A thematic analysis of influences on parents’ autism intervention decisions

Journal article

Wilson, Meghan, Whelan, Thomas, Milne, Lisa, Hamilton, David, Jacobs, Diane and Pilkington, Pamela. (2021). A thematic analysis of influences on parents’ autism intervention decisions. Research in Developmental Disabilities. 117, p. Article 104035. https://doi.org/10.1016/j.ridd.2021.104035
AuthorsWilson, Meghan, Whelan, Thomas, Milne, Lisa, Hamilton, David, Jacobs, Diane and Pilkington, Pamela
Abstract

Background
Factors impacting parents’ selection of interventions for their child on the autism spectrum need to be understood in order to better support decision-making. The aim of the current study was to explore parent-reported influences on decisions.

Method
A sample of 14 Australian parents (13 mothers; 1 father) of a child (4–11 years) diagnosed on the autism spectrum were interviewed about their decisions regarding the use of interventions. A thematic analysis was used to identify prominent themes.

Findings
A total of three themes, comprising 11 subthemes were identified. The primary themes were: finding interventions; meeting child and family needs; and acceptability and access.

Conclusion
Parents’ responses highlighted influences on decisions to use evidence-based practices (e.g., behavioural therapies and social skills programs), as well as those with limited empirical support (e.g., animal-assisted therapy and dietary intervention). Influences frequently reported in extant research were reported by parents in this study (e.g., recommendations, logistics of access, and children’s individual needs) as well as issues that warrant further investigation (e.g., coping with challenges and stress, importance of intervention intensity, and consideration of the whole family).

Keywordsautism; parents; decision-making; intervention; therapies
Year2021
JournalResearch in Developmental Disabilities
Journal citation117, p. Article 104035
PublisherElsevier Ltd
ISSN0891-4222
Digital Object Identifier (DOI)https://doi.org/10.1016/j.ridd.2021.104035
PubMed ID34329855
Scopus EID2-s2.0-85111231117
Page range1-10
FunderResearch Training Program Scholarship (RTP), Australian Government
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online28 Jul 2021
Publication process dates
Accepted13 Jul 2021
Deposited17 Oct 2023
Permalink -

https://acuresearchbank.acu.edu.au/item/8zw19/a-thematic-analysis-of-influences-on-parents-autism-intervention-decisions

Log in to edit

Restricted files

Publisher's version

  • 124
    total views
  • 0
    total downloads
  • 23
    views this month
  • 0
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

