Perspectives of children and adolescents with cerebral palsy about involvement as research partners : A qualitative study

Journal article

Cavens, C., Imms, C., Drake, G., Garrity, N. and Wallen, M.. (2022). Perspectives of children and adolescents with cerebral palsy about involvement as research partners : A qualitative study. Disability and Rehabilitation. 44(16), pp. 4293-4302. https://doi.org/10.1080/09638288.2021.1900927
AuthorsCavens, C., Imms, C., Drake, G., Garrity, N. and Wallen, M.
Abstract

Purpose
Children and adolescents with cerebral palsy have diverse needs and often engage with healthcare services, including paediatric rehabilitation. Partnering with these children and adolescents on research projects to inform practice has the potential to ensure services continue to remain relevant and appropriate. This study aimed to identify what children and adolescents with cerebral palsy suggest are effective ways for researchers to involve them as partners in research.

Materials and methods
This qualitative study was guided by interpretive description. Children and adolescents with cerebral palsy between 8 and 18 years participated in semi-structured, activity-based focus groups or interviews. Verbatim transcripts were coded and analysed using thematic analysis. One member of the research team was a young woman with cerebral palsy.

Results
Seventeen children and adolescents with cerebral palsy from NSW and Victoria (Australia) were involved. Participants were between 8 and 18 years (mean = 12 years), male (n = 11) and female (n = 6). Analysis identified four nested themes: “insider knowledge”, “reasons for involvement”, “roles in research” and “facilitating partnership”.

Conclusion
This study identified perspectives of children and adolescents on their involvement as research partners, and considerations for researchers to facilitate involvement of children and adolescents with cerebral palsy as partners in research.

IMPLICATIONS FOR REHABILITATION
• The commitment in healthcare to client-centred practice requires that consumers, including children and young people with cerebral palsy, have opportunities to influence the direction of research which impacts them.

• Children and young people with cerebral palsy are interested in research partnerships and motivated to be involved in various areas of research.

• Effective research partnerships with younger populations can be facilitated by researchers acknowledging a child or young person’s expertise, and employing strategies relating to open communication, flexibility and support.

Keywordsconsumer involvement; research partnership; cerebral palsy; children; adolescents
Year2022
JournalDisability and Rehabilitation
Journal citation44 (16), pp. 4293-4302
PublisherTaylor & Francis
ISSN0963-8288
Digital Object Identifier (DOI)https://doi.org/10.1080/09638288.2021.1900927
PubMed ID33779451
Scopus EID2-s2.0-85103381931
Page range4293-4302
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online28 Mar 2021
Publication process dates
Accepted05 Mar 2021
Deposited03 Sep 2021
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Kerr, Claire, Shields, Nora, Quarmby, Lyndsay, Roberts, Karen, Imms, Christine and 'Best Service at the Best Time' group. (2016). Supports and barriers to implementation of routine clinical assessment for children with cerebral palsy: a mixed-methods study. Disability and Rehabilitation. 40(4), pp. 425-434. https://doi.org/10.1080/09638288.2016.1258736
The measurement of visual ability in children with cerebral palsy : A systematic review
Deramore Denver, Belinda, Froude, Elspeth, Rosenbaum, Peter, Wilkes-Gillan, Sarah and Imms, Christine. (2016). The measurement of visual ability in children with cerebral palsy : A systematic review. Developmental Medicine and Child Neurology. 58(10), pp. 1016-1029. https://doi.org/10.1111/dmcn.13139
Personal Care Participation Assessment and Resource Tool: Clinical utility for inpatient rehabilitation
Darzins, Susan W., Imms, Christine, Di Stefano, Marilyn and Radia-George, Camilla A.. (2016). Personal Care Participation Assessment and Resource Tool: Clinical utility for inpatient rehabilitation. Canadian Journal of Occupational Therapy. 83(4), pp. 237 - 248. https://doi.org/10.1177/0008417416648446
Leisure participation-preference congruence of children with cerebral palsy in Canada and Australia : A CAPE International Network descriptive study
Imms, Christine, King, Gillian, Majnemer, Annette, Avery, Lisa, Chiarello, Lisa, Orlin, Margo and Law, Mary. (2016). Leisure participation-preference congruence of children with cerebral palsy in Canada and Australia : A CAPE International Network descriptive study. Developmental Medicine and Child Neurology. 59(4), pp. 380-387. https://doi.org/10.1111/dmcn.13302
A systematic review of evidence-based assessment practices by allied health practitioners for children with cerebral palsy
O'Connor, Bridget, Kerr, Claire Frances, Shields, Nora and Imms, Christine. (2016). A systematic review of evidence-based assessment practices by allied health practitioners for children with cerebral palsy. Developmental Medicine and Child Neurology. 58(4), pp. 332 - 347. https://doi.org/10.1111/dmcn.12973
While involving children and youth with disability as research partners was viewed positively, methodologically strong research is required to further inform effective participation outcomes
