Developing an inclusive dance guide for children with cerebral palsy : A Co‐design process and initial feasibility study

Journal article


Duarte Machado, Eduardo, Miller, Laura, Nicholas, Joanna, Cross, Joanne, Orr, Rhyannon and Cole, Michael H.. (2025). Developing an inclusive dance guide for children with cerebral palsy : A Co‐design process and initial feasibility study. Health Expectations. 28(3), p. Article e70304. https://doi.org/10.1111/hex.70304
AuthorsDuarte Machado, Eduardo, Miller, Laura, Nicholas, Joanna, Cross, Joanne, Orr, Rhyannon and Cole, Michael H.
Abstract

Background
Participation in community activities has shown positive outcomes for all children, yet those with cerebral palsy (CP) still experience varying levels of inclusion. This study aimed to address the challenges faced by families of children with CP in accessing community-based dance classes by co-designing a practical guide to support their inclusion.

Design
The guide was developed through a collaborative process involving academic researchers, dance professionals, therapists and families of children with CP. The co-design phase was guided by the International Association for Public Participation (IAP2), workshops were conducted with 11 research partners, including two parents of children with CP, two community dance teachers, two therapists with experience in dance interventions and five academic researchers. Feedback from ‘Dance Teacher Reviewers’ who were not involved in the co-design was also incorporated to support the guide's initial feasibility.

Results
The collaborative efforts resulted in an evidence-based guide shaped by lived experiences. It provides actionable strategies to implement inclusive dance approaches effectively, supporting the inclusion of children with CP in community dance settings.

Conclusion
The co-designed guide represents a significant step toward facilitating inclusive dance classes for children with CP. Future research should explore the guide's effectiveness and feasibility of implementation across various community settings to ensure its broader applicability and impact.

Patient or Public Contribution
Parents of children with CP, dance teachers and therapists actively contributed to all stages of this study, from public consultation to collaborative co-design workshops, decision-making, review and refinement of the guide.

Keywordscerebral palsy; co-design; inclusive dance
Year2025
JournalHealth Expectations
Journal citation28 (3), p. Article e70304
PublisherJohn Wiley & Sons Ltd
ISSN1369-6513
Digital Object Identifier (DOI)https://doi.org/10.1111/hex.70304
PubMed ID40432276
Scopus EID2-s2.0-105006716993
PubMed Central IDPMC12116933
Open accessPublished as ‘gold’ (paid) open access
Page range1-13
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online27 May 2025
Publication process dates
Accepted09 May 2025
Deposited12 Jun 2025
Additional information

© 2025 The Author(s). Health Expectations published by John Wiley & Sons Ltd.