“Kids are in the middle of it” – Child protection practitioners reflect on indicators of coercive control and situational couple violence
Marwitz, U., Higgins, Daryl John and Whelan, Thomas Anthony. (2024). “Kids are in the middle of it” – Child protection practitioners reflect on indicators of coercive control and situational couple violence. Children and Youth Services Review. 160, pp. 1-10. https://doi.org/10.1016/j.childyouth.2024.107596
Perception of the portrayal of autism in Netflix's atypical within the autism community
Jones, Sandra C., Trott, Emma, Gordon, Chloe and Milne, Lisa. (2023). Perception of the portrayal of autism in Netflix's atypical within the autism community. Autism in Adulthood. 5(1), pp. 76-85. https://doi.org/10.1089/aut.2022.0013
Early maladaptive schemas, emotion regulation difficulties, and alexithymia : A systematic review and meta-analysis
Pilkington, Pamela D., Karantzas, Gery C., Faustino, Bruno and Pizarro-Campagna, Elizabeth. (2023). Early maladaptive schemas, emotion regulation difficulties, and alexithymia : A systematic review and meta-analysis. Clinical Psychology and Psychotherapy. pp. 1-14. https://doi.org/10.1002/cpp.2914
Overprotective parenting experiences and early maladaptive schemas in adolescence and adulthood : A systematic review and meta-analysis
Bruysters, Niki Yuen Fen and Pilkington, Pamela D.. (2023). Overprotective parenting experiences and early maladaptive schemas in adolescence and adulthood : A systematic review and meta-analysis. Clinical Psychology and Psychotherapy. 30(1), pp. 10-23. https://doi.org/10.1002/cpp.2776
The associations between early maladaptive schemas and adult attachment styles : A meta-analysis
Karantzas, Gery C., Younan, Rita and Pilkington, Pamela D.. (2023). The associations between early maladaptive schemas and adult attachment styles : A meta-analysis. Clinical Psychology : Science and practice. 30(1), pp. 1-20. https://doi.org/10.1037/cps0000108
Identifying the research priorities for schema therapy : A Delphi consensus study
Pilkington, Pamela D., Younan, Rita and Karantzas, Gery C.. (2023). Identifying the research priorities for schema therapy : A Delphi consensus study. Clinical Psychology and Psychotherapy. 30(2), pp. 344-356. https://doi.org/10.1002/cpp.2800
Adolescent maladaptive schemas and childhood abuse and neglect : A systematic review and meta-analysis
May, Tamara, Younan, Rita and Pilkington, Pamela. (2022). Adolescent maladaptive schemas and childhood abuse and neglect : A systematic review and meta-analysis. Clinical Psychology & Psychotherapy. 29(4), pp. 1159-1171. https://doi.org/10.1002/cpp.2712
Schema therapists’ perceptions of the influence of their early maladaptive schemas on therapy
Pilkington, Pamela D., Spicer, Liam and Wilson, Meghan. (2022). Schema therapists’ perceptions of the influence of their early maladaptive schemas on therapy. Psychotherapy Research. 32(7), pp. 833-846. https://doi.org/10.1080/10503307.2022.2038804
Recollections of parental mental illness and substance use and early maladaptive schemas in adulthood
Pilkington, Pamela, May, Tamara and Karantzas, Gery. (2022). Recollections of parental mental illness and substance use and early maladaptive schemas in adulthood. International Journal of Mental Health and Addiction. pp. 1-18. https://doi.org/10.1007/s11469-022-00969-w
The longitudinal effects of paternal perinatal depression on internalizing symptoms and externalizing behavior of their children : A systematic review and meta-analysis
Low, Jennifer, Bishop, Amy and Pilkington, Pamela D.. (2022). The longitudinal effects of paternal perinatal depression on internalizing symptoms and externalizing behavior of their children : A systematic review and meta-analysis. Mental Health and Prevention. 26, p. Article 200230. https://doi.org/10.1016/j.mhp.2022.200230
Assessing clinical competencies using the Objective Structured Clinical Examination (OSCE) in psychology training
Yap, Keong, Sheen, Jade, Nedeljkovic, Maja, Milne, Lisa, Lawrence, Katherine and Hay, Margaret. (2021). Assessing clinical competencies using the Objective Structured Clinical Examination (OSCE) in psychology training. Clinical Psychologist. 25(3), pp. 260-270. https://doi.org/10.1080/13284207.2021.1932452
Students' perspectives of early assessment tasks in their first year at university
Thomas, Theda, Jacobs, Diane, Hurley, Laurine, Martin, Jenny, Maslyuk, Svetlana, Lyall, Mark and Ryan, Matthew. (2019). Students' perspectives of early assessment tasks in their first year at university. Assessment and Evaluation in Higher Education. 44(3), pp. 398-414. https://doi.org/10.1080/02602938.2018.1513992
"Getting help for yourself is a way of helping your baby": Fathers' experiences of support for mental health and parenting in the perinatal period
Rominov, Holly, Giallo, Rebecca, Pilkington, Pamela D. and Whelan, Thomas A.. (2018). "Getting help for yourself is a way of helping your baby": Fathers' experiences of support for mental health and parenting in the perinatal period. Psychology of Men and Masculinity. 19(3), pp. 457 - 468. https://doi.org/10.1037/men0000103
A systematic review of factors related to parents’ treatment decisions for their children with autism spectrum disorders
