Support after brain tumor means different things : family caregivers' experiences of support and relationship changes
Journal article
Ownsworth, Tamara, Goadby, Elizabeth and Chambers, Suzanne. (2015). Support after brain tumor means different things : family caregivers' experiences of support and relationship changes. Frontiers in Oncology. 5, pp. 1-13. https://doi.org/10.3389/fonc.2015.00033
Authors | Ownsworth, Tamara, Goadby, Elizabeth and Chambers, Suzanne |
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Abstract | Shorter hospital stays and greater emphasis on outpatient care means that family members have the primary responsibility for supporting a person with brain tumor to manage the physical, cognitive, behavioral, and emotional effects of the illness and its treatment. Given the integral role of family caregivers, it is essential to understand their experience of the impact of brain tumor and their own support needs. Accordingly, this qualitative study aimed to investigate family caregivers’ experiences of support and relationship changes in the context of brain tumor. In-depth interviews were conducted with 11 family caregivers (8 spouse/partner, 3 parents) of people with malignant or benign tumor. A thematic analysis of interview transcripts identified two major themes, namely, “Meanings of Support” and “Relationship Impacts.” The Meanings of Support theme was characterized by intertwined and distinct support needs, varied expectations of support and factors influencing support expectations. The Relationship Impacts theme depicted mixed experiences of strengthened, maintained, and strained relations with the person with brain tumor. Overall, the findings highlight that there is considerable variability in caregivers’ experiences and expectations of support and the impact of brain tumor on relationships. The implications of these findings for the provision of caregiver support are discussed. |
Keywords | family caregivers; brain tumor; support; relationships; qualitative research |
Year | 01 Jan 2015 |
Journal | Frontiers in Oncology |
Journal citation | 5, pp. 1-13 |
Publisher | Frontiers Research Foundation |
ISSN | 2234-943X |
Digital Object Identifier (DOI) | https://doi.org/10.3389/fonc.2015.00033 |
Web address (URL) | https://www.frontiersin.org/journals/oncology/articles/10.3389/fonc.2015.00033/full#h9 |
Open access | Open access |
Research or scholarly | Research |
Page range | 1-13 |
Publisher's version | License File Access Level Open |
Output status | Published |
Publication dates | |
Online | 12 Feb 2015 |
Publication process dates | |
Accepted | 30 Jan 2015 |
Deposited | 23 May 2024 |
Additional information | © 2015 Ownsworth, Goadby and Chambers. |
The authors wish to thank the Cancer Council Queensland for their funding and support with recruitment in this study | |
Place of publication | Switzerland |
https://acuresearchbank.acu.edu.au/item/9082x/support-after-brain-tumor-means-different-things-family-caregivers-experiences-of-support-and-relationship-changes
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Publisher's version
OA_Chambers_2015_Support_after_brain_tumor_means_different.pdf | |
License: CC BY 4.0 | |
File access level: Open |
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