This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

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Psarakis, Michael, Greene, David A., Cole, Michael H., Lord, Stephen R., Hoang, Phu and Brodie, Matthew A. D.. (2018). Wearable technology reveals gait compensations, unstable walking patterns and fatigue in people with multiple sclerosis. Physiological Measurement. 39(7), pp. 1 - 13. https://doi.org/10.1088/1361-6579/aac0a3
Physical fitness and peak running periods during female Australian football match-play
Black, Georgia M., Gabbett, Tim J., Johnston, Rich D., Cole, Michael H., Naughton, Geraldine and Dawson, Brian. (2018). Physical fitness and peak running periods during female Australian football match-play. Science and Medicine in Football. 2(3), pp. 246 - 251. https://doi.org/10.1080/24733938.2018.1426103
Regulation of locomotor pointing across the lifespan: Investigating age-related influences on perceptual-motor coupling
van Andel, Steven, Cole, Michael H. and Pepping, Gert-Jan. (2018). Regulation of locomotor pointing across the lifespan: Investigating age-related influences on perceptual-motor coupling. PLoS ONE. 13(7), pp. 1 - 16. https://doi.org/10.1371/journal.pone.0200244
Overview of play and leisure
Ziviani, Jenny, Poulsen, Anne A. and Miller, Laura. (2017). Overview of play and leisure. In In Law, Mary and Baum, Carolyn (Ed.). Measuring occupational performance : Supporting best practice in occupational therapy pp. 153-199 Slack Incorporated.
Evidence of compensatory joint kinetics during stair ascent and descent in Parkinson's disease
Conway, Zachary J., Silburn, Peter A., Blackmore, Tim and Cole, Michael H.. (2017). Evidence of compensatory joint kinetics during stair ascent and descent in Parkinson's disease. Gait & Posture. 52, pp. 33-39. https://doi.org/10.1016/j.gaitpost.2016.11.017
Imposed faster and slower walking speeds influence gait stability differently in Parkinson fallers
Cole, Michael H., Sweeney, Matthew, Conway, Zachary, Blackmore, Tim and Silburn, Peter A.. (2017). Imposed faster and slower walking speeds influence gait stability differently in Parkinson fallers. Archives of Physical Medicine and Rehabilitation. 98(4), pp. 639-648. https://doi.org/10.1016/j.apmr.2016.11.008
Automatic detection of pitching and throwing events in baseball with inertial measurement sensors
Murray, Nick B., Black, Georgia M., Whiteley, Rod J., Gahan, Peter, Cole, Michael H., Utting, Andy and Gabbett, Tim J.. (2017). Automatic detection of pitching and throwing events in baseball with inertial measurement sensors. International Journal of Sports Physiology and Performance. 12(4), pp. 533-537. https://doi.org/10.1123/ijspp.2016-0212
Neuromuscular impairments are associated with impaired head and trunk stability during gait in Parkinson fallers
Cole, Michael H., Naughton, Geraldine A. and Silburn, Peter A.. (2017). Neuromuscular impairments are associated with impaired head and trunk stability during gait in Parkinson fallers. Neurorehabilitation and Neural Repair. 31(1), pp. 34-47. https://doi.org/10.1177/1545968316656057
Assessing stability in mild and moderate Parkinson's disease : Can clinical measures provide insight?
Hubble, Ryan P., Silburn, Peter A., Naughton, Geraldine A. and Cole, Michael H.. (2016). Assessing stability in mild and moderate Parkinson's disease : Can clinical measures provide insight? Gait & Posture. 49(1), pp. 7-13. https://doi.org/10.1016/j.gaitpost.2016.06.002
A systematic review on perceptual-motor calibration to changes in action capabilities
van Andel, Steven, Cole, Michael H. and Pepping, Gert-Jan. (2016). A systematic review on perceptual-motor calibration to changes in action capabilities. Human Movement Science. 51(1), pp. 59-71. https://doi.org/10.1016/j.humov.2016.11.004
Monitoring workload in throwing-dominant sports : A systematic review
Black, Georgia M., Gabbett, Tim J., Cole, Michael H. and Naughton, Geraldine. (2016). Monitoring workload in throwing-dominant sports : A systematic review. Sports Medicine. 46, pp. 1503-1516. https://doi.org/10.1007/s40279-016-0529-6
Does context matter? Mastery motivation and therapy engagement of children with cerebral palsy
Miller, Laura, Ziviani, Jenny, Ware, Robert S. and Boyd, Roslyn N.. (2016). Does context matter? Mastery motivation and therapy engagement of children with cerebral palsy. Physical & Occupational Therapy in Pediatrics. 36(2), pp. 155 - 170. https://doi.org/10.3109/01942638.2015.1076556
