Mind the gap : Comparing perspectives of service providers to the needs of people with dementia living in the community

Journal article

Morrisby, Claire, Ciccarelli, Marina and Joosten, Annette. (2020). Mind the gap : Comparing perspectives of service providers to the needs of people with dementia living in the community. Dementia. 20(4), pp. 1425-1441. https://doi.org/10.1177/1471301220947837
AuthorsMorrisby, Claire, Ciccarelli, Marina and Joosten, Annette
Abstract

Introduction
Research with West Australian people with dementia and their carers living in the community identified that they have a diverse range of needs. However, little is known about the needs of people with dementia and their carers from the perspectives of service providers who provide formal support. This study aimed to investigate the needs of people with dementia and their carers living in the community from the perspectives of service providers, and compare this to service recipients.

Method
This interpretive descriptive study used focus groups to collect qualitative data from service providers (N = 10). Data were analysed using a hybrid inductive–deductive approach to compare the needs identified by service providers to those identified by people with dementia and their carers.

Results
Three major themes were identified: (i) services and supports required by people with dementia and their carers should be flexible, tailored, and equitable; (ii) building capacity to support carers and people with dementia; and (iii) systems designed to care were fragmented and difficult to navigate. Service providers prioritise needs that are limited to their current capacity to provide in contrast to the holistic needs of people with dementia and their carers.

Conclusion
There was poor alignment between the perceived needs of people with dementia and their carers and the needs prioritised by service providers in the West Australian community. This gap may reduce the ability of services to effectively support people with dementia to remain living in the community.

Keywordsdementia; community services; interpretive description; aged care; Australia; service providers
Year2020
JournalDementia
Journal citation20 (4), pp. 1425-1441
PublisherSage Publications Ltd.
ISSN1471-3012
Digital Object Identifier (DOI)https://doi.org/10.1177/1471301220947837
Scopus EID2-s2.0-85089036447
Research or scholarlyResearch
Page range1425-1441
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online05 Aug 2020
Publication process dates
Deposited11 Aug 2021
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