Imms, Christine and Freeman, Matthew. (2016). While involving children and youth with disability as research partners was viewed positively, methodologically strong research is required to further inform effective participation outcomes. Australian Occupational Therapy Journal. 63(3), pp. 219 - 220. https://doi.org/10.1111/1440-1630.12303
A descriptive study of the participation of children and adolescents in activities outside school
Imms, Christine, Froude, Elspeth H., Adair, Brooke and Shields, Nora. (2016). A descriptive study of the participation of children and adolescents in activities outside school. BMC Pediatrics. 16(84), pp. 1 - 11. https://doi.org/10.1186/s12887-016-0623-9
Participation : Both a means and an end. A conceptual analysis of processes and outcomes in childhood disability
Imms, Christine, Granlund, Mats, Wilson, Peter, Steenbergen, Bert, Rosenbaum, Peter and Gordon, Andrew M.. (2016). Participation : Both a means and an end. A conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine and Child Neurology. 59(1), pp. 16 - 25. https://doi.org/10.1111/dmcn.13237
Reflections on the contribution of the Assisting Hand Assessment
Wallen, Margaret. (2016). Reflections on the contribution of the Assisting Hand Assessment. Developmental Medicine and Child Neurology. 58(6), pp. 537 - 538. https://doi.org/10.1111/dmcn.12963
Minimising impairment: Protocol for a multicentre randomised controlled trial of upper limb orthoses for children with cerebral palsy
Imms, Christine, Wallen, Margaret, Elliott, Catherine M., Hoare, Brian, Randall, Melinda Joy, Greaves, Susan, Adair, Brooke, Bradshaw, Elizabeth Jane, Carter, Robert, Orsini, Francesca, Shih, Sophy T. F. and Reddihough, Dinah S.. (2016). Minimising impairment: Protocol for a multicentre randomised controlled trial of upper limb orthoses for children with cerebral palsy. BMC Pediatrics. 16(1), pp. 70 - 85. https://doi.org/10.1186/s12887-016-0608-8
The role of engagement, ongoing support and housing availability in rehousing people experiencing chronic homelessness
Drake, Gabrielle and Blunden, Hazel. (2015). The role of engagement, ongoing support and housing availability in rehousing people experiencing chronic homelessness. Third Sector Review. 21(1), pp. 101-120.
Responsiveness, construct and criterion validity of the Personal Care-Participation Assessment and Resource Tool (PC-PART)
Darzins, Susan W., Imms, Christine, Shields, Nora and Taylor, Nicholas F.. (2015). Responsiveness, construct and criterion validity of the Personal Care-Participation Assessment and Resource Tool (PC-PART). Health and Quality of Life Outcomes. 13(125), pp. 1-17. https://doi.org/10.1186/s12955-015-0322-5
Improving allied health professionals' research implementation behaviours for children with cerebral palsy: protocol for a before-after study
Imms, Christine, Novak, Iona, Kerr, Claire, Shields, Harvey, Adrienne, Graham, H. Kerr, Reddihough, Dinah and Melinda, Nora Shields. (2015). Improving allied health professionals' research implementation behaviours for children with cerebral palsy: protocol for a before-after study. Implementation Science. 10(1), pp. 1 - 8. https://doi.org/10.1186/s13012-014-0202-0
Upper limb function in everyday life of children with cerebral palsy: Description and review of parent report measures
Wallen, Margaret and Stewart, Kirsty. (2015). Upper limb function in everyday life of children with cerebral palsy: Description and review of parent report measures. Disability and Rehabilitation. 37(15), pp. 1353 - 1361. https://doi.org/10.3109/09638288.2014.963704
The effect of interventions aimed at improving participation outcomes for children with disabilities : A systematic review
Adair, Brooke, Ullenhag, Anna, Keen, Deb, Granlund, Mats and Imms, Christine. (2015). The effect of interventions aimed at improving participation outcomes for children with disabilities : A systematic review. Developmental Medicine and Child Neurology (online version). 57(12), pp. 1093 - 1104. https://doi.org/10.1111/dmcn.12809
Improving the participation of youth with physical disabilities in community activities: An interrupted time series design
Law, Mary, Anaby, Dana, Treplicki, Rachel, Turner, Laura and Imms, Christine. (2015). Improving the participation of youth with physical disabilities in community activities: An interrupted time series design. Australian Occupational Therapy Journal. 62(2), pp. 105 - 115. https://doi.org/10.1111/1440-1630.12177
Robot assisted upper limb therapy combined with upper limb rehabilitation was at least as effective on a range of outcomes, and cost less to deliver, as an equal does of upper limb rehabilitation alone for people with stroke
Imms, Christine. (2015). Robot assisted upper limb therapy combined with upper limb rehabilitation was at least as effective on a range of outcomes, and cost less to deliver, as an equal does of upper limb rehabilitation alone for people with stroke. Australian Occupational Therapy Journal. 62(1), pp. 74 - 76. https://doi.org/10.1111/1440-1630.12188
Homelessness, the 'Housing First' Approach and the Creation of 'Home'
Blunden, Hazel and Drake, Gabrielle. (2015). Homelessness, the 'Housing First' Approach and the Creation of 'Home'. In In R Duffy-Jones and D Rogers (Ed.). Housing in 21st-century Australia : people, practices and policies pp. 205 - 220 Routledge.
The "write" conditions: How to overcome writing for publication barriers through academic development
Bridges, Donna, Drake, Gabrielle, North, Robyn, Houlbrook, Michael and Mears, Jane. (2015). The "write" conditions: How to overcome writing for publication barriers through academic development. Advances in Social Work and Welfare Education. 17(2), pp. 23 - 38.