Use of a short-form balance confidence scale to predict future recurrent falls in people with Parkinson Disease
Cole, Michael H., Rippey, Jodi, Naughton, Geraldine A. and Silburn, Peter A.. (2016). Use of a short-form balance confidence scale to predict future recurrent falls in people with Parkinson Disease. Archives of Physical Medicine and Rehabilitation. 97(1), pp. 152-156. https://doi.org/10.1016/j.apmr.2015.07.027
The biomechanics of the modern golf swing : Implications for lower back injuries
Cole, Michael H. and Grimshaw, Paul N.. (2016). The biomechanics of the modern golf swing : Implications for lower back injuries. Sports Medicine. 46(3), pp. 339-351. https://doi.org/10.1007/s40279-015-0429-1
The use of wearable microsensors to quantify sport-specific movements
Chambers, Ryan, Gabbett, Tim J., Cole, Michael H. and Beard, Adam. (2015). The use of wearable microsensors to quantify sport-specific movements. Sports Medicine. 45(7), pp. 1065-1081. https://doi.org/10.1007/s40279-015-0332-9
Wearable sensor use for assessing standing balance and walking stability in people with Parkinson’s Disease: A systematic review
Hubble, Ryan, Naughton, Geraldine, Silburn, Peter and Cole, Michael. (2015). Wearable sensor use for assessing standing balance and walking stability in people with Parkinson’s Disease: A systematic review. PLoS ONE. 10(4), pp. 1 - 22. https://doi.org/10.1371/journal.pone.0123705
Randomized comparison trial of density and context of upper limb intensive group versus individualized occupational therapy for children with unilateral cerebral palsy
Sakzewski, Leanne, Miller, Laura, Ziviani, Jenny, Abbott, David F., Rose, Stephen, Macdonell, Richard A. L. and Boyd, Roslyn N.. (2015). Randomized comparison trial of density and context of upper limb intensive group versus individualized occupational therapy for children with unilateral cerebral palsy. Developmental Medicine and Child Neurology. 57(6), pp. 539 - 547. https://doi.org/10.1111/dmcn.12702
Trunk muscle exercises as a means of improving postural stability in people with Parkinson's disease : A protocol for a randomised controlled trial
Hubble, Ryan P., Naughton, Geraldine A., Silburn, Peter and Cole, Michael H.. (2014). Trunk muscle exercises as a means of improving postural stability in people with Parkinson's disease : A protocol for a randomised controlled trial. BMJ Open. 4(12), pp. 1 - 9. https://doi.org/10.1136/bmjopen-2014-006095
Concurrent validity of accelerations measured using tri-axial inertial measurement unit while walking on firm, compliant and uneven surfaces
Cole, Michael H., van den Hoorn, Wolbert, Kavanagh, Justin K., Morrison, Steven, Hodges, Paul W., Smeathers, James E. and Kerr, Graham K.. (2014). Concurrent validity of accelerations measured using tri-axial inertial measurement unit while walking on firm, compliant and uneven surfaces. PLoS ONE. 9(5), pp. 1 - 12. https://doi.org/10.1371/journal.pone.0098395
Executive function and postural instability in people with Parkinson's disease
Xu, Dong, Cole, Michael H., Mengersen, Kerrie, Silburn, Peter A., Qiu, Feng, Graepel, Cara and Kerr, Graham. (2014). Executive function and postural instability in people with Parkinson's disease. Parkinson's Disease. 2014(1), pp. 1 - 8. https://doi.org/10.1155/2014/684758
Mastery motivation as a predictor of occupational performance following upper limb intervention for school-aged children with congenital hemplegia
Miller, Laura, Ziviani, Jenny, Ware, Robert S. and Boyd, Roslyn N.. (2014). Mastery motivation as a predictor of occupational performance following upper limb intervention for school-aged children with congenital hemplegia. Developmental Medicine and Child Neurology. 56(10), pp. 976 - 983. https://doi.org/10.1111/dmcn.12471
The crunch factor's role in golf-related low back pain
Cole, Michael H. and Grimshaw, Paul N.. (2014). The crunch factor's role in golf-related low back pain. Spine Journal. 14(5), pp. 799-807. https://doi.org/10.1016/j.spinee.2013.09.019
A systematic review of clinimetric properties of measurements of motivation for children aged 5-16 years with a physical disability or motor delay
Miller, Laura, Ziviani, Jenny and Boyd, Roslyn Nancy. (2014). A systematic review of clinimetric properties of measurements of motivation for children aged 5-16 years with a physical disability or motor delay. Physical & Occupational Therapy in Pediatrics. 34(1), pp. 90-111. https://doi.org/10.3109/01942638.2013.771720
