Needs of people with dementia and their spousal carers: A study of those living in the community

Journal article

Morrisby, Claire, Joosten, Annette and Ciccarelli, Marina. (2019). Needs of people with dementia and their spousal carers: A study of those living in the community. Australasian Journal on Ageing. 38(2), pp. 43 - 49. https://doi.org/10.1111/ajag.12609
AuthorsMorrisby, Claire, Joosten, Annette and Ciccarelli, Marina
Abstract

Objective To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia. Methods An interpretive description approach was utilised. Semi‐structured interviews were conducted with 10 dyads of spousal carers and people with dementia. Comparative analysis was used to develop themes regarding need, which were reviewed using two focus groups of spousal carers. Results Three major themes were developed through analysis of data from the interviews and were refined by the focus groups: (a) environmental enablers to support care; (b) strong caring relationships; and (c) adaptation of daily life roles. Conclusions As dementia progresses, continued support to maintain participation in meaningful activity is needed. Strong caring relationships, knowledge and an understanding of dementia among health professionals, service providers and family members were key to maintaining support for the needs of people with dementia and their spousal carers.

Keywordscommunity; dementia; health services; spousal carers
Year2019
JournalAustralasian Journal on Ageing
Journal citation38 (2), pp. 43 - 49
PublisherWiley-Blackwell
ISSN1440-6381
Digital Object Identifier (DOI)https://doi.org/10.1111/ajag.12609
Scopus EID2-s2.0-85060343300
Page range43 - 49
Research GroupSchool of Allied Health
Publisher's version
File Access Level
Controlled
Place of publicationAustralia
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