Improving the participation of youth with physical disabilities in community activities : An interrupted time series design
Law, Mary, Anaby, Dana, Imms, Christine, Treplicky, Rachel and Turner, Laura. (2015). Improving the participation of youth with physical disabilities in community activities : An interrupted time series design. Australian Occupational Therapy Journal. 62(2), pp. 105 - 115. https://doi.org/10.1111/1440-1630.12177
Leaving a licensed boarding house: Transcending trans-institutionalisation with person-centred transitions
Drake, Gabrielle and Herbert, James Leslie. (2015). Leaving a licensed boarding house: Transcending trans-institutionalisation with person-centred transitions. Disability and Society. 30(4), pp. 583 - 596. https://doi.org/10.1080/09687599.2015.1037952
Embedding simulation in clinical training in occupational therapy project: National consultation report
Imms, Christine, Chu, Eli Mang Yee, Guinea, Stephen, Sheppard, Loretta, Froude, Elspeth Heather and Carter, Rob. (2014). Embedding simulation in clinical training in occupational therapy project: National consultation report Australian Catholic University.
Evaluation of the internal construct validity of the Personal Care Participation Assessment and Resource Tool (PC-PART) using Rasch analysis
Darzins, Susan W., Imms, Christine, Di Stefano, Marilyn, Taylor, Nicholas and Pallant, Julie. (2014). Evaluation of the internal construct validity of the Personal Care Participation Assessment and Resource Tool (PC-PART) using Rasch analysis. BMC Health Services Research. 14(543), pp. 1 - 14. https://doi.org/10.1186/s12913-014-0543-z
Rasch analysis of The Melbourne Assessment of Unilateral Upper Limb Function
Randall, Melinda, Imms, Christine, Carey, Leeanne and Pallant, Julie. (2014). Rasch analysis of The Melbourne Assessment of Unilateral Upper Limb Function. Developmental Medicine and Child Neurology. 56(7), pp. 665 - 672. https://doi.org/10.1111/dmcn.12391
No differences were observed between six months of context-versus child-focussed intervention for young children with cerebral palsy on self-care, mobility, range-of-motion or participation
Wallen, Margaret. (2014). No differences were observed between six months of context-versus child-focussed intervention for young children with cerebral palsy on self-care, mobility, range-of-motion or participation. Australian Occupational Therapy Journal. 61(2), pp. 126 - 127. https://doi.org/10.1111/1440-1630.12109
The transinstitutionalisation of people living in licensed boarding houses in Sydney
Drake, Gabrielle. (2014). The transinstitutionalisation of people living in licensed boarding houses in Sydney. Australian Social Work. 67(2), pp. 240 - 255. https://doi.org/10.1080/0312407X.2013.843714
Interrater reliability and clinical utility of the Personal Care Participation Assessment and Resource Tool (PC_PART) in an inpatient rehabilitation setting
Radia-George, Camilla, Imms, Christine and Taylor, Nicholas. (2014). Interrater reliability and clinical utility of the Personal Care Participation Assessment and Resource Tool (PC_PART) in an inpatient rehabilitation setting. American Journal of Occupational Therapy. 68(3), pp. 334 - 343. https://doi.org/10.5014/ajot.2014.009878
Preparatory teachers' perceptions of school readiness : a survey of Victorian teachers
Imms, Christine, Froude, Elspeth, Joffe, Beverly, Heine, Chyrisse, Merrigan, Celeste and Serry, Tanya. (2014). Preparatory teachers' perceptions of school readiness : a survey of Victorian teachers. The Australian Educational Researcher. 41(1), pp. 109 - 124. https://doi.org/10.1007/s13384-013-0126-8
Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: Parents' and personal assistants' experiences
Axelsson, Anna Karin, Imms, Christine and Wilder, Jenny. (2014). Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: Parents' and personal assistants' experiences. Disability and Rehabilitation. 36(25), pp. 2169 - 2177. https://doi.org/10.3109/09638288.2014.895058
The ethical and methodological challenges of social work research with participants who fear retribution: To 'do no harm'
Drake, Gabrielle. (2014). The ethical and methodological challenges of social work research with participants who fear retribution: To 'do no harm'. Qualitative Social Work. 13(2), pp. 304 - 319. https://doi.org/10.1177/1473325012473499
Participation of children with intellectual disability compared with typically developing children
King, Matthew, Shields, Nora, Imms, Christine, Black, Monique and Ardern, Clare. (2013). Participation of children with intellectual disability compared with typically developing children. Research in Developmental Disabilities. https://doi.org/10.1016/j.ridd.2013.02.029
Intensive therapy following upper limb botulinum toxin A injection in young children with unilateral cerebral palsy : a randomized trial
Hoare, Brian, Imms, Christine, Villanueva, Elmer, Rawicki, Hyam Barry, Matyas, Thomas and Carey, Leeanne. (2013). Intensive therapy following upper limb botulinum toxin A injection in young children with unilateral cerebral palsy : a randomized trial. Developmental Medicine and Child Neurology. https://doi.org/10.1111/dmcn.12054
Measurement properties of the Personal Care Participation Assessment and Resource Tool: A systematic review
Darzins, Susan W., Imms, Christine and Di Stefano, Marilyn. (2013). Measurement properties of the Personal Care Participation Assessment and Resource Tool: A systematic review. Disability and Rehabilitation. 35(4), pp. 265 - 281. https://doi.org/10.3109/09638288.2012.690819
Children with cerebral palsy and periventricular white matter injury : Does gestational age affect functional outcome?