Mastery motivation: A way of understanding therapy outcomes for children with unilateral cerebral palsy
Miller, Laura, Ziviani, Jenny, Ware, Robert and Boyd, Roslyn N.. (2014). Mastery motivation: A way of understanding therapy outcomes for children with unilateral cerebral palsy. Disability and Rehabilitation. 37(16), pp. 1 - 7. https://doi.org/10.3109/09638288.2014.964375
Professionalism, golf coaching and a Master of Science degree : A commentary
Cole, Michael H.. (2014). Professionalism, golf coaching and a Master of Science degree : A commentary. International Journal of Sports Science and Coaching. 9(4), pp. 861-864. https://doi.org/10.1260/1747-9541.9.4.717
Mastery motivation in children with congenital hemiplegia: Individual and environmental associations
Miller, Laura, Ziviani, Jenny, Ware, Robert S. and Boyd, Roslyn N.. (2014). Mastery motivation in children with congenital hemiplegia: Individual and environmental associations. Developmental Medicine and Child Neurology. 56(3), pp. 267 - 274. https://doi.org/10.1111/dmcn.12356
The dimensions of mastery questionnaire in school-aged with congenital hemiplegia: Test-retest reproducibility and parent-child concordance
Miller, Laura, Marnane, K., Ziviani, Jenny and Boyd, Roslyn N.. (2014). The dimensions of mastery questionnaire in school-aged with congenital hemiplegia: Test-retest reproducibility and parent-child concordance. Physical & Occupational Therapy in Pediatrics. 34(2), pp. 168 - 184. https://doi.org/10.3109/01942638.2013.806978
Mastery motivation as a predictor of occupational performance following upper limb intervention for school-aged children with congenital hemiplegia
Miller, Laura, Ziviani, Jenny, Ware, Robert S. and Boyd, Roslyn N.. (2014). Mastery motivation as a predictor of occupational performance following upper limb intervention for school-aged children with congenital hemiplegia. Developmental Medicine and Child Neurology. 56(10), pp. 976 - 983. https://doi.org/10.1111/dmcn.12471
COMBIT: Protocol of a randomised comparison trial of COMbined modified constraint induced movement therapy and bimanual intensive training with distributed model of standard upper limb rehabilitation in children with congenital hemiplegia
Boyd, Roslyn, Ziviani, Jenny, Sakzewski, Leanne, Miller, Laura, Bowden, Joanne, Cunnington, Ross and Rose, Stephen. (2013). COMBIT: Protocol of a randomised comparison trial of COMbined modified constraint induced movement therapy and bimanual intensive training with distributed model of standard upper limb rehabilitation in children with congenital hemiplegia. BMC Neurology. 13(68), pp. 1 - 17. https://doi.org/10.1186/1471-2377-13-68
Effects of textured insoles on balance in people with Parkinson's Disease
Qiu, Feng, Cole, Michael H., Davids, Keith W., Hennig, Ewald M., Silburn, Peter A., Netscher, Heather and Kerr, Graham K.. (2013). Effects of textured insoles on balance in people with Parkinson's Disease. PLoS ONE. 8(12), pp. 1 - 8. https://doi.org/10.1371/journal.pone.0083309
COMBIT: Protocol of a randomised comparison trial of COMbined modified constraint induced movement therapy and bimanual intensive training with distributed model of standard upper limb rehabilitation in children with congenital hemiplegia
Boyd, Roslyn, Ziviani, Jenny, Sakzewski, Leanne, Miller, Laura, Bowden, Joanne, Cunnington, Ross and Rose, Stephen. (2013). COMBIT: Protocol of a randomised comparison trial of COMbined modified constraint induced movement therapy and bimanual intensive training with distributed model of standard upper limb rehabilitation in children with congenital hemiplegia. BMC Neurology. 13(68), pp. 1 - 17. https://doi.org/10.1186/1471-2377-13-68
Cognitive tasks influence balance performance in people with Parkinson's disease
Xu, Dong, Muthalib, Mark, Pegoraro, Roger, Mengersen, Kerrie, Cole, Michael, Silburn, Peter and Kerr, Graham. (2013). Cognitive tasks influence balance performance in people with Parkinson's disease. 17th International Congress of Parkinson's Disease and Movement Disorders. Sydney, New South Wales, Australia 16 - 20 Jun 2013 The Movement Disorder Society.
A secondary motor task exaggerates gait deficits in Parkinson's fallers
Kerr, Graham K., Cole, Michael, Wood, Joanne M. and Silburn, Peter A.. (2012). A secondary motor task exaggerates gait deficits in Parkinson's fallers. Congress of the International Society of Electrophysiology & Kinesiology. International Society of Electrophysiology & Kinesiology.
