 9. https://doi.org/10.1186/1471-2407-14-513
Slavery and jouissance: Analysing complaints of sufferring in UK and Australian nurses' talk about their work
Evans, Alicia Maree and Traynor, Michael 2014. Slavery and jouissance: Analysing complaints of sufferring in UK and Australian nurses' talk about their work. Nursing Philosophy. 15 (3), pp. 192 - 200. https://doi.org/10.1111/nup.12051
Anxiety and surplus in nursing practice: Lessons from Lacan and Bataille
Evans, Alicia Maree, Glass, Nel E. and Traynor, Michael 2014. Anxiety and surplus in nursing practice: Lessons from Lacan and Bataille. Nursing Philosophy. 15 (3), pp. 183 - 191. https://doi.org/10.1111/nup.12049
A simulated wilderness exercise: The development of relational competence in paramedic students
Ford, Rosemary, Webb, Helen Lesley, Allen-Craig, Sandra Joan, Goodwin, Valerie Ann, D'Antonio, Jenny and Lofts, Charmane 2014. A simulated wilderness exercise: The development of relational competence in paramedic students. Journal of Paramedic Practice. 6 (11), pp. 574 - 583. https://doi.org/10.12968/jpar.2014.6.11.574
It's not about the hoist: A narrative literature review of manual handling in healthcare
Kay, Kate, Glass, Nel E. and Evans, Alicia 2014. It's not about the hoist: A narrative literature review of manual handling in healthcare. Journal of Research in Nursing. 19 (3), pp. 226 - 245. https://doi.org/10.1177/1744987112455423
An exploration of jealousy in nursing: A Kleinian analysis
Evans, Alicia Maree, Traynor, Michael and Glass, Nel E. 2014. An exploration of jealousy in nursing: A Kleinian analysis. Nursing Inquiry. 21 (2), pp. 171 - 178. https://doi.org/10.1111/nin.12036
Electronic self-report assessment for cancer and self-care support: Results of a multicenter randomized trial
Berry, Donna L., Hong, Fangxin, Halpenny, Barbara, Partridge, Anne H., Fann, Jesse R., Wolpin, Seth, Lober, William B., Bush, Nigel E., Parvathaneni, Upendra, Back, Anthony L., Amtmann, Dagmar and Ford, Rosemary 2014. Electronic self-report assessment for cancer and self-care support: Results of a multicenter randomized trial. Journal of Clinical Oncology. 32 (3), pp. 199 - 205. https://doi.org/10.1200/JCO.2013.48.6662
Digger’s Trail Wilderness Exercise (DWTE): A work-integrated experience for paramedic students
Webb, Helen Lesley, Allen-Craig, Sandra Joan, Ford, Rosemary, Williams, Paula Elizabeth and Goodwin, Valerie Ann 2014. Digger’s Trail Wilderness Exercise (DWTE): A work-integrated experience for paramedic students. K. Moore (ed.) 2014 ACEN National Conference. Australia: Australian Collaborative Education Network (ACEN) Limited. pp. 16 - 20
Decision to transfer to hospital from the residential aged care setting: A systematic review of qualitative evidence exploring residential aged care staff experiences
Laging, Bridget, Bauer, Michael, Ford, Rosemary and Nay, Rhonda 2014. Decision to transfer to hospital from the residential aged care setting: A systematic review of qualitative evidence exploring residential aged care staff experiences. JBI Database of Systematic Reviews and Implementation Reports. 12 (2), pp. 263 - 388. https://doi.org/10.11124/jbisrir-2014-1141
Categorising the nurse-researcher during fieldwork : 'one of us' or 'one of them'?
Evans, Alicia, Pereira, David and Parker, Judith 2013. Categorising the nurse-researcher during fieldwork : 'one of us' or 'one of them'? Journal of Research in Nursing. https://doi.org/10.1177/1744987112451577
Reconceptualising manual handling : Foundations for practice change
Kay, Kate, Glass, Narelle and Evans, Alicia 2012. Reconceptualising manual handling : Foundations for practice change. Journal of Nursing Education and Practice. 2 (3), pp. 203 - 212. https://doi.org/10.5430/jnep.v2n3p203
Implementation of evidence-based treatment protocols to manage fever, hyperglycaemia, and swallowing dysfunction in acute stroke (QASC) :a cluster randomised controlled trial
Middleton, Sandy, McElduff, P., Ward, J., Grimshaw, J., Dale, S., D'Este, C., Drury, P., Griffiths, R., Cheung, N., Quinn, C., Evans, M., Cadilhac, D. and Levi, C. 2011. Implementation of evidence-based treatment protocols to manage fever, hyperglycaemia, and swallowing dysfunction in acute stroke (QASC) :a cluster randomised controlled trial. The Lancet. 378 (9804). https://doi.org/10.1016/S0140-6736(11)61485-2
Death, dependency and health status 90 days following hospital admission for acute stroke in NSW
Middleton, Sandy, Levi, C., Ward, J., Grimshaw, J., Griffiths, R., D'Este, C., Dale, S., Quinn, C., Evans, M., Cadilhac, D. and McElduff, P. 2011. Death, dependency and health status 90 days following hospital admission for acute stroke in NSW. Internal Medicine Journal. 41 (10), pp. 736 - 743. https://doi.org/10.1111/j.1445-5994.2010.02330.x
Governing student assessment: Administrative rules, silenced academics and performing students
Evans, Alicia Maree 2011. Governing student assessment: Administrative rules, silenced academics and performing students. Assessment and Evaluation in Higher Education. 36 (2), pp. 213 - 223. https://doi.org/10.1080/02602930903277727
An analysis of nurses' views of harm reduction measures and other treatments for the problems associated with illicit drug use
Ford, Rosemary 2010. An analysis of nurses' views of harm reduction measures and other treatments for the problems associated with illicit drug use. Australian Journal of Advanced Nursing. 28 (1), pp. 14 - 24.