Harvey, Adrienne, Randall, Melinda, Reid, Susan M., Lee, Katherine, Imms, Christine, Rodda, Jillian, Eldridge, Beverley, Orsini, Francesca and Reddihough, Dinah. (2013). Children with cerebral palsy and periventricular white matter injury : Does gestational age affect functional outcome? Research in Developmental Disabilities. https://doi.org/10.1016/j.ridd.2013.05.030
Caution regarding the Pediatric Motor Activity Log to measure upper limb intervention outcomes for children with unilateral cerebral palsy
Wallen, Margaret and Ziviani, Jenny. (2013). Caution regarding the Pediatric Motor Activity Log to measure upper limb intervention outcomes for children with unilateral cerebral palsy. Developmental Medicine and Child Neurology. 55(6), pp. 497 - 498. https://doi.org/10.1111/dmcn.12057
Reliable classification of functional profiles and movement disorders of children with cerebral palsy
Randall, Melinda, Harvey, Adrienne, Imms, Christine, Reid, Sue, Lee, Katherine J. and Reddihough, Dinah. (2013). Reliable classification of functional profiles and movement disorders of children with cerebral palsy. Physical & Occupational Therapy in Pediatrics. https://doi.org/10.3109/01942638.2012.747584
Development of the mini-assisting hand assessment: evidence for content and internal scale validity
Greaves, Susan, Imms, Christine, Dodd, Karen and Krumlinde-Sundholm, Lena. (2013). Development of the mini-assisting hand assessment: evidence for content and internal scale validity. Developmental Medicine and Child Neurology. https://doi.org/10.1111/dmcn.12212
Reliable classification of functional profiles and movement disorders of children with cerebral palsy
Randall, Melinda, Harvey, Adrienne, Imms, Christine, Reid, Sue, Lee, Katherine and Reddihough, Dinah. (2013). Reliable classification of functional profiles and movement disorders of children with cerebral palsy. Physical & Occupational Therapy in Pediatrics. 33(3), pp. 342 - 352. https://doi.org/10.3109/01942638.2012.747584
Geographical patterns in the recreation and leisure participation of children and youth with cerebral palsy : A CAPE international collaborative network study
King, Gillian, Imms, Christine, Palisano, Robert, Majnemer, Annette, Chiarello, Lisa, Orlin, Margo, Law, Mary and Avery, Lisa. (2013). Geographical patterns in the recreation and leisure participation of children and youth with cerebral palsy : A CAPE international collaborative network study. Developmental Neurorehabilitation. https://doi.org/10.3109/17518423.2013.773102
Is participation among children with intellectual disabilities in outside school activities similar to their typically developing peers? : A systematic review
Shields, Nora, King, Matthew, Corbett, Monique and Imms, Christine. (2013). Is participation among children with intellectual disabilities in outside school activities similar to their typically developing peers? : A systematic review. Developmental Neurorehabilitation. https://doi.org/10.3109/17518423.2013.836256
Further evidence of validity of the Modified Melbourne Assessment for the neurologically impaired children aged 2 to 4 years
Randall, Melinda, Imms, Christine and Carey, Leeanne. (2012). Further evidence of validity of the Modified Melbourne Assessment for the neurologically impaired children aged 2 to 4 years. Developmental Medicine and Child Neurology. 54(5), pp. 424 - 428. https://doi.org/10.1111/j.1469-8749.2012.04252.x
Looking to the future: Adolescents with cerebral palsy talk about their aspirations - A narrative study
Cussen, Amy, Howie, Linsey and Imms, Christine. (2012). Looking to the future: Adolescents with cerebral palsy talk about their aspirations - A narrative study. Disability and Rehabilitation. 34(24), pp. 2103 - 2110. https://doi.org/10.3109/09638288.2012.672540
Weighted vests did not improve competing behaviours or joint attention of 2 year olds with Autism Spectrum Disorder (ASD)
Wallen, Margaret. (2012). Weighted vests did not improve competing behaviours or joint attention of 2 year olds with Autism Spectrum Disorder (ASD). Australian Occupational Therapy Journal. 59(6), pp. 468 - 470. https://doi.org/10.1111/1440-1630.12014
Effects of neoprene wrist/hand splints on handwriting for students with joint hypermobility syndrome: A single system design study
Frohlich, Lauren, Wesley, Alison, Wallen, Margaret and Bundy, Anita. (2012). Effects of neoprene wrist/hand splints on handwriting for students with joint hypermobility syndrome: A single system design study. Physical & Occupational Therapy in Pediatrics. 32(3), pp. 243 - 255. https://doi.org/10.3109/01942638.2011.622035
Prospective study of the participation patterns of Grade 6 and Year 8 students in Victoria, Australia in activities outside of school
McMullan, Sarah, Chin, Rachel, Froude, Elspeth Heather and Imms, Christine. (2012). Prospective study of the participation patterns of Grade 6 and Year 8 students in Victoria, Australia in activities outside of school. Australian Occupational Therapy Journal. 59(3), pp. 197 - 208. https://doi.org/10.1111/j.1440-1630.2012.01013.x
Validity of the fine motor area of the 12-month ages and stages questionnaire in infants following major surgery