How well do clinical tests predict future falls in older people?
Kerr, Graham K., Wood, Joanne M., Lacherez, Philippe F. and Cole, Michael H.. (2012). How well do clinical tests predict future falls in older people?
Cognitive function and postural instability in people with Parkinson's disease
Xu, Dong, Cole, Michael, Mengersen, Kerrie, Silburn, Peter and Kerr, Graham. (2012). Cognitive function and postural instability in people with Parkinson's disease.
Hamstring asymmetry: The key to recurring injury
Hill, Cameron and Cole, Michael. (2012). Hamstring asymmetry: The key to recurring injury.
A spatiotemporal analysis of gait freezing and the impact of pedunculopontine nucleus stimulation
Thevathasan, Wesley, Cole, Michael H., Graepel, Cara L., Hyam, Jonathan A., Jenkinson, Ned, Brittain, John-Stuart, Coyne, Terry J., Silburn, Peter A., Aziz, Tipu Z., Kerr, Graham K. and Brown, Peter. (2012). A spatiotemporal analysis of gait freezing and the impact of pedunculopontine nucleus stimulation. Brain. 135, pp. 1446 - 1454. https://doi.org/10.1093/brain/aws039
Performance of a secondary motor task reveals altered gait patterns in future Parkinson's fallers
Kerr, Graham K., Cole, Michael H., Wood, Joanne M. and Silburn, Peter A.. (2012). Performance of a secondary motor task reveals altered gait patterns in future Parkinson's fallers.
Pedunculopontine nucleus deep brain stimulation produces sustained improvement in primary progressive freezing of gait
Wilcox, Robert A., Cole, Michael H., Wong, David, Coyne, Terry, Silburn, Peter and Kerr, Graham. (2011). Pedunculopontine nucleus deep brain stimulation produces sustained improvement in primary progressive freezing of gait. Journal of Neurology, Neurosurgery and Psychiatry. 82(11), pp. 1256 - 1259. https://doi.org/10.1136/jnnp.2010.213462
Falls in Parkinson's disease: Evidence for altered stepping strategies on compliant surfaces
Cole, Michael H., Silburn, Peter A., Wood, Joanne M. and Kerr, Graham K.. (2011). Falls in Parkinson's disease: Evidence for altered stepping strategies on compliant surfaces. Parkinsonism and Related Disorders. 17(8), pp. 610 - 616. https://doi.org/10.1016/j.parkreldis.2011.05.019
Risk of falls, injurious falls, and other injuries resulting from visual impairment among older adults with age-related macular degeneration
Wood, Joanne M., Lacherez, Philippe, Black, Alex A., Cole, Michael H., Boon, Mei Ying and Kerr, Graham K.. (2011). Risk of falls, injurious falls, and other injuries resulting from visual impairment among older adults with age-related macular degeneration. Investigative Ophthalmology and Visual Science. 52(8), pp. 5088 - 5092. https://doi.org/10.1167/iovs.10-6644
Falls in Parkinson's disease: Kinematic evidence for impaired head and trunk control
Cole, Michael H., Silburn, Peter A., Wood, Joanne M., Worringham, Charles J. and Kerr, Graham K.. (2010). Falls in Parkinson's disease: Kinematic evidence for impaired head and trunk control. Movement Disorders. 25(14), pp. 2369 - 2378. https://doi.org/10.1002/mds.23292
Postural stability and gait among older adults with age-related maculopathy
Wood, Joanne M., Lacherez, Philippe F., Black, Alex A., Cole, Michael H., Boon, Mei Ying and Kerr, Graham K.. (2009). Postural stability and gait among older adults with age-related maculopathy. Investigative Ophthalmology and Visual Science. 50(1), pp. 482 - 487. https://doi.org/10.1167/iovs.08-1942
The x-factor and its relationship to golfing performance
Cole, Michael H. and Grimshaw, Paul N.. (2009). The x-factor and its relationship to golfing performance. Journal of Quantitative Analysis in Sports. 5(1), pp. 1 - 19. https://doi.org/10.2202/1559-0410.1134
Electromyography of the trunk and abdominal muscles in golfers with and without low back pain
Cole, M. H. and Grimshaw, P. N.. (2008). Electromyography of the trunk and abdominal muscles in golfers with and without low back pain. Journal of Science and Medicine in Sport. 11(2), pp. 174 - 181. https://doi.org/10.1016/j.jsams.2007.02.006
Trunk muscle onset and cessation in golfers with and without low back pain
Cole, M. H. and Grimshaw, P. N.. (2008). Trunk muscle onset and cessation in golfers with and without low back pain. Journal of Biomechanics. 41(13), pp. 2829 - 2833. https://doi.org/10.1016/j.jbiomech.2008.07.004