Inclusion of marginalized groups and communities in global health research priority-setting

Journal article

Pratt, Bridget. (2019). Inclusion of marginalized groups and communities in global health research priority-setting. Journal of Empirical Research on Human Research Ethics. 14(2), pp. 169-181. https://doi.org/10.1177/1556264619833858
AuthorsPratt, Bridget
Abstract

Community engagement is gaining prominence in global health research. But community members, especially those from groups and communities that are considered disadvantaged and marginalized, rarely have a say in the agendas and priorities of the research projects that aim to help them. This article explores how to achieve their inclusion in priority-setting for global health research projects. A total of 29 in-depth interviews and one focus group were undertaken with researchers, research ethicists, community engagement practitioners, and community-based organization staff. Thematic analysis identified two core dimensions of inclusion—representation and voice—and what is necessary to realize them with marginalized groups and communities in global health research priority-setting. A set of ethical considerations is proposed to assist researchers and their partners design more inclusive priority-setting processes.

Keywordspriority-setting; health research; disadvantage; inclusion; equity; research ethics; engagement
Year2019
JournalJournal of Empirical Research on Human Research Ethics
Journal citation14 (2), pp. 169-181
PublisherSAGE Publications Inc.
ISSN1556-2646
Digital Object Identifier (DOI)https://doi.org/10.1177/1556264619833858
Scopus EID2-s2.0-85062821590
Research or scholarlyResearch
Page range169-181
FunderAustralian Research Council (ARC)
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online13 Mar 2019
Publication process dates
Deposited25 Oct 2021
ARC Funded ResearchThis output has been funded, wholly or partially, under the Australian Research Council Act 2001
Grant IDARC/DE170100414
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