Smith, Cally, Wallen, Margaret, Walker, Karen, Bundy, Anita, Rolinson, Rachel and Badawi, Nadia. (2012). Validity of the fine motor area of the 12-month ages and stages questionnaire in infants following major surgery. Physical & Occupational Therapy in Pediatrics. 32(3), pp. 260 - 271. https://doi.org/10.3109/01942638.2011.606261
Bimanual behaviours in children aged 8-18 months: A literature review to select toys that elicit the use of two hands
Greaves, Susan, Imms, Christine, Krumlinde-Sundholm, Lena, Dodd, Karen and Eliasson, Ann-Christin. (2012). Bimanual behaviours in children aged 8-18 months: A literature review to select toys that elicit the use of two hands. Research in Developmental Disabilities. 33(1), pp. 240 - 250. https://doi.org/10.1016/j.ridd.2011.09.012
Hopes and Aspirations for Leisure and Living :Adolescents with Cerebral Palsy Talk about the Future
Cussen, Amy, Imms, Christine and Howie, Linsey. (2011). Hopes and Aspirations for Leisure and Living :Adolescents with Cerebral Palsy Talk about the Future. Australian Occupational Therapy Journal. 58(Suppl s1), pp. 75 - 75. https://doi.org/10.1111/j.1440-1630.2011.00938.x
Modified constraint-induced therapy for children with hemiplegic cerebral palsy: A randomized trial
Wallen, Margaret, Ziviani, Jenny, Naylor, Olivia, Evans, Ruth, Novak, Iona and Herbert, Robert D.. (2011). Modified constraint-induced therapy for children with hemiplegic cerebral palsy: A randomized trial. Developmental Medicine and Child Neurology. 53(12), pp. 1091 - 1099. https://doi.org/10.1111/j.1469-8749.2011.04086.x
Linking cerebral palsy upper limb measurements to the international classification of functioning disability and health
Hoare, Brian, Imms, Christine, Randall, Melinda and Carey, Leeanne. (2011). Linking cerebral palsy upper limb measurements to the international classification of functioning disability and health. Scandinavian Journal of Rehabilitation Medicine. 43(11), pp. 987 - 996. https://doi.org/10.2340/16501977-0886
Leisure Participation Patterns of Children in Victoria Australia
Chin, Rachel, McMullen, Sarah, Froude, Elspeth Heather and Imms, Christine. (2011). Leisure Participation Patterns of Children in Victoria Australia. Australian Occupational Therapy Journal. 58(Suppl s1), pp. 101 - 101. https://doi.org/10.1111/j.1440-1630.2011.00938.x
Factors Influencing Children's Readiness to Enter School :Views From Early Childhood Educators
Froude, Elspeth Heather, Imms, Christine, Merrigan, C, Joffe, Beverly, Heine, Chyrisse and Serry, Tanya. (2011). Factors Influencing Children's Readiness to Enter School :Views From Early Childhood Educators. Australian Occupational Therapy Journal. 58(Suppl s1), pp. 23 - 23.
Comparing the effectiveness of a parent group intervention with child-based intervention for promoting playfulness in children with disabilities
Bundy, Anita, Kolrosova, Jitka, Paguinto, Sarah-Grace, Bray, Paula, Swain, Belinda, Wallen, Margaret and Engelen, Lina. (2011). Comparing the effectiveness of a parent group intervention with child-based intervention for promoting playfulness in children with disabilities. Israeli Journal of Occupational therapy. 20(4), pp. e95 - e113.
Bracing and splinting interventions in the upper limbs of people with cerebral palsy
Imms, Christine. (2011). Bracing and splinting interventions in the upper limbs of people with cerebral palsy. Developmental Medicine and Child Neurology. 53(4), pp. 293 - 294. https://doi.org/10.1111/j.1469-8749.2010.03881.x
A Systematic Review of the Measurement Properties of the Personal Care Participation, Assessment and Resource Tool (PC-Part)
Darzins, Susan, Imms, Christine and Di Stefano, Marilyn. (2011). A Systematic Review of the Measurement Properties of the Personal Care Participation, Assessment and Resource Tool (PC-Part). Australian Occupational Therapy Journal. 58(Suppl s1), pp. 127 - 128. https://doi.org/10.3109/09638288.2012.690819
Preliminary evidence supports the validity of the strength-dexterity test as a unidimensional scale measuring fingertip force coordination in children and adolescents
Imms, Christine and van Hartingsveltd, Margot. (2011). Preliminary evidence supports the validity of the strength-dexterity test as a unidimensional scale measuring fingertip force coordination in children and adolescents. Australian Occupational Therapy Journal. 58(6), pp. 317 - 319. https://doi.org/10.1111/j.1440-1630.2011.00952.x
Children and Youth with Myleomeningocele's Independence in Managing Clean Intermittent Catheterization in Familiar Settings
Donlau, Marie, Imms, Christine, Mattsson, Gunilla, Mattsson, Sven, Sjors, Anna and Falkmer, Torbjorn. (2011). Children and Youth with Myleomeningocele's Independence in Managing Clean Intermittent Catheterization in Familiar Settings. Developmental Medicine and Child Neurology. 100(3), pp. 429 - 438. https://doi.org/10.1111/j.1651-2227.2010.02044.x
Goal directed training of activity performance
Hoare, Brian and Imms, Christine. (2010). Goal directed training of activity performance. In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 130-145 Mac Keith Press.