Governing post-operative pain
Evans, Alicia 2010. Governing post-operative pain. Aporia: the nursing journal. 2 (3), pp. 24 - 31. https://doi.org/Canada
Strange yet compelling: Anxiety and abjection in hospital nursing
Evans, Alicia 2010. Strange yet compelling: Anxiety and abjection in hospital nursing. in: Abjectly Boundless: Boundaries, Bodies and Health Work United Kingdom: Ashgate Publishing Limited. pp. 199 - 212
Lessons from the field: An examination of count errors in the operating theatre
Butler, Margaret, Ford, Rosemary, Boxer, Elaine and Sutherland-Fraser, Sally 2010. Lessons from the field: An examination of count errors in the operating theatre. ACORN : The Journal of Perioperative Nursing in Australia. 23 (3), pp. 6 - 16.
Discourses of anxiety and transference in nursing practice: The subject of knowledge
Evans, Alicia, Pereira, David and Parker, Judith 2009. Discourses of anxiety and transference in nursing practice: The subject of knowledge. Nursing Inquiry. 16 (3), pp. 251 - 260. https://doi.org/10.1111/j.1440-1800.2009.00449.x
A research routine to assess bias introduced by low response rates in postal surveys
Ford, Rosemary and Bammer, Gabriele 2009. A research routine to assess bias introduced by low response rates in postal surveys. Nurse Researcher. 17 (1), pp. 44 - 53. https://doi.org/10.7748/nr2009.10.17.1.44.c7338
Residential aged-care workers and the palliative approach: Tensions in the field
McInerney, Frances, Ford, Rosemary, Simpson, Angela and Willison, Michelle 2009. Residential aged-care workers and the palliative approach: Tensions in the field. Journal of Hospice and Palliative Nursing. 11 (6), pp. 344 - 352. https://doi.org/10.1097/NJH.0b013e3181bd03df
Improving nurses’ therapeutic attitude to patients who use illicit drugs: Workplace drug and alcohol education is not enough
Ford, Rosemary, Bammer, Gabriele and Becker, Niels 2009. Improving nurses’ therapeutic attitude to patients who use illicit drugs: Workplace drug and alcohol education is not enough. International Journal of Nursing Practice. 15, pp. 112 - 118. https://doi.org/10.1111/j.1440-172X.2009.01732.x
Occupational distress in nursing: A psychoanalytic reading of the literature
Evans, Alicia, Pereira, David and Parker, Judith 2008. Occupational distress in nursing: A psychoanalytic reading of the literature. Nursing Philosophy. 9 (3), pp. 195 - 204. https://doi.org/10.1111/j.1466-769X.2008.00356.x
Discourses of anxiety in nursing practice: A psychoanalytic case study of the change-of-shift handover ritual
Evans, Alicia, Pereira, David and Parker, Judith 2008. Discourses of anxiety in nursing practice: A psychoanalytic case study of the change-of-shift handover ritual. Nursing Inquiry. 15 (1), pp. 40 - 48. https://doi.org/10.1111/j.1440-1800.2008.00387.x
The determinants of nurses' therapeutic attitude to patients who use illicit drugs and implications for workforce development
Ford, Rosemary, Bammer, Gabriele and Becker, Niels 2008. The determinants of nurses' therapeutic attitude to patients who use illicit drugs and implications for workforce development. Journal of Clinical Nursing. 17 (18), pp. 2452 - 2462. https://doi.org/10.1111/j.1365-2702.2007.02266.x
Transference in the nurse-patient relationship
Evans, Alicia 2007. Transference in the nurse-patient relationship. Journal of Psychiatric and Mental Health Nursing. 14 (2), pp. 189 - 195. https://doi.org/10.1111/j.1365-2850.2007.01062.x
Patient or consumer? The colonization of the psychiatric clinic
Evans, Alicia 2005. Patient or consumer? The colonization of the psychiatric clinic. International Journal of Mental Health Nursing. 14 (4), pp. 285 - 289. https://doi.org/10.1111/j.1440-0979.2005.00395.x