A stakeholder-involved adaptation of pathways and resources for engagement and participation (PREP) material with young adults with complex disability in Australia : An implementation feasibility study

Journal article

Cassidy, Annabelle, Bannon, Natasha, Wallen, Margaret, Dimarco, Alessandra, Garrity, Natasha, Hunter, Oliver, Anaby, Dana, Fredrickson, Emma, Cowan, Harry, Knudsen, Dewa, Thornton, Scott and Imms, Christine. (2024). A stakeholder-involved adaptation of pathways and resources for engagement and participation (PREP) material with young adults with complex disability in Australia : An implementation feasibility study. Disability and Rehabilitation. pp. 1-13. https://doi.org/10.1080/09638288.2024.2397083
AuthorsCassidy, Annabelle, Bannon, Natasha, Wallen, Margaret, Dimarco, Alessandra, Garrity, Natasha, Hunter, Oliver, Anaby, Dana, Fredrickson, Emma, Cowan, Harry, Knudsen, Dewa, Thornton, Scott and Imms, Christine
Abstract

Purpose
Pathways and Resources for Engagement and Participation (PREP) is an intervention to optimise individuals’ participation by building problem-solving capacity and addressing environmental barriers. We investigated the feasibility of implementing PREP with young adults (18–30 years) with complex disability in Australia.

Materials and Methods
Explanatory sequential mixed methods study in three stages. (i) PREP materials were collaboratively adapted by the research team and consumer research partners. (ii) Steps 1 and 2 of PREP (YA Supplement) were completed with three young adults with disability, and preliminary feasibility explored using qualitative methods. (iii) The feasibility of implementing adapted materials was examined using quantitative and qualitative methods involving four young adults with disability, six support people and two service providers.

Results
Stage 1: PREP Young Adults Supplement (PREP (YA Supplement)) for use alongside PREP was developed. Stages 2 and 3: findings indicated PREP (YA Supplement) was acceptable, appropriate and feasible. Three themes were identified: setting and achieving goals were associated with challenges and benefits; finding the right time to implement the program was necessary; and PREP (YA Supplement) drives a shift to a participation-focused approach.

Conclusion
PREP delivered alongside PREP (YA Supplement) appears feasible with Australian young adults with complex disability.

IMPLICATIONS FOR REHABILITATION
• A novel supplement for the evidence-based Pathways and Resources for Engagement and Participation (PREP) intervention has been developed to enhance participation in life situations for young adults with disability in an Australian context (PREP Young Adult Supplement).

• Setting participation goals may be a substantial shift for young adults with disability and rehabilitation professionals, and involves considering attendance at, and involvement in, life situations.

• Implementation of PREP/PREP Young Adult Supplement is inherently flexible and can be adapted to suit the needs, preferences and circumstances of the participant.

Keywordspathways and resources for engagement and participation; disability; participation; family of participation-related constructs; young adults; consumer involvement; feasibility study; implementation
Year2024
JournalDisability and Rehabilitation
Journal citationpp. 1-13
PublisherTaylor & Francis
ISSN1464-5165
Digital Object Identifier (DOI)https://doi.org/10.1080/09638288.2024.2397083
PubMed ID39235070
Scopus EID2-s2.0-85203146713
Open accessPublished as ‘gold’ (paid) open access
Page range1-13
FunderEndeavour Foundation
National Health and Medical Research Council (NHMRC)
Publisher's version
License
File Access Level
Open
Output statusIn press
Publication dates
Online05 Sep 2024
Publication process dates
Accepted22 Aug 2024
Deposited05 May 2025
Grant IDAPP1171715
Additional information

© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.

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