The young adult with complex disability
Scoullar, Barbara and Imms, Christine. (2010). The young adult with complex disability. In In Dodd, Karen, Imms, Christine and Dodd, Barbara J. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 245-259 Mac Keith Press.
Botulinum Toxin A as an Adjunct to Treatment in the Management of the Upper Limb in Children with Spastic Cerebral Palsy (UPDATE)
Hoare, Brian, Wallen, Margaret, Imms, Christine, Villanueva, Elmer, Rawicki, Hyam and Carey, Leeanne. (2010). Botulinum Toxin A as an Adjunct to Treatment in the Management of the Upper Limb in Children with Spastic Cerebral Palsy (UPDATE). Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD003469.pub4
Psychometric Properties of the 'Extended' Melbourne Assessment of Unilateral Upper Limb Function Based on Rasch Analysis
Randall, Melinda, Pallant, Julie, Imms, Christine and Carey, Leeanne. (2010). Psychometric Properties of the 'Extended' Melbourne Assessment of Unilateral Upper Limb Function Based on Rasch Analysis. Developmental Medicine and Child Neurology.
Impact of Transition to High School on Leisure Participation of Adolescents with Cerebral Palsy
Imms, Christine, Reilly, Sheena, Carlin, John and Dodd, Karen. (2010). Impact of Transition to High School on Leisure Participation of Adolescents with Cerebral Palsy. Developmental Medicine and Child Neurology. 52(2), pp. 22 - 22.
Introduction to the clinical reasoning approach of the book
Imms, Christine, Dodd, Karen and Taylor, Nicholas. (2010). Introduction to the clinical reasoning approach of the book. In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 1-6 Mac Keith Press.
Modified constraint induced therapy for young children
Wallen, Margaret and Imms, Christine. (2010). Modified constraint induced therapy for young children. In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 114-129 Mac Keith Press.
Measure twice, cut once : Understanding the reliability and validity of the clinical measurement tools used in health research
Imms, Christine and Greaves, Susan. (2010). Measure twice, cut once : Understanding the reliability and validity of the clinical measurement tools used in health research. In In Liamputtong, Pranee (Ed.). Research methods in health : Foundations for evidence-based practice pp. 173-195 Oxford University Press.
What is cerebral palsy?
Imms, Christine and Dodd, Karen J.. (2010). What is cerebral palsy? In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 7-30 Mac Keith Press.
Eight Weeks of Occupational Therapy Home Programme, Compared to No Programme, Resulted in Improved Achievement of Child and Family- Selected Goals by Children with Cerebral Palsy
Imms, Christine, Cowan, Rebecca, Ertekin, Elvan, Klein, Gabi-Leigh and Galvin, Jane. (2010). Eight Weeks of Occupational Therapy Home Programme, Compared to No Programme, Resulted in Improved Achievement of Child and Family- Selected Goals by Children with Cerebral Palsy. Australian Occupational Therapy Journal. 57(6), pp. 444 - 445. https://doi.org/10.1111/j.1440-1630.2010.00907.x
Assessing Bimanual Performance in Young Children with Hemiplegic Cerebral Palsy : A Systematic Review
Greaves, Susan, Imms, Christine, Dodd, Karen and Krumlinde-Sundholm, Lena. (2010). Assessing Bimanual Performance in Young Children with Hemiplegic Cerebral Palsy : A Systematic Review. Developmental Medicine and Child Neurology. 52(5), pp. 413 - 421. https://doi.org/10.1111/j.1469-8749.2009.03561.x
Repeat Botulinum Toxin-A in the Upper Limb of Children with Hemiplegia : A Randomized Controlled Trial
Olesch, Christine, Greaves, Susan, Imms, Christine, Reid, Susan M. and Kerr, Graham. (2010). Repeat Botulinum Toxin-A in the Upper Limb of Children with Hemiplegia : A Randomized Controlled Trial. Developmental Medicine and Child Neurology. 52(1), pp. 79 - 86. https://doi.org/10.1111/j.1469-8749.2009.03387.x
Intensive Upper Limb Therapy Following Botulinum-A in Young Children with Hemiplegic Cerebral Palsy : Results from a Randomised Controlled Trial
Hoare, Brian, Imms, Christine and Carey, Leeanne. (2010). Intensive Upper Limb Therapy Following Botulinum-A in Young Children with Hemiplegic Cerebral Palsy : Results from a Randomised Controlled Trial. Developmental Medicine and Child Neurology. 52(Suppl s2), pp. 13 - 13. https://doi.org/10.1111/j.1469-8749.2009.03595.x
Modified constraint-induced movement therapy or bimanual occupational therapy following injection of botulinum toxin-A to improve bimanual performance in young children with hemiplegic cerebral palsy: a randomised controlled trial methods paper
Hoare, Brian, Imms, Christine, Rawicki, Hyam and Carey, Leeanne. (2010). Modified constraint-induced movement therapy or bimanual occupational therapy following injection of botulinum toxin-A to improve bimanual performance in young children with hemiplegic cerebral palsy: a randomised controlled trial methods paper. BMC Neurology. 10(1), pp. 58 - 78. https://doi.org/10.1186/1471-2377-10-58
The adult years
Dodd, Karen J., Taylor, Nicholas F. and Imms, Christine. (2010). The adult years. In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 260-281 Mac Keith Press.
