Identifying unmet needs in long-term stroke care using in-depth assessment and the Post-Stroke Checklist – The Managing Aftercare for Stroke (MAS-I) study

Journal article


Hotter, Benjamin, Padberg, Inken, Liebenau, Andrea, Knispel, Petra, Heel, Sabine, Steube, Diethard, Wissel, Jörg, Wellwood, Ian and Meisel, Andreas. (2018). Identifying unmet needs in long-term stroke care using in-depth assessment and the Post-Stroke Checklist – The Managing Aftercare for Stroke (MAS-I) study. European Stroke Journal. 3(3), pp. 237-245. https://doi.org/10.1177/2396987318771174
AuthorsHotter, Benjamin, Padberg, Inken, Liebenau, Andrea, Knispel, Petra, Heel, Sabine, Steube, Diethard, Wissel, Jörg, Wellwood, Ian and Meisel, Andreas
Abstract

Introduction
Detailed data on the long-term consequences and treatment of stroke are scarce. We aimed to assess the needs and disease burden of community-dwelling stroke patients and their carers and to compare their treatment to evidence-based guidelines by a stroke neurologist.

Methods
We invited long-term stroke patients from two previous acute clinical studies (n = 516) in Berlin, Germany to participate in an observational, cross-sectional study. Participants underwent a comprehensive interview and examination using the Post-Stroke Checklist and validated standard measures of: self-reported needs, quality of life, overall outcome, spasticity, pain, aphasia, cognition, depression, secondary prevention, social needs and caregiver burden.

Results
Fifty-seven participants (median initial National Institutes of Health Stroke Scale score 10 interquartile range 4–12.75) consented to assessment (median 41 months (interquartile range 36–50) after stroke. Modified Rankin Scale was 2 (median; interquartile range 1–3), EuroQoL index value was 0.81 (median; interquartile range 0.70–1.00). The frequencies for disabilities in the major domains were: spasticity 35%; cognition 61%; depression 20%; medication non-compliance 14%. Spasticity (p = 0.008) and social needs (p < 0.001) had the strongest impact on quality of life. The corresponding items in the Post-Stroke Checklist were predictive for low mood (p < 0.001), impaired cognition (p = 0.015), social needs (p = 0.005) and caregiver burden (p = 0.031). In the comprehensive interview, we identified the following needs: medical review (30%), optimization of pharmacotherapy (18%), outpatient therapy (47%) and social work input (33%).

Conclusion
These results suggest significant unmet needs and gaps in health and social care in long-term stroke patients. Further research to develop a comprehensive model for managing stroke aftercare is warranted.

Clinical Trial Registration: clinicaltrials.gov NCT02320994.

Keywordsstroke; aftercare; healthcare research; long-term management
Year2018
JournalEuropean Stroke Journal
Journal citation3 (3), pp. 237-245
PublisherSAGE Publications
ISSN2396-9873
Digital Object Identifier (DOI)https://doi.org/10.1177/2396987318771174
Scopus EID2-s2.0-85060505887
Page range237-245
FunderGerman Federal Ministry of Education and Research (BMBF)
Deutsche Forschungsgemeinschaft (DFG)
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online01 Sep 2018
Publication process dates
Accepted03 Nov 2017
Deposited24 Aug 2022
Grant ID01EO0801
Exc257
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