Wilson, Meghan, Hamilton, David, Whelan, Thomas and Pilkington, Pamela. (2018). A systematic review of factors related to parents’ treatment decisions for their children with autism spectrum disorders. Research in Autism Spectrum Disorders. 48, pp. 17 - 35. https://doi.org/10.1016/j.rasd.2018.01.004
Partners to parents: Development of an online intervention for enhancing partner support and preventing perinatal depression and anxiety
Pilkington, Pamela D., Rominov, Holly, Milne, Lisa, Giallo, Rebecca and Whelan, Thomas A.. (2017). Partners to parents: Development of an online intervention for enhancing partner support and preventing perinatal depression and anxiety. Advances in Mental Health. 15(1), pp. 42 - 57. https://doi.org/10.1080/18387357.2016.1173517
Midwives' perceptions and experiences of engaging fathers in perinatal services
Rominov, Holly, Giallo, Rebecca, Pilkington, Pamela D. and Whelan, Thomas A.. (2017). Midwives' perceptions and experiences of engaging fathers in perinatal services. Women and Birth. 30(4), pp. 308 - 318. https://doi.org/10.1016/j.wombi.2016.12.002
Enhancing reciprocal partner support to prevent perinatal depression and anxiety: A Delphi consensus study
Pilkington, Pamela D., Milne, Lisa C., Cairns, Kathryn E. and Whelan, Thomas Anthony. (2016). Enhancing reciprocal partner support to prevent perinatal depression and anxiety: A Delphi consensus study. BMC Psychiatry. 16(23), pp. 1 - 11. https://doi.org/10.1186/s12888-016-0721-0
Maternal crying and postpartum distress: the moderating role of partner support
Pilkington, Pamela Doreen, Whelan, Thomas Anthony and Milne, Lisa Clare. (2016). Maternal crying and postpartum distress: the moderating role of partner support. Journal of Reproductive and Infant Psychology. 34(1), pp. 64 - 76. https://doi.org/10.1080/02646838.2015.1067884
Modifiable partner factors associated with perinatal depression and anxiety: A systematic review and meta-analysis
Pilkington, Pamela Doreen, Milne, Lisa Clare, Cairns, Kathryn E., Lewis, James and Whelan, Thomas Anthony. (2015). Modifiable partner factors associated with perinatal depression and anxiety: A systematic review and meta-analysis. Journal of Affective Disorders. 178, pp. 165 - 180. https://doi.org/10.1016/j.jad.2015.02.023
Modifiable partner factors associated with perinatal depression and anxiety : A systematic review and meta-analysis
Pilkington, Pamela, Milne, Lisa, Cairns, Kathryn, Lewis, James and Whelan, Thomas. (2015). Modifiable partner factors associated with perinatal depression and anxiety : A systematic review and meta-analysis. Journal of Affective Disorders (Print). 178, pp. 165 - 180. https://doi.org/10.1016/j.jad.2015.02.023
A review of partner-inclusive interventions for preventing postnatal depression and anxiety
Pilkington, Pamela D., Whelan, Thomas A. and Milne, Lisa C.. (2015). A review of partner-inclusive interventions for preventing postnatal depression and anxiety. Clinical Psychologist. 19(2), pp. 63 - 75. https://doi.org/10.1111/cp.12054
Effects of infant and maternal sensory processing on infant fussing, crying, and sleep
McGeorge, Kate, Milne, Lisa, Cotton, Louise and Whelan, Thomas. (2015). Effects of infant and maternal sensory processing on infant fussing, crying, and sleep. Infant Mental Health Journal. 36(3), pp. 275 - 286. https://doi.org/10.1002/jmhj
Parental factors associated with depression and anxiety in young people : A systematic review and meta-analysis
Yap, M, Pilkington, Pamela, Ryan, Siobhan M. and Jorm, Anthony Francis. (2014). Parental factors associated with depression and anxiety in young people : A systematic review and meta-analysis. Journal of Affective Disorders Reports. 156, pp. 8-23. https://doi.org/10.1016/j.jad.2013.11.007
Language and literacy subtypes in young children with a high-functioning autism spectrum disorder
Jacobs, Diane and Richdale, Amanda. (2014). Language and literacy subtypes in young children with a high-functioning autism spectrum disorder. In In J. Arcuili and J. Brock (Ed.). Communication in autism pp. 147 - 167 John Benjamins Publishing Company.
The mediating influence of hope on multidimensional perfectionism and depression
Mathew, Jaya, Dunning, Claire, Coats, Charlotte and Whelan, Thomas Anthony. (2014). The mediating influence of hope on multidimensional perfectionism and depression. Personality and Individual Differences. 70, pp. 66 - 71. https://doi.org/10.1016/j.paid.2014.06.008
Predicting literacy in children with a high-functioning autism spectrum disorder
Jacobs, Diane and Richdale, Amanda. (2013). Predicting literacy in children with a high-functioning autism spectrum disorder. Research in Developmental Disabilities. https://doi.org/10.1016/j.ridd.2013.04.007
Specific mental functions- Language (b167)
McCormack, Jane, Jacobs, Diane and Washington, Karla. (2012). Specific mental functions- Language (b167). In In A. Majnemer (Ed.). Measures for children with developmental disabilities: An ICF-CY approach pp. 129 - 153 Mac Keith Press.
Trends in long-term cardiovascular mortality and morbidity in men and women with heart failure of ischemic versus non-ischemic aetiology in Western Australia between 1990 and 2005
Teng, Tiew-Hwa Katherine, Hung, Joseph, Knuiman, Matthew, Arnolda, Leonard, Jacobs, Ian, Hobbs, Michael, Sanfilippo, Frank, Geelhoed, Elizabeth and Finn, Judith. (2012). Trends in long-term cardiovascular mortality and morbidity in men and women with heart failure of ischemic versus non-ischemic aetiology in Western Australia between 1990 and 2005. International Journal of Cardiology. 158(3), pp. 405 - 410. https://doi.org/10.1016/j.ijcard.2011.01.061