Overview of therapy
Dodd, Karen, Imms, Christine and Taylor, Nicholas F.. (2010). Overview of therapy. In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 40-72 Mac Keith Press.
Stability of caregiver-reported manual ability and gross motor function classifications of cerebral palsy
Imms, Christine, Carlin, John and Eliasson, Ann-Christin. (2009). Stability of caregiver-reported manual ability and gross motor function classifications of cerebral palsy. Developmental Medicine and Child Neurology. 52(2), pp. 153 - 159. https://doi.org/10.1111/j.1469-8749.2009.03346.x
Characteristics influencing participation of Australian children with cerebral palsy
Imms, Christine, Reilly, Sheena, Carlin, John and Dodd, Karen. (2009). Characteristics influencing participation of Australian children with cerebral palsy. Disability and Rehabilitation. 31(26), pp. 2204 - 2215. https://doi.org/10.3109/09638280902971406
Newborn individualised developmental care and assessment programme for infants born less than 32 weeks' gestation did not improve neurodevelopmental outcomes at one and two years more than standard developmental care
Imms, Christine and Brown, Nisha. (2009). Newborn individualised developmental care and assessment programme for infants born less than 32 weeks' gestation did not improve neurodevelopmental outcomes at one and two years more than standard developmental care. Australian Occupational Therapy Journal. 56(6), pp. 439 - 441. https://doi.org/10.1111/j.1440-1630.2009.00824.x
Factors influencing participation of children with cerebral palsy in Australia
Imms, Christine, Reilly, Sheena, Carlin, John and Dodd, Karen. (2009). Factors influencing participation of children with cerebral palsy in Australia. Developmental Medicine and Child Neurology. 51(2), pp. 23 - 24.
Sensory processing abilities of children who have sustained traumatic brain injuries
Galvin, Jane, Froude, Elspeth and Imms, Christine. (2009). Sensory processing abilities of children who have sustained traumatic brain injuries. American Journal of Occupational Therapy. 63(6), pp. 701 - 709. https://doi.org/10.5014/ajot.63.6.701
The relationship between physical performance and self-perception in children with and without cerebral palsy
Ziebell, Melanie, Imms, Christine, Froude, Elspeth, McCoy, Anne and Galea, Mary. (2009). The relationship between physical performance and self-perception in children with and without cerebral palsy. Australian Occupational Therapy Journal. 56(1), pp. 24 - 32. https://doi.org/10.1111/j.1440-1630.2008.00775.x
The evidence-base for upper extremity intervention for children with cerebral palsy
Imms, Christine. (2008). The evidence-base for upper extremity intervention for children with cerebral palsy. In In A.C.Eliasson and P, Burtner (Ed.). Improving hand function in cerebral palsy : Theory, evidence and intervention pp. 396 - 417 Mac Keith Press.
Children with cerebral palsy participate: A review of the literature
Imms, Christine. (2008). Children with cerebral palsy participate: A review of the literature. Disability and Rehabilitation. 30(24), pp. 1867 - 1884. https://doi.org/10.1080/09638280701673542
Establishing validity of a modified Melbourne assessment for children ages 2 to 4 years
Randall, Melinda, Imms, Christine and Carey, Leeanne. (2008). Establishing validity of a modified Melbourne assessment for children ages 2 to 4 years. American Journal of Occupational Therapy. 62(4), pp. 373 - 383. https://doi.org/10.5014/ajot.62.4.373
Review of the children's assessment of participation and enjoyment and the preferences for activity of children
Imms, Christine. (2008). Review of the children's assessment of participation and enjoyment and the preferences for activity of children. Physical & Occupational Therapy in Pediatrics. 28(4), pp. 389 - 404. https://doi.org/10.1080/01942630802307135
Activity level assessment of the upper limb in children with hemiplegic cerebral palsy : Treatment innovation and its impact on measurement
Hoare, Brian, Imms, Christine and Carey, Leeanne. (2008). Activity level assessment of the upper limb in children with hemiplegic cerebral palsy : Treatment innovation and its impact on measurement. 2008 AusACPDM Conference : Broadening the Scope. Brisbane, Queensland, Australia 10 - 13 Apr 2008 Australasian Academy of Cerebral Palsy and Developmental Medicine. pp. 1-10
Diversity of participation in children with cerebral palsy
Imms, Christine, Reilly, Sheena, Carlin, John and Dodd, Karen. (2008). Diversity of participation in children with cerebral palsy. Developmental Medicine and Child Neurology. 50(5), pp. 363 - 369. https://doi.org/10.1111/j.1469-8749.2008.02051.x
Participation of Australian Children with Cerebral Palsy in Activities Outside School
Imms, Christine, Reilly, Sheena, Carlin, John and Dodd, Karen. (2008). Participation of Australian Children with Cerebral Palsy in Activities Outside School. Developmental Medicine and Child Neurology. 50(113), pp. 17 - 17.
Goal-Directed Training: Linking Theories of Treatment to Clinical Practice for Improved Functional Activities in Daily Life
Mastos, M., Miller, K., Eliasson, Ann-Christin and Imms, Christine. (2007). Goal-Directed Training: Linking Theories of Treatment to Clinical Practice for Improved Functional Activities in Daily Life. Clinical Rehabilitation. 21(1), pp. 47 - 55. https://doi.org/10.1177/0269215506073494
Critically Appraised Papers : Parents of Children with Developmental Coordination Disorder (i) Experienced Uncertainty as they Come to Understand their Children and (ii) Described a Trajectory of Changing Difficulties as their Children Got Older
Imms, Christine, Poulsen, Anne and Case-Smith, Jane. (2007). Critically Appraised Papers : Parents of Children with Developmental Coordination Disorder (i) Experienced Uncertainty as they Come to Understand their Children and (ii) Described a Trajectory of Changing Difficulties as their Children Got Older. Australian Occupational Therapy Journal. 54(3), pp. 242 - 244.
Participation of Children Who Have Cerebral Palsy
Imms, Christine, Reilly, Sheena and Carlin, John. (2007). Participation of Children Who Have Cerebral Palsy. Developmental Medicine and Child Neurology. 49(111), pp. 33 - 34.
Group-Based Task-Related Training for Children with Cerebral Palsy: A Pilot Study
Crompton, Jodi, Imms, Christine, McCoy, Anne, Randall, Melinda, Eldridge, Beverly, Scoullar, Barbara and Galea, Mary. (2007). Group-Based Task-Related Training for Children with Cerebral Palsy: A Pilot Study. Physical & Occupational Therapy in Pediatrics. 27(4), pp. 43 - 65. https://doi.org/10.1300/J006v27n04_04
Constraint-Induced Movement Therapy in the Treatment of the Upper Limb in Children with Hemiplegic Cerebral Palsy: a Cochrane Systematic Review
Hoare, Brian, Imms, Christine, Carey, Leeanne and Wasiak, Jason. (2007). Constraint-Induced Movement Therapy in the Treatment of the Upper Limb in Children with Hemiplegic Cerebral Palsy: a Cochrane Systematic Review. Clinical Rehabilitation. 21(8), pp. 675 - 686. https://doi.org/10.1177/0269215507080783
Therapeutic practice resulted in moderate improvement in handwriting ability for children with poor handwriting when compared with sensorimotor intervention, but not when compared with a control group
Wallen, Margaret and Froude, Elspeth. (2007). Therapeutic practice resulted in moderate improvement in handwriting ability for children with poor handwriting when compared with sensorimotor intervention, but not when compared with a control group. Australian Occupational Therapy Journal. 54(3), pp. 239 - 244.
Being in Pain: a Phenomenological Study of Young People with Cerebral Palsy
Castle, Kirstyn, Imms, Christine and Howie, Linsey. (2007). Being in Pain: a Phenomenological Study of Young People with Cerebral Palsy. Developmental Medicine and Child Neurology. 49(6), pp. 445 - 449. https://doi.org/10.1111/j.1469-8749.2007.00445.x
Critically Appraised Paper: Helping Adults with Schizophrenia or Schizo-Affective Disorder Stop Smoking Resulted in Positive Short-Term Health Benefits
Imms, Christine and Nichol, Maggie. (2007). Critically Appraised Paper: Helping Adults with Schizophrenia or Schizo-Affective Disorder Stop Smoking Resulted in Positive Short-Term Health Benefits. Australian Occupational Therapy Journal. 54(1), pp. 75 - 76.
Editorial: Critically Appraised Papers Related to Children with Autism
Wallen, Margaret and Imms, Christine. (2006). Editorial: Critically Appraised Papers Related to Children with Autism. Australian Occupational Therapy Journal. 53(3), pp. 237 - 238.
Daily Activities of families with a child with Severe Autism Revolved Around the Need to Occupy and Pacify the Child: Families Felt Robbed of Meaning and Satisfaction in Family Life: Commentary
Imms, Christine, Rodger, Sylvia and Ziviani, Jenny. (2006). Daily Activities of families with a child with Severe Autism Revolved Around the Need to Occupy and Pacify the Child: Families Felt Robbed of Meaning and Satisfaction in Family Life: Commentary. Australian Occupational Therapy Journal. 53(2), pp. 136 - 137.
Searching for Evidence in Pediatric Occupational Therapy Using Free versus Subscription Databases: A Comparison of Outcomes
Lovarini, Meryl, Wallen, Margaret and Imms, Christine. (2006). Searching for Evidence in Pediatric Occupational Therapy Using Free versus Subscription Databases: A Comparison of Outcomes. Physical & Occupational Therapy in Pediatrics. 26(3), pp. 19 - 38. https://doi.org/10.1300/J006v26n03_03
Editorial: The International Classification of Functioning, Disability and Health: They're Talking Our Language
Imms, Christine. (2006). Editorial: The International Classification of Functioning, Disability and Health: They're Talking Our Language. Australian Occupational Therapy Journal. 53(2), pp. 65 - 66.