Evolved Disease Avoidance Mechanisms, Generalized Prejudice, Modern Attitudes towards Individuals with Intellectual Disability
Townsend, Campbell and Hamilton, David. (2012). Evolved Disease Avoidance Mechanisms, Generalized Prejudice, Modern Attitudes towards Individuals with Intellectual Disability. World Academy of Science, Engineering and Technology. United States of America: World Academy of Science, Engineering and Technology. pp. 327 - 330
Infant adjective checklist: Development and validation of an infant screening instrument
Milne, Lisa, Greenway, Philip, Jontof-Hutter, Keren and Groves, Felicia. (2011). Infant adjective checklist: Development and validation of an infant screening instrument. In In A. M. Columbus (Ed.). Advances in Psychology Research, Volume 83 pp. 99 - 112 Nova Science Publishers.
Adversarial growth in telephone counsellors :Psychological and environmental influences
O'Sullivan, Julian and Whelan, Thomas. (2011). Adversarial growth in telephone counsellors :Psychological and environmental influences. British Journal of Guidance and Counselling. 39(4), pp. 307 - 323. https://doi.org/10.1080/03069885.2011.567326
The clinical application of the 100 mL water swallow test in head and neck cancer
Patterson, J, Hildreth, A, McColl, E, Carding, Paul, Hamilton, D and Wilson, Janet. (2011). The clinical application of the 100 mL water swallow test in head and neck cancer. Oral Oncology. 47(3), pp. 180 - 184. https://doi.org/10.1016/j.oraloncology.2010.11.020
Posttraumatic Growth in International Study: The Case of Chinese in Australia
Whelan, Thomas Anthony and Cunningham, Winifred. (2010). Posttraumatic Growth in International Study: The Case of Chinese in Australia. In In T. Weiss and R. Berger (Ed.). pp. 173 - 187 John Wiley & Sons.
Long term developmental impact of social withdrawal in infants
Milne, Lisa Clare, Greenway, Phillip, Guedeney, Antoine and Larroque, Beatice. (2009). Long term developmental impact of social withdrawal in infants. Infant Behavior and Development. 32(2), pp. 159 - 166. https://doi.org/10.1016/j.infbeh.2008.12.006
Measuring transcendence: Extracting core constructs
Akyalcin, Errol, Greenway, Phillip and Milne, Lisa. (2008). Measuring transcendence: Extracting core constructs. Journal of Transpersonal Psychology. 40(1), pp. 41 - 59.
The relationship between grandparent satisfaction, meaning, and generativity
Thiele, Diane M. and Whelan, Thomas Anthony. (2008). The relationship between grandparent satisfaction, meaning, and generativity. International Journal of Aging and Human Development. 66(1), pp. 21 - 48. https://doi.org/10.2190/AG.66.1.b
Rorschach comprehensive system data for a sample of 128 adult nonpatients from Australia.
Greenway, Phillip and Milne, Lisa. (2007). Rorschach comprehensive system data for a sample of 128 adult nonpatients from Australia. Journal of Personality Assessment. 89(1), pp. 20 - 25. https://doi.org/10.1080/00223890701582848
Religious coping strategies and spiritual transcendence
Greenway, Phillip, Phelan, M., Turnbull, S. and Milne, Lisa. (2007). Religious coping strategies and spiritual transcendence. Mental Health, Religion & Culture. 10(4), pp. 325 - 333. https://doi.org/10.1080/13694670600719839
Predictors of postnatal depression in a community sample.
Milne, Lisa, Greenway, Phillip and Hansen, L.. (2007). Predictors of postnatal depression in a community sample. Neonatal, Paediatric and Child Health Nursing. 10(1), pp. 20 - 26.
Intrapsychic factors contributing to adolescent depression
Milne, Lisa Clare and Greenway, Phillip. (2007). Intrapsychic factors contributing to adolescent depression. In In A. Columbus (Ed.). Advances in psychology research pp. 43 - 85 Nova Science Publishers.
An insight into implementing person-centred active support
Hamilton, David and Rhodes, Junelle. (2006). An insight into implementing person-centred active support. Tizard Learning Disability Review. 11(3), pp. 31 - 36.
Individual characteristics associated with community integration of adults with intellectual disability
Vine, Xanthe and Hamilton, David. (2005). Individual characteristics associated with community integration of adults with intellectual disability. Journal of Intellectual and Developmental Disability. 30(3), pp. 171 - 175. https://doi.org/10.1080/13668250500204125
An ecobehavioural analysis of interactive engagement of children with developmental disabilities with their peers in inclusive preschools
Hamilton, David. (2005). An ecobehavioural analysis of interactive engagement of children with developmental disabilities with their peers in inclusive preschools. International Journal of Disability, Development and Education. 52(2), pp. 121 - 137. https://doi.org/10.1080/10349120500086363
Further examination of relationships between life events and psychiatric symptoms in adults with intellectual disability
Hamilton, David, Sutherland, G. and Iacono, Teresa. (2005). Further examination of relationships between life events and psychiatric symptoms in adults with intellectual disability. Journal of Intellectual Disability Research. 49(11), pp. 839 - 844. https://doi.org/10.1111/j.1365-2788.